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CLL Support

23,337 members•40,046 posts

All posts for October 2020

CLL cells accumulate genetic aberrations prior to the first therapy even in outwardly inactive disease phase

No definite conclusions from this paper about genetic evolution and disease drivers but interesting. "Most CLL cases are diagnosed during the inactive...

No definite conclusions from this paper about genetic evolution and disease driv...

Jm954

Administrator•4 years ago

9 Replies

Cll improvement on Ibrutinib

Hi everyone! I started Ibrutinib on Tuesday last week. I was curious how quickly to expect improvement. I can see that my spleen and 2 lumps are already...

Hi everyone! I started Ibrutinib on Tuesday last week. I was curious how quickl...

Temida

•4 years ago

29 Replies

Platelet Counts

Just wondering. Is there a way a person can increase platelet counts??

ballynb

•4 years ago

10 Replies

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Imbruvica and an extremely active lifestyle

Picked up my Imbruvica today. I'll start Sunday. Just joined my first forum/blog site (this one) just now. Not really sure what to expect from Imbruvica...

Picked up my Imbruvica today. I'll start Sunday. Just joined my first forum/bl...

Beyond9Lives

•4 years ago

20 Replies

On Venetoclax for 3 weeks, no issues

I am so happy to report that I am on my 3rd week of the ramp up phase with Venetoclax. Like so many people, I was very concerned (frightened) about the...

I am so happy to report that I am on my 3rd week of the ramp up phase with Venet...

ronsolo306

•4 years ago

23 Replies

A reminder to join us for our next webinar: "CLL Update in the Time of Pandemic". Tomorrow (Friday) at 1.00 pm GMT with Dr Samir Agrawal.

Keynote speaker will be Dr Samir Agrawal, Senior lecturer in haematology at the Queen Mary Hospital, London and Consultant Haemo-Oncologist at St Bartholomew’s...

Keynote speaker will be Dr Samir Agrawal, Senior lecturer in haematology at the ...

pkguk2

Partner•4 years ago

6 Replies

Heard from Adrian?

Has anyone heard from Adrian? Just wondering

trenaleigh

•4 years ago

9 Replies

Acalabrutinib is working!

I have a great report on how well Acalabrutinib is working. Start date for Acalabrutinib treatment was May 28 and today on October 28 (5 months later) I had a...

I have a great report on how well Acalabrutinib is working. Start date for Acala...

Drago1941

•4 years ago

35 Replies

Identifying Skin Cancers

Because CLL patients are susceptible to secondary cancers including skin cancers. It is important to have screenings by an Oncology Dermatologist on a regular...

Because CLL patients are susceptible to secondary cancers including skin cancers...

cllady01

Former Volunteer•4 years ago

43 Replies

Flying can be safer than grocery shopping, Harvard study asserts

Flying can be safer than grocery shopping, Harvard study asserts https://www.cnn.com/travel/article/flying-covid-19-harvard-study-wellness Pete Muntean and...

Flying can be safer than grocery shopping, Harvard study asserts https://www.cnn...

lankisterguy

Volunteer•4 years ago

11 Replies

Stomach bloating

Anyone suffers from stomach bloated while on ibrutinib!

ANA4

•4 years ago

2 Replies

What do your white blood cells look like?

I thought some members might like to see these images of what the various 'normal' white blood cells look like. As you can see there is a variability of...

I thought some members might like to see these images of what the various 'norma...

Jm954

Administrator•4 years ago

24 Replies

"NO!" This mask does not protect against COVID!

#CLLSociety Dr. Koffman says "NO!" This mask does not protect against COVID! Good Masks! Bad Masks! How to Use Masks! Unmasking the Mystery of Masks! Which...

#CLLSociety Dr. Koffman says "NO!" This mask does not protect against COVID! Goo...

bkoffman

CLL CURE Hero•4 years ago

9 Replies

Increase in WBC

Hi everyone, my WBC rose from 39 to 51 in three months. My lymphocytes went from 85.0 to 88.7. My lymphocyte percentage is 45.2. Any ideas what can cause...

Hi everyone, my WBC rose from 39 to 51 in three months. My lymphocytes went fro...

Rhythmauthor1

•4 years ago

16 Replies

A071402 Phase 3 clinical trial - Obinituzumab+Ibrutinib+Venetoclax

Hello, I’m new to this forum. I am 74 year old male. I was diagnosed with CLL in April of 2019 but was told that most likely I had had it since approximately...

Hello, I’m new to this forum. I am 74 year old male. I was diagnosed with CLL in...

Iupiter

•4 years ago

23 Replies

MBL numbers going up

Just had my yearly labs and my WBC increased from 10 to19 and my absolute lymphocytes 7.6 to 12. Everythng else looked pretty good, normal range. Could this be...

Just had my yearly labs and my WBC increased from 10 to19 and my absolute lympho...

Freeskier989

•4 years ago

5 Replies

Ibrutining affecting the lungs?

I have been on Ibrutinib since 3rd June 2020 and was making good progress with my blood being 'normal' and the lympth nodes going down. I had a CT scan...

