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CLL Support

22,510 members • 38,658 posts

All posts for September 2019

Bruising day 7 on Ibrutinib

Am now on day 7 of 3 caps a day of Ibrutinib. Nausea has passed but I am noticing some bruising on my arms, started yesterday and appears to be spreading...

Am now on day 7 of 3 caps a day of Ibrutinib. Nausea has passed but I am noticin...

Hidden

•5 years ago

27 Replies

Anyone taking Ibruvica ?

I'm seeing a lot of bad side effects with Ibruvica. How many on this site have been taking this Rx for a few years or more w/o major/moderate side effects?...

I'm seeing a lot of bad side effects with Ibruvica. How many on this site have b...

12Caine12

•5 years ago

80 Replies

BTK + anticoaculant/antiplatelet---update

Thanks for your replies of a month ago after the cardiologist started 81 mg aspirin. The workup is now done, resulting in dx of CAD based on 2016 CT, and...

Thanks for your replies of a month ago after the cardiologist started 81 mg asp...

Agiledog

•5 years ago

3 Replies

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FLU SHOT

I need to ask which flu shot do we get if we have CLL ? I got one yesterday but I neglected to study the type flu shot we get The...

I need to ask which flu shot do we get if we have CLL ? I got one ...

lacroixx1

•5 years ago

20 Replies

Diverticulitis & weeks of antibiotics

Wondering if anyone else has been through this experience. Am on w&w, 3 years after treatment. Diverticulitis came on hard; 10 days augmentin, 4 days cypro &...

Wondering if anyone else has been through this experience. Am on w&w, 3 years af...

Barney56

•5 years ago

16 Replies

Imbruvica and A Fib

I started Imbruvica 420mg on Feb 1 2019 which was reduced to 280mg mid July. Recently I have been diagnosed with A-Fib. We knew when we started with...

I started Imbruvica 420mg on Feb 1 2019 which was reduced to 280mg mid July. Re...

BobTerry62

•5 years ago

18 Replies

Bi clonal CLL

When diagnosed with CLL in May 2018, the FISH test reported I have 2 different B cells that are multiplying, making my CLL bi clonal instead of mono clonal. I...

When diagnosed with CLL in May 2018, the FISH test reported I have 2 different B...

wcm242

•5 years ago

7 Replies

ROR1 as a delivery system to bring novel therapies to every CLL cell.

Thanks to a good discussion with Aussie Neil, MelioraDay and others I have looked further into the ROR1 story. As MelioraDay asserts, although ROR1 protein is...

Thanks to a good discussion with Aussie Neil, MelioraDay and others I have looke...

CaptRon1976

•5 years ago

3 Replies

To all the Jewish members : Happy New Year

The jewish New Year starts on Sunday evening - a year of hopes and expectations and prayers. For us, this is a time of retrospection with fresh starts. May all...

The jewish New Year starts on Sunday evening - a year of hopes and expectations ...

Safta

•5 years ago

23 Replies

Critical Molecular Pathways in CLL Therapy

This is an overview of where we are in CLL treatment and where the research may be most needed at this point in time. Lengthy, with good illus. and...

This is an overview of where we are in CLL treatment and where the research may ...

cllady01

Former Volunteer•5 years ago

4 Replies

Minimizing the risk of infections

I'm recently diagnosed with CLL and have two children (ages 10 and 11) and one young adult (22) living at home with me and my partner. I'd be interested in any...

I'm recently diagnosed with CLL and have two children (ages 10 and 11) and one y...

Hidden

•5 years ago

15 Replies

One Day at a Time

Hi CLL People, It's been a while since I posted (4 years while to be more precise) and in that time I've been doing exactly as above - taking it 1 day at a...

Hi CLL People, It's been a while since I posted (4 years while to be more precis...

mister_Ian_NE

•5 years ago

6 Replies

Cold

Hey there everyone. About 4 weeks ago my husband got a bad cold. He just can’t seem to shake it and energy is down. He doesn’t want me calling the doctor...

Hey there everyone. About 4 weeks ago my husband got a bad cold. He just can...

Nanatoo4

•5 years ago

29 Replies

Cancer cells being brutally destroyed by genetically engineered T-cells GIF

Not too sure if its CAR-T in action https://gfycat.com/gorgeousdefensivekid-rsciences-biology-cancer

Not too sure if its CAR-T in action https://gfycat.com/gorgeousdefensivekid-rsci...

zaax

•5 years ago

3 Replies

“CLL & Heartburn” ??

Weird question but ... the original way I was diagnosed with CLL was because I was having some very strange “heart burn” type of symptoms. And my doctor did a...

Weird question but ... the original way I was diagnosed with CLL was because I w...

Meamiaam10

•5 years ago

18 Replies

Nausea with Ibrutinib

Hi to all of you, so pleased I was able to find this forum. I started Ibrutinib, 3 capsules a day, on Tuesday, now Thursday. So far the only side effect I have...

Hi to all of you, so pleased I was able to find this forum. I started Ibrutinib,...

Hidden

•5 years ago

4 Replies

Financial help for Imbruvica

I'm in California, on Medicare with EnvisionRX Plus and have been told I'll need to start Imbruvica at a cost of nealy $10k a year out of pocket, not to...

I'm in California, on Medicare with EnvisionRX Plus and have been told I'll need...

