Posts - CLL Support | HealthUnlocked

I was rather surprised to hear Dr John Byrd mention a lymphocyte count of a million for someone with CLL in the presentation he gave in May 2013, see:...

Founder Admin•11 years ago

6 Replies

How high can your CLL White Blood Cell (WBC) count go? (And what does it matter?)

I was rather surprised to hear Dr John Byrd mention a lymphocyte count of a mill...

Some UK research and news of developments by the Cardiff CLL research team :...

Administrator•11 years ago

21 Replies

Blinatumomab and CLL

Interesting Gizmag article on Ibrutinib with some good background on how lymphocytes work and how CLL and MCL differ. (Ibrutinib trials were done on both)....

Founder Admin•11 years ago

7 Replies

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Ibrutinib article includes info on leukaemia and lymphoma and how lymphocytes function

Interesting Gizmag article on Ibrutinib with some good background on how lymphoc...

Administrator•11 years ago

My husband was diagnosed at age 59 and has been "watch and wait" for 3 years...he was recently told his spleen is enlarged (no other lab results have been made...

New to all this!

My husband was diagnosed at age 59 and has been "watch and wait" for 3 years...h...

LAinNYC

•11 years ago

17 Replies

I am getting conflicting advice about having the shingles injection that is to be available to over 70s in the autumn. Anyone really know?

mitzi2

•11 years ago

24 Replies

Patients Know Best..

This post is mainly for those in the UK, but the general principles could apply in any country. Also it is a subject that ‘HairBear’ or the sites...

This post is mainly for those in the UK, but the general principles could apply ...

Research into immunotherapy—using a patient’s own immune system to fight cancer cells—has been developing quickly. So how do these emerging approaches work in...

•11 years ago

8 Replies

Stimulating the Immune System to Fight CLL - Patient Power video from ASCO

Research into immunotherapy—using a patient’s own immune system to fight cancer ...

A live telephone/web education program on May 1, 2013 with over 1,500 participants, heard Dr John Byrd from the Ohio State University provide an excellent...

Top Poster CURE Hero•11 years ago

2 Replies

Update on CLL by Dr John Byrd to the Leukemia & Lymphoma Society on 1st May 2013

A live telephone/web education program on May 1, 2013 with over 1,500 participan...

Administrator•11 years ago

I was diagnosed with Fibromyalgia and Chronic Fatigue 4 years ago However the fatigue got so bad that I did not stop going to my doctor She is fantastic...

Hi is there any way I can fight the fatigue that I suffer any help would be gratefully received

I was diagnosed with Fibromyalgia and Chronic Fatigue 4 years ago However the...

madmaria

•11 years ago

11 Replies

Bacteria causing cancer? Bacteria to Human gene transfers. Controversial but fascinating...

'There are 10 times more bacterial cells in our bodies from the microbiome than human cells. Viral DNA is known to integrate in the human genome, but...

'There are 10 times more bacterial cells in our bodies from the microbiome than ...

Top Poster CURE Hero•11 years ago

Admin - Information on understanding your blood results can be found here:...

I have just had my latest blood count and my platelets are 130. Should I be worried? I have read that the normal count is 130-400.

Elizabetha

•11 years ago

44 Replies

Chaya Venkat says goodbye after a decade of exemplary service to the CLL community

After many years of tireless and selfless work supporting the CLL community through patient advocacy, providing educational information, running workshops,...

After many years of tireless and selfless work supporting the CLL community thro...

Hi everyone. How great it is to be able to be outside again playing in my garden. Enjoying the visit of familiar friends and the...

Administrator•11 years ago

7 Replies

CLL/SLL & insect bites, the summer, my garden, & all who inhabit it.

Hi everyone. How great it is to be able to be out...

Chris can you comment on this..?? It it as bad as it reads..?? Three years ago, a former Cephalon manager filed a whisteblower lawsuit...

Founder Admin•11 years ago

15 Replies

Bad drug companies...

Chris can you comment on this..?? It it as bad as it reads..?? ...

' Adding the investigational monoclonal antibody obinutuzumab (GA101, Genentech) to chlorambucil in elderly patients with chronic lymphocytic leukemia (CLL)...

