Posts - CLL Support | HealthUnlocked

Windows 8.0 users need to make certain that they have been able to update to 'Windows 8.1 Update' as Microsoft have stated: "You must install Windows 8.1...

Administrator•11 years ago

11 Replies

Windows 8 Users - Update or be left insecure

Windows 8.0 users need to make certain that they have been able to update to 'Wi...

Support Leukaemia & Lymphoma Research with their: “Prioritising Patient Need Project” “Meet with other patients, get involved, have your say and be...

Administrator•11 years ago

1 Reply

Leukaemia & Lymphoma Research Prioritising Patient Need Project

Support Leukaemia & Lymphoma Research with their: “Prioritising Patient Need P...

HAIRBEAR_UK

Founder Admin•11 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Just published governments Flu plan winter 14-15 for England

thought this may be of interest to some people. This plan sets out PHE coordinated and evidence-based approach to planning for and responding to the demands of...

thought this may be of interest to some people. This plan sets out PHE coordinat...

Immie

•11 years ago

Be the first to reply

IVIG

Has any other member experienced problems following ivig infusions?? My husband has been having the same one Intratect for the last three and a half years but...

Has any other member experienced problems following ivig infusions?? My husband...

lartington

•11 years ago

I have read recent posts re sore throats and advice about seeing DR. But my sore throat has arrived during a cold as per usual Before CLL. I mean it is not...

Another cold and then a sore throat so what to do?

I have read recent posts re sore throats and advice about seeing DR. But my sore...

romarin

•11 years ago

6 Replies

Life on Us: a close-up look at the bugs that call us home

Australia's national multicultural broadcaster, SBS aired the first of a two part documentary last night about the 90% of us that isn't us, ie all the minute...

Australia's national multicultural broadcaster, SBS aired the first of a two par...

I had a conversation about Ibrutinib with my doctor today who firmly told me that Ibrutinib is unlike to become available in the UK for the foreseeable future...

Administrator•11 years ago

5 Replies

When (if ever) will Ibrutinib become available in the UK?

I had a conversation about Ibrutinib with my doctor today who firmly told me tha...

MeTooAsWell

•11 years ago

51 Replies

Any CLL patients close to my age of 29?

I was diagnosed with CLL at the age of 27 in 2012 and have just commenced FCR April 2014. I was wondering if there are any CLL patients close to my age of 29...

I was diagnosed with CLL at the age of 27 in 2012 and have just commenced FCR Ap...

Fishface

•11 years ago

14 Replies

My brother has CLL. What blood tests show you have this disease? Does it run in families? Thanks, Ruth

2006

•11 years ago

2 Replies

England and Wales health maps

I found mention of this on BBC news feed yesterday. I think it is worth a read, however, as ever there have been some questions raised over the stats. I...

I found mention of this on BBC news feed yesterday. I think it is worth a read,...

Oleboyredw-uk

•11 years ago

1 Reply

My husband had his first treatment with retuxin and bendamustine. ?

deb1610

•11 years ago

14 Replies

Mi marido tiene carcinoma adenoide quistico metastasico. Hay algun ensayo clinico II o III que le admita?.la quimioterapia no funciona

Podria seguir el tratamiento desde España? No puede viajar

cristinabonet

•11 years ago

2 Replies

Another CLL patient dies disease free from complications of her treatment.

Friends, Sad news. Another friend gone from complications of her treatment, this time graft versus host disease (GVHD) after her transplant. Ironically, and...

Friends, Sad news. Another friend gone from complications of her treatment, thi...

bkoffman

CLL CURE Hero•11 years ago

I have various tins of this type of salmon in my cupboard, and wonder if I should be eating it? ....... there is very little mention of the Fukushima fallout...

Wild salmon caught from the Pacific ... Should we be eating it?

I have various tins of this type of salmon in my cupboard, and wonder if I shoul...

Marisa

•11 years ago

Last week stopped taking Ibrutinib because neutrophils very low. Two days later felt very unwell. By Wed admitted to hospital and spent 28 hours on a drip to...

Has anyone had low phosphate problems?

Last week stopped taking Ibrutinib because neutrophils very low. Two days later...

Explorer1

•11 years ago

Had pneumonia vaccine at 65. Now 75 on w&w. Was told to get more . 2 vaccinations one month apart...which type first?

