Posts - CLL Support | HealthUnlocked

Having gone through the pain of FCR from August to December last year, I am now in remission with normal blood test results. However, I have suffered from...

Administrator•11 years ago

5 Replies

Has anybody experienced or read about the problems of recurrent infections following FCR in spite of all blood test results being normal?

Having gone through the pain of FCR from August to December last year, I am now ...

Bisto

CLLSA•11 years ago

8 Replies

My Autoimmune (AIHA) experience so far...and significance of a Coombs test showing positive DAT

Following my (currently) monthly haematology consultation, I am now beginning to understand the AHIA (autoimmune) complication...looks like 10% to 20% of us...

Following my (currently) monthly haematology consultation, I am now beginning to...

Quarry

•11 years ago

26 Replies

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Severe Sepsis and Septic Shock

A good overview of sepsis just published in the New England Journal of Medicine. 'Risk factors for severe sepsis are related both to a patient's...

A good overview of sepsis just published in the New England Journal of Medicine....

Top Poster CURE Hero•11 years ago

This is NOT an approval, it is the beginning of the approval process but only for two uses or indications... previously treated mantle cell lymphoma...

New Drug Application Filing for Ibrutinib Accepted in Two B-cell Malignancies by the U.S. FDA

This is NOT an approval, it is the beginning of the approval process but onl...

Top Poster CURE Hero•11 years ago

Nature is ‘ Balm for the soul ‘. There is a worldwide movement to acknowledge the power of being out in the natural world. As far back as Florence Nightingale...

Are there ways to self-monitor the hemoglobin level? My husband's was down to 6.2 before the weekly blood draw with no apparent symptoms.

LAinNYC

•11 years ago

4 Replies

The power of the natural world.

Nature is ‘ Balm for the soul ‘. There is a worldwide movement to acknowledge th...

Kwenda

•11 years ago

5 Replies

Skin Cancer Surveillance in newly diagnosed CLL ... Mayo Clinic study

This is a small study of CLL patients living around the Mayo Clinic during the period 2004 to 2012. 'Collectively, 113 individuals who met criteria were...

This is a small study of CLL patients living around the Mayo Clinic during the p...

I've been informed of two instances where HU Community members have found that their email preferences were not set correctly. Please check that your settings...

Top Poster CURE Hero•11 years ago

2 Replies

Not receiving email updates? Check your Email Preferences!

I've been informed of two instances where HU Community members have found that t...

Administrator•11 years ago

Here's your opportunity to respond with feedback on what you like about the content on this site and where you'd like to see changes. (I'm not talking about...

How well does this site meet your needs in terms of content?

Here's your opportunity to respond with feedback on what you like about the cont...

We've heard how polyphenols in green tea can help slow the progression of CLL in some patients. Here's news of some promising research on how polyphenols from...

Administrator•11 years ago

18 Replies

Promising antibacterial coating created from green tea and salt

We've heard how polyphenols in green tea can help slow the progression of CLL in...

Once again I am not receiving posts from HU. The problem seems to involve more than this group, as I am also a member of another group and have not received...

Administrator•11 years ago

4 Replies

Problems receiving posts

Once again I am not receiving posts from HU. The problem seems to involve more t...

MsLockYourPosts

Passed Volunteer•11 years ago

11 Replies

Exciting times in CLL: an ASCO 2013 interview with Dr Susan O’Brien

I just came across this bit obscure video with Dr. Susan O'Brien of MD Anderson...you may find it of interest......

I just came across this bit obscure video with Dr. Susan O'Brien of MD Anderson....

Andrew Schorr interviews another very well know CLL specialist, Prof Dr. Michael Halleck "Could monoclonal antibodies replace chemotherapy in treating CLL?...

Top Poster CURE Hero•11 years ago

7 Replies

A Chemo-Free Future for Managing CLL? Dr. Michael Hallek expresses his views on new treatments in this Patient Power interview

Andrew Schorr interviews another very well know CLL specialist, Prof Dr. Michael...

Administrator•11 years ago

Hey CLLers Unfortunately my second B + R infusions in this clinical trial were delayed by a week due to a query raised by Pharmacy - compounded by a lack of...

August - Clinical trial update - B + R and Idelalisib - CAL 101

Hey CLLers Unfortunately my second B + R infusions in this clinical trial were ...

MartyR

•11 years ago

2 Replies

Flu vaccine reduces heart attack risk, Australian study finds

http://www.abc.net.au/news/2013-08-22/flu-vaccine-reduces-heart-attack-risk2c-study-finds/4904588 "An Australian study has found the flu vaccine can almost...

http://www.abc.net.au/news/2013-08-22/flu-vaccine-reduces-heart-attack-risk2c-st...

Administrator•11 years ago

I've just had my regular blood tests done, which prompted this post. (My routine is to go to a pathology collection centre for the blood draw, then two days...

Blood draws, what are your tips for a relatively painless experience?

I've just had my regular blood tests done, which prompted this post. (My routin...

Laura from HealthUnlocked has just let me into a little secret. This site supports a very small subset of bbcode formatting, which enables you to format text...

Administrator•11 years ago

23 Replies

How to pretty up your posts and questions with bold, italicised and underlined text

Laura from HealthUnlocked has just let me into a little secret. This site suppo...

The Australian Leukaemia Foundation will be holding a range of Light the Night events over the next few months in many locations around the country. If you'd...

Administrator•11 years ago

26 Replies

Australian Leukaemia Foundation Light the Night locations and times

The Australian Leukaemia Foundation will be holding a range of Light the Night e...

Administrator•11 years ago

Congratulations! We've now grown to a community membership of over 500!! No doubt many of you would like to ask other members in private for more...

How to privately contact others using this site's Private Message Feature

Congratulations! We've now grown to a community membership of over 500!! No do...

I have warts on my fingers that I cannot get rid of. The doctor tells me it is because my immune system is depleted. Does anyone else have the same problem?

Administrator•11 years ago

1 Reply

Problems with warts

I have warts on my fingers that I cannot get rid of. The doctor tells me it is ...

ruthpen

•11 years ago

10