I have been on Ibrutinib since 3rd June 2020 and was making good progress with m...

Dym230109

•4 years ago

15 Replies

DD Diet.

I wonder whether any members have experience with a deuterium depleted diet. Much to my surprise I found out that this is pretty much the diet I am on...

I wonder whether any members have experience with a deuterium depleted diet. Muc...

LeoPa

•4 years ago

16 Replies

Should I be worried.

please advise on my recent labs

iChn

•4 years ago

4 Replies

I'm new to this community Am from India My ALC count is 37500 and it came across during a routine check. Is it too high?

My cancer consultant is not ready to start any treatment or investigate further. Prefers a wait and watch approach. My pulse rate is 95 and I am a bit worried...

My cancer consultant is not ready to start any treatment or investigate further....

shallovercome

•4 years ago

22 Replies

Acalabrutinib side effects

I am difficulty with side effects of acalabrutinib, I am experiencing extreme fatigue and feel miserable. I have not read of anyone having to discontinue this...

I am difficulty with side effects of acalabrutinib, I am experiencing extreme fa...

BallyB

•4 years ago

28 Replies

TPLL

I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I...

I want to thank you all again for welcoming me into your community. Mike's cance...

Whatadayitwas

•4 years ago

10 Replies

A update with some concerns

Hi and thanks, now after 7 days I got another visit to the doctor and after I complain about some lumps that came after 6 days on Ibrutinib we send me to test...

Hi and thanks, now after 7 days I got another visit to the doctor and after I co...

2017cll

•4 years ago

8 Replies

Your view on what questions I should ask at my teleclinic next week.

Having a teleclinic with one of our cancer nurse specialists on thur (29th Oct) and arranged for her to send me my results BEFORE the teleclinic so I can study...

Having a teleclinic with one of our cancer nurse specialists on thur (29th Oct) ...

Random78

•4 years ago

6 Replies

imbruvica and weight training

Well, I wasn't expecting so soon but, I started treatment. My symptoms had reached a point that my oncologist and I decided to pull the trigger and start me on...

Well, I wasn't expecting so soon but, I started treatment. My symptoms had reach...

POKEY1168

•4 years ago

15 Replies

Green Tea Extract and Curcumin

Hi All - I’ve been taking green tea extract and curcumin capsules daily since I was diagnosed 18 months ago. I have no symptoms and my blood levels have been...

Hi All - I’ve been taking green tea extract and curcumin capsules daily since I ...

LouisAmbrose

•4 years ago

29 Replies

CLL Australian October Webinar videos now available. Speakers: Prof Peter Hillmen, Leeds UK and Sharon Winton CEO Lymphoma Australia + Q&A

Here is the link to last week's webinar videos: https://www.cc-dr.org/online/cll Registration is not required. The webinar has been edited into 3 videos; Prof...

Here is the link to last week's webinar videos: https://www.cc-dr.org/online/cll...

AussieNeil

Administrator•4 years ago

7 Replies

Good Info- Easily Read

Just thought I’d share this article. It may have been posted before but some new to the site may enjoy reading it. It has some very good information about CLL...

Just thought I’d share this article. It may have been posted before but some new...

210savannah

•4 years ago

7 Replies

Venclexta 400mg and leg cramps

Coincidence or side effect?

msccsm11

•4 years ago

15 Replies

Venetoclax before Gazyva

Hello group, I hope this message finds everyone well. The beginning of my treatment is finally upon me after a short 2 year w&w period. My specialist opted...

Hello group, I hope this message finds everyone well. The beginning of my trea...

Philipoc

•4 years ago

16 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2020

CLL cells accumulate genetic aberrations prior to the first therapy even in outwardly inactive disease phase

Cll improvement on Ibrutinib

Platelet Counts

Imbruvica and an extremely active lifestyle

On Venetoclax for 3 weeks, no issues

A reminder to join us for our next webinar: "CLL Update in the Time of Pandemic". Tomorrow (Friday) at 1.00 pm GMT with Dr Samir Agrawal.

Heard from Adrian?

Acalabrutinib is working!

Identifying Skin Cancers

Flying can be safer than grocery shopping, Harvard study asserts

Stomach bloating

What do your white blood cells look like?

"NO!" This mask does not protect against COVID!

Increase in WBC

A071402 Phase 3 clinical trial - Obinituzumab+Ibrutinib+Venetoclax

MBL numbers going up

Ibrutining affecting the lungs?

DD Diet.

Should I be worried.

I'm new to this community Am from India My ALC count is 37500 and it came across during a routine check. Is it too high?

Acalabrutinib side effects

TPLL

A update with some concerns

Your view on what questions I should ask at my teleclinic next week.

imbruvica and weight training

Green Tea Extract and Curcumin

CLL Australian October Webinar videos now available. Speakers: Prof Peter Hillmen, Leeds UK and Sharon Winton CEO Lymphoma Australia + Q&A

Good Info- Easily Read

Venclexta 400mg and leg cramps

Venetoclax before Gazyva

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