•11 years ago

10 Replies

Obinutuzumab Active in Elderly Chronic Lymphocytic Leukemia

' Adding the investigational monoclonal antibody obinutuzumab (GA101, Genentech)...

Top Poster CURE Hero•11 years ago

Biosimilars... Not rituxan, but 'highly similar' to rituxan?

Just how ‘super’ are superfoods? http://theconversation.com/superfoods-not-so-super-after-all-14029 Some interesting information about the...

Top Poster CURE Hero•11 years ago

2 Replies

Superfoods and cancer prevention

Just how ‘super’ are superfoods? http://theconversation.com/superfoods-n...

Administrator•11 years ago

Editorial http://www.nejm.org/doi/pdf/10.1056/NEJMe1303054 Also published data on early ibrutinib trial... 'The New England Journal of Medicine...

A Mechanism-Driven Treatment for Chronic Lymphocytic Leukemia?

Editorial http://www.nejm.org/doi/pdf/10.1056/NEJMe1303054 Also publis...

Top Poster CURE Hero•11 years ago

A more complete version of a study given at ASCO in early June....

ABT-199/GDC-0199 Phase 1 study from EHA (European-Hematology-Association)

Top Poster CURE Hero•11 years ago

I have a metatarsal stress fracture that hasn't healed months after the injury. I've been wearing a walking boot for the last three weeks without much success....

Slow healing bone fracture related to CLL?

I have a metatarsal stress fracture that hasn't healed months after the injury. ...

Ragsgolf

•11 years ago

4 Replies

New to Treatment

After 3 yrs on watch and wait my husband has been told that the time for treatment has arrived and we are due back at the hospital on 7th August and have been...

After 3 yrs on watch and wait my husband has been told that the time for treatme...

bandsman

•11 years ago

9 Replies

Poor medical research..

POOR SCIENCE. Drug companies often publish the good results of drug trials, but very little is published when trials are not successful. This leads to a...

POOR SCIENCE. Drug companies often publish the good results of drug trials, ...

The inherent risks of treatment. Like all medical treatments the treatment of CLL does carry some risks. One of the aims of treatment is to remove /...

•11 years ago

3 Replies

The risks of treatment.

The inherent risks of treatment. Like all medical treatments the treatmen...

Uncluding chronic lymphocystis leukomija 17 p deletion (CLL)

•11 years ago

4 Replies

Vkakoi strane v Evrope proischodet kliniceskije ispytanije s IBRUTINIB ( CLL 17p deletion)

deimante

•11 years ago

4 Replies

Exciting times in CLL: an ASCO 2013 interview with Dr Susan O’Brien

In this 18 minute video interview, Dr Susan O’Brien of MD Anderson, discusses some of the CLL data presented at ASCO 2013 and shares her perspective on several...

In this 18 minute video interview, Dr Susan O’Brien of MD Anderson, discusses so...

Administrator•11 years ago

The U.S. Food and Drug Administration (FDA) is requiring manufacturers to add information on thrombosis to the current boxed warning in the labels of all...

New FDA warning on Human Immune Globulin Products - IG

The U.S. Food and Drug Administration (FDA) is requiring manufacturers to add in...

Top Poster CURE Hero•11 years ago

CLL and genomics. As the researchers delve ever deeper into the natural history of our CLL, it becomes obvious that many many genes are involved. A FISH...

CLL and Genomics.

CLL and genomics. As the researchers delve ever deeper into the natural histo...

•11 years ago

Hi all I am about to have to change my profile and ensure I start using CLL/SLL. Today I visited my consultant and we were able to confirm that for six...

Seems that it is SLL?

Hi all I am about to have to change my profile and ensure I start using C...

This week is Carers Week. It’s an opportunity to celebrate the vital contribution made by people looking after a loved one who is ill, frail or disabled. But...

Founder Admin•11 years ago

9 Replies

Macmillan, Help us make a difference for working carers

This week is Carers Week. It’s an opportunity to celebrate the vital contributio...

Founder Admin•11 years ago