Told there were 2 types.

Wetumpka

•11 years ago

I'm wondering how many of us are 13q14, unmutated, ZAP-70 +, time since diagnosis, whether or not WBC count and ALC are elevated and how fast is it climbing....

13q14 deletion

I'm wondering how many of us are 13q14, unmutated, ZAP-70 +, time since diagnosi...

buckinhard

•11 years ago

18 Replies

Look what I found when I entered "hiv leukemia" into google search engine!

I'm amazed by the treatment advances being announced. It may be that my search "hiv leukemia" would be of interest to this forum. Out of interest I am today;...

I'm amazed by the treatment advances being announced. It may be that my search "...

Bribin

•11 years ago

14 Replies

Any reason why I can't supplement my diet with Spirulina, Maca and Wheatgrass?

I recently finished 6 cycles of chemotherapy ( Ritux + Benda ). My consultant told me that I am now in complete remission. I have purchased a NutriBullet...

I recently finished 6 cycles of chemotherapy ( Ritux + Benda ). My consultant to...

maureenmckeown

•11 years ago

1 Reply

Health Check: when is ‘the flu’ really a cold? Excellent resource for tips on avoiding and managing respiratory infections

The difference between a cold and the flu is not always obvious, which is no doubt responsible for many that have had a flu vaccination claiming that they...

The difference between a cold and the flu is not always obvious, which is no dou...

Administrator•11 years ago

Many of you took part in our Patient Power survey. Here are the results on how almost 1,300 cancer patients and caregivers use the Internet:...

Results of Survey on some members here: How you use the web for health info

Many of you took part in our Patient Power survey. Here are the results on how a...

andrewschorr

•11 years ago

2 Replies

Flow Cytometry Report and Some Math

Friends I just posted an update on CLL flow cytometry results with some interesting math on my blog. Please double check my calculations. Stay strong...

Friends I just posted an update on CLL flow cytometry results with some intere...

bkoffman

CLL CURE Hero•11 years ago

I know many people say you shouldn't watch your #'s too frequently but I had to get blood work done in Feb. then again in April and I found it REALLY odd---my...

WBC going way down/platelets/lymphocytes way up!

I know many people say you shouldn't watch your #'s too frequently but I had to ...

rlyndecker

•11 years ago

As someone who was diagnosed almost a year ago and is in stage 0 - watch and wait - it was so comforting to watch the video below, as it explained my situation...

Why Watch and Wait explained

As someone who was diagnosed almost a year ago and is in stage 0 - watch and wai...

Babs-0

•11 years ago

My husband has cll and has been part of a trial program out At Md Anderson in Houston Texas.. So we did not get in remission liked we hope so now they want him...

My husband has Cll..

My husband has cll and has been part of a trial program out At Md Anderson in Ho...

Cinder_ella

•11 years ago

12 Replies

BBC News - 18/04 - Breakthrough in leukaemia treatment (Prof Chris Pepper of Cardiff University on Ibrutinib)

Scientists helped to develop drugs which target the disease at a molecular level By Carwyn Jones BBC News (includes video of Prof Chris Pepper)...

Scientists helped to develop drugs which target the disease at a molecular leve...

MartyR

•11 years ago

24 Replies

Access to cancer drugs

I just post on my blog http://bkoffman.blogspot.com about access to cancer medications sharing a sad and frustrating story from Ontario, Canada and comparing...

I just post on my blog http://bkoffman.blogspot.com about access to cancer medic...

bkoffman

CLL CURE Hero•11 years ago

Be the first to reply

Here's one virus that you shouldn't have to worry about!

Ancient viruses sound scary, but there’s no need to panic, says Jennifer McKimm-Breschkin, Chief Research Scientist, Virology Project Leader at Australia's...

Ancient viruses sound scary, but there’s no need to panic, says Jennifer McKimm-...

Hi, I started FCR for cll earlier this year as my WBC was just rising so fast. Im only 45 so it was inevitable that i would need treatment at some...

Administrator•11 years ago

5 Replies

A shorter treatment plan???

Hi, I started FCR for cll earlier this year as my WBC was just rising so fast. I...

grizzlebear

•11 years ago