Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for March 2021

Acalabrutinib used by NHS

I'm sure someone has written abt this but just in case:...

Research123

•3 years ago

8 Replies

CLL Society Mar 26th COVID-19 "Contagion, Variants & Vaccines" Drs. Koffman, Danilov, Rosen, Dadwal + lab scientist Dr. Susan Leclair

Join us on Friday, March 26th (11:00 AM PT, 12:00 PM MT, 1:00 PM CT, and 2:00 PM ET) for CLL Society's COVID-19 Virtual Community Meeting: Contagion, Variants,...

Join us on Friday, March 26th (11:00 AM PT, 12:00 PM MT, 1:00 PM CT, and 2:00 PM...

bkoffman

CLL CURE Hero•3 years ago

Be the first to reply

lots of bloodwork

hi, i'm new here AND i write on behalf of my husband, ken, as he's not big on communicating. he started ibrutinib 3/10/21. his oncologist wants him to have his...

hi, i'm new here AND i write on behalf of my husband, ken, as he's not big on co...

imdfox24

•3 years ago

7 Replies

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New Diagnosis? Questions

Hi All Forgive me for the stupid question. I am newly diagnosed with CLL (?) I have a Flow Symmetry saying I have B-Cell CLL. Looked online at my just-in...

Hi All Forgive me for the stupid question. I am newly diagnosed with CLL (?) I ...

Tracibfine

•3 years ago

2 Replies

CLL and covid vaccines

Was on watch and wait for about 3 years then went on I brutinib I became very sick and ended up in the hospital I didn't really know what they were doing or...

Was on watch and wait for about 3 years then went on I brutinib I became very si...

Hotrods4me

•3 years ago

10 Replies

To have a central line/port or not?

I have started treatment and it will continue for several months, have been offered a central line/port or to continue with peripheral IV, looking for your...

I have started treatment and it will continue for several months, have been offe...

napa

•3 years ago

17 Replies

NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England

Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the...

Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE...

Jm954

Administrator•3 years ago

13 Replies

Negative spike test

Just tested negative for spike test for Covid with low blood CLL readings after 1st Oxford jab hope second one produces some immunity

Just tested negative for spike test for Covid with low blood CLL readings after ...

Barclays

•3 years ago

19 Replies

Treatment

Just asking a little help , my doctor wants me to start treatment next month my platelets are 84 hgb 10.8 wbc 270.72 , rbc 3.32 symptoms only a slightly...

Just asking a little help , my doctor wants me to start treatment next month my ...

starlifter

•3 years ago

11 Replies

Book: "When Blood Breaks Down". Has anyone read this?

This book gets a good review, but I was wondering if anyone can tell me whether CLL is covered in any detail. The focus of the book is three patient case...

This book gets a good review, but I was wondering if anyone can tell me whether ...

Davdow

•3 years ago

4 Replies

Cataract surgery

Hi everyone I hope this post finds you all well. Has anyone had a cataract surgery without stopping their ibrutinib medication? Apparently I need this surgery...

Hi everyone I hope this post finds you all well. Has anyone had a cataract surge...

josephinef

•3 years ago

25 Replies

Which Vaccine

I wanted to know if anyone had some insight into which vaccine they would take if they had a choice in the following circumstances. Where I am located they...

I wanted to know if anyone had some insight into which vaccine they would take i...

nitram120

•3 years ago

27 Replies

Shringrix shot!

Has anyone had a severe reaction to the second half of the shringrix shot? I had mine yesterday and woke 4AM this morning with a fever (39) headache, shivers...

Has anyone had a severe reaction to the second half of the shringrix shot? I ha...

Oceanbly

•3 years ago

25 Replies

New to Acalabrutinib

Diagnosed with CLL (with17p deletion) about 7 years ago. Terrified by Googling CLL at the beginning. Luckily, I have been symptom free since then. However,...

Diagnosed with CLL (with17p deletion) about 7 years ago. Terrified by Googling C...

Vizilo

•3 years ago

10 Replies

skin itching

skin itching on body and eyes. Any help?

FranceMary

•3 years ago

6 Replies

Vaccination

Just this morning got my second AZ vaccine. I'm in NI, it's st Patrick's day. After my initial disappointment that it wasn't coloured green, then my...

Just this morning got my second AZ vaccine. I'm in NI, it's st Patrick's day. Af...

Belfastbees

•3 years ago

7 Replies

Humor

A CLL patient walks into a diner and sits at the counter. The waitress comes over and says,”What would you like today Hun?” “I’ll start with a coffee......

A CLL patient walks into a diner and sits at the counter. The waitress comes ove...

Hidden

•3 years ago

6 Replies

Vaccine safety.

With regard to the recent suspension of the AZ vaccine by many countries, and lots of speculation about it I thought I'd share this video:...

With regard to the recent suspension of the AZ vaccine by many countries, and lo...

Belfastbees

•3 years ago

3 Replies

Explosion of Data Come From Innovative Combos in CLL The progress made with novel combination regimens is unprecedented

Video recaps of significant papers presented at 25th Annual International Congress on Hematologic Malignancies: Focus on Leukemias, Lymphomas, and Myeloma...

Video recaps of significant papers presented at 25th Annual International Congre...

lankisterguy

Volunteer•3 years ago

2 Replies

The Leukemia & Lymphoma Society (USA) Co-Pay Assistance Program provides up to $8,000 annually for CLL Patients' treatment expenses

...

lankisterguy

Volunteer•3 years ago

2 Replies

CLL blood test

My blood test revealed twc 10.05 platelet count 134, lymphocyte count 6.28, the rest were in the normal range worried about my immune response to the AZ jab...

My blood test revealed twc 10.05 platelet count 134, lymphocyte count 6.28, the ...

Barclays

•3 years ago

2 Replies

bloods not going up

hi all went the hospital today for check and review plts 36 ,,neuts 0.4 ,,hb 108,,,having one gscf injection every week.. 9 week post fcr,,,my numbers don,t...

hi all went the hospital today for check and review plts 36 ,,neuts 0.4 ,,hb 108...

kel555

•3 years ago

8 Replies

Ibrutinib back ache

I have bet ibrutinib four years with great success and still doing well but in all that time I have suffered Lower back ache have controlled it with CBD oil...

I have bet ibrutinib four years with great success and still doing well but in a...

cartwheels

•3 years ago

4 Replies

Anyone have Tumor Lysis Syndrome (TLS) after starting on Venetoclax (Venclexta) for CLL? What was your ramp up experience?

Anyone have Tumor Lysis Syndrome (TLS) after starting on monotherapy Venetoclax (Venclexta) for CLL? What was your ramp up experience?

Anyone have Tumor Lysis Syndrome (TLS) after starting on monotherapy Venetoclax...

Catonka

•3 years ago

12 Replies

CLL Vaccine

CLL Vaccine - I am a post CLL treatment individual age 75, in which group will I fit in for covid-19 vaccine in Ontario, Canada? which vaccine should I get?...

CLL Vaccine - I am a post CLL treatment individual age 75, in which group will I...

Champlain

•3 years ago

2 Replies

best time of day to take Imbruvica?

Hi! I will be starting Imbruvica in a couple of days, and I'm very anxious about it. When is the best time of day to take it? Morning or evening? I worry...

Hi! I will be starting Imbruvica in a couple of days, and I'm very anxious abou...

violet257

•3 years ago

17 Replies

Inevitable, but still a blow and a huge disappointment

Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and...

Apologies for this post. It isn't a request for information, or a message of su...

Rich316

•3 years ago

10 Replies

Astra Zeneca vaccines

Hello all from Adelaide Australia Hope you’re all going ok A query about the Astra Zeneca vaccine. How many of you have had one or two of these doses? How have...

Hello all from Adelaide Australia Hope you’re all going ok A query about the Ast...

shazzy57

•3 years ago

11 Replies

Low body temperature and low grade chills on acalabrutinib.

I am on acalabrutinib since September 1st. My blood counts are moving in a right direction, but my spleen did not shrink much , and I feel fullness in my...

I am on acalabrutinib since September 1st. My blood counts are moving in a right...

Belkin123

•3 years ago

15 Replies

is a cough associated with taking bendeca

does bendeca cause coughing

Whalexx

•3 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2021

Acalabrutinib used by NHS

CLL Society Mar 26th COVID-19 "Contagion, Variants & Vaccines" Drs. Koffman, Danilov, Rosen, Dadwal + lab scientist Dr. Susan Leclair

lots of bloodwork

New Diagnosis? Questions

CLL and covid vaccines

To have a central line/port or not?

NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England

Negative spike test

Treatment

Book: "When Blood Breaks Down". Has anyone read this?

Cataract surgery

Which Vaccine

Shringrix shot!

New to Acalabrutinib

skin itching

Vaccination

Humor

Vaccine safety.

Explosion of Data Come From Innovative Combos in CLL The progress made with novel combination regimens is unprecedented

The Leukemia & Lymphoma Society (USA) Co-Pay Assistance Program provides up to $8,000 annually for CLL Patients' treatment expenses

CLL blood test

bloods not going up

Ibrutinib back ache

Anyone have Tumor Lysis Syndrome (TLS) after starting on Venetoclax (Venclexta) for CLL? What was your ramp up experience?

CLL Vaccine

best time of day to take Imbruvica?

Inevitable, but still a blow and a huge disappointment

Astra Zeneca vaccines

Low body temperature and low grade chills on acalabrutinib.

is a cough associated with taking bendeca

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