Posts - CLL Support | HealthUnlocked

CLL Support

22,369 members38,477 posts

All posts for August 2020

For Aussies, an update on the CLL PEEK (Personal, Experience, Expectations, Knowledge) Survey, which is still open!

Further to my previous post:...
AussieNeil profile image
Administrator

BLOOD TEST

Hi all, Have been on Acalabrutinib for 2 weeks now due some blood tests this wee...
jaybrjod profile image

Anyone have experience with Venclexta capped at 200 mg?

I am a 62 yr old woman and will be starting Obinutuzumab in 2 days with Venclext...
Flute117 profile image
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Ibrutinib plus fludarabine, cyclophosphamide, and rituximab as initial treatment for younger patients with CLL

This is an abstract from the Lancet article. There's a fair bit of detail missi...
Jm954 profile image
Administrator

Itching on Acalabutinib

I am on Acalabutinib and have started itching especially after a shower and when...
JB656 profile image

Can taking Bactrim make you neutropenic?

My husband has been on Ibrutinib for 2 years now, and has taking Bactrim and Acy...
kathymac52 profile image

Pain Meds and Ibrutinib

Wondering if anyone knows of safe non opioid pain medication while on ibrutinib....
Davidcara profile image

candidiasis

Howdy everyone! That's how we greet each other in the great state of Nebraska! I...
Vintagemama profile image

2 questions: tech support and supplements

Hi everyone, My first question: is there a way to search CLL Support only? Sor...
CoCoLuna11 profile image

Locking posts

Sorry, can someone tell me how to lock my posts.
Professors profile image

Have begun Gazyva and soon to begin venetoclax

I'm a 77 y/o Caucasian male. Diagnosed with CLL in 2005. Treatment free until th...
ronsolo306 profile image

Does imbruvica make you lose your hair

I have CLL
Neciaed1 profile image

Imbruvica cost

I have cll with a 17p TP53 deletion. I was prescribed Imbruvica which has a $23...
Professors profile image

CLL with CAD

CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vie...
Hidden profile image

CLL and Cold Blood

Hoping someone can help.... my uncle has CLL but also a cold blood condition cal...
nvparmelee profile image

My Ibrutinib/Venetoclax journey

Hi all, Hope you are all staying safe in these strange times. Anyway, yet anot...

Completely bonkers!

Hi everyone. Im from Nova Scotia, Canada and I'm 60 years old. This is all so n...
Oceanbly profile image

betty1957

Hi everyone I was diagnosed with CLL in July, just want to know if it's normal t...
betty1957 profile image

Returning to work

Is it advisable to return to work as an art tutor of small groups of students fo...
Paintsh profile image

Hurricane weather

Cajun Jeff, hope you are safe and well in view of the inclement weather that yo...
skytortoise profile image

Ibrutinib and Probiotics

Wondering if anyone knows if it is safe to take probiotics while on ibrutinib. ...
Davidcara profile image

How is everyone doing during this pandemic?

My self i havent worked in six months...going a little cra cra..but blessed to b...
kollock93 profile image

Worried About Going Back to Work?

Worried about going back to work? The CLL Society continues to urge all CLL pati...
bkoffman profile image
CLL CURE Hero

Gazyva/Venclexta

My husband was diagnosed with CLL 2 years ago. It has been a watch and wait tre...
gardenman68 profile image

ibrutinib. the white cells rise again.

Hello! Sorry for my English. I have been taking ibrutinib for 6 months. no si...
Ricotta profile image

Video Journal of Hematologic Oncology the chronic lymphocytic leukemia (CLL) channel- intended for healthcare professionals

For any members comfortable in advanced MedSpeak- there is an excellent series o...
lankisterguy profile image
Volunteer

Lymph node biopsy update

10 days ago I had an excision biopsy on my right axilla. A lymph node was skillf...
aloneifly profile image

Alacabrutinib for relapsed CLL

Hi everyone, I was just wondering if anyone in this group is from Australia and ...
lymphomaoz profile image

Acalabrutnib and omeprazole

Hi, I’m starting acalabrutinib on Friday.... I am also taking omeprazole daily. ...

Risk of SARS-CoV-2 transmission from asymptomatic people in different settings

The diagram above is from a review paper, published yesterday in the British Med...