12Caine12

•5 years ago

18 Replies

Hello - new here

Hello everyone. I was diagnosed with CLL in March 2019, after falling ill in January 2019. I was admitted to hospital for 5 nights with intense pain in my...

Hello everyone. I was diagnosed with CLL in March 2019, after falling ill in Jan...

JackieMcC

•5 years ago

27 Replies

CLL now in remission

Diagnosed with cll in December 2001, chemotherapy,,spleen removed 2005, diagnosed bowel cancer 2009, now have an illeostomy, CLL in remission 2018.for the last...

Diagnosed with cll in December 2001, chemotherapy,,spleen removed 2005, diagnose...

homsey

•5 years ago

2 Replies

Any tips on getting Acalabrutin approved when couldn’t tolerate Ibrutinib side effects.

I had severe rash from Ibrutinib and was only in it for 10 days at low dose. Doc is trying to get Acalabrutin approved. Appreciate hearing from others in US...

I had severe rash from Ibrutinib and was only in it for 10 days at low dose. Do...

MonD

•5 years ago

3 Replies

Ibrutinib and odd side effects

I have had CLL and ITP for almost 8 years now. My first year I was not treated but early in the second I had my first Rituxan, which was well tolerated but...

I have had CLL and ITP for almost 8 years now. My first year I was not treated...

KevinCLLITP

•5 years ago

3 Replies

for how long you taking Imbruvica now

I am taking 2 pills / 280mg per day since 2015 , had some skin problems in the beginning,than the doc reduced to take 3 to 2 pills. had some good years ,no...

I am taking 2 pills / 280mg per day since 2015 , had some skin problems in the b...

guyhighlander

•5 years ago

3 Replies

What Strategies Can Patients Use to Help Treat Skin Irritations From Ibrutinib (Imbruvica)?

Skin issues seem to be a common issue with Ibrutinib and this video from CLL Patient Power might be useful....

Skin issues seem to be a common issue with Ibrutinib and this video from CLL Pat...

Jm954

Administrator•5 years ago

2 Replies

survival rates and damn statistics

I had read this awhile ago and could not remember where i had seen it. i ran across it again accidently tonight. so i copied the quotation. Survival rates are...

I had read this awhile ago and could not remember where i had seen it. i ran acr...

Hidden

•5 years ago

2 Replies

Imbruvica and UTI

I am a male and have been on Imbruvica for 2 years. Have had 3 bouts with UTI over last 5 months. Anyone else on Imbruvica experience UTI? I am always...

I am a male and have been on Imbruvica for 2 years. Have had 3 bouts with UTI o...

Agatesup

•5 years ago

15 Replies

CLL and Dizziness

My mum is 81 and diagnosed with CLL, yet to start on meds but is suffering from dizziness is this common? Thanks

My mum is 81 and diagnosed with CLL, yet to start on meds but is suffering from ...

Nuttydogs

•5 years ago

6 Replies

Farewell

My wife of nearly 50 years died in late April after a 11 year battle with CLL. Diagnosed in 2008 with NHL (SLL) her haematologist treated her with 6 cycles of...

My wife of nearly 50 years died in late April after a 11 year battle with CLL. D...

HannahHugo

•5 years ago

66 Replies

FLAIR TRIAL-FCR-HOLIDAYS

Hi members ..i complete my final FCR treatment in the UK on October 11th..we have a motorhome and have been travelling around the UK in it during treatment...

Hi members ..i complete my final FCR treatment in the UK on October 11th..we ha...

Fayeryan1

•5 years ago

8 Replies

“Falsehood flies, and the truth comes limping after it” - Johnathon Swift

Searching YouTube across 10 languages, the BBC found more than 80 videos containing health misinformation - mainly bogus cancer cures. Ten of the videos...

Searching YouTube across 10 languages, the BBC found more than 80 videos contain...

AussieNeil

Administrator•5 years ago

3 Replies

Update 9-24-19

My husband has three treatments left of the Gazyva. He had blood work today. He was told his numbers are heading in a good direction. His Spleen has shrunk and...

My husband has three treatments left of the Gazyva. He had blood work today. He ...

AuntHelen

•5 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2019

Bruising day 7 on Ibrutinib

Anyone taking Ibruvica ?

BTK + anticoaculant/antiplatelet---update

FLU SHOT

Diverticulitis & weeks of antibiotics

Imbruvica and A Fib

Bi clonal CLL

ROR1 as a delivery system to bring novel therapies to every CLL cell.

To all the Jewish members : Happy New Year

Critical Molecular Pathways in CLL Therapy

Minimizing the risk of infections

One Day at a Time

Cold

Cancer cells being brutally destroyed by genetically engineered T-cells GIF

“CLL & Heartburn” ??

Nausea with Ibrutinib

Financial help for Imbruvica

Hello - new here

CLL now in remission

Any tips on getting Acalabrutin approved when couldn’t tolerate Ibrutinib side effects.

Ibrutinib and odd side effects

for how long you taking Imbruvica now

What Strategies Can Patients Use to Help Treat Skin Irritations From Ibrutinib (Imbruvica)?

survival rates and damn statistics

Imbruvica and UTI

CLL and Dizziness

Farewell

FLAIR TRIAL-FCR-HOLIDAYS

“Falsehood flies, and the truth comes limping after it” - Johnathon Swift

Update 9-24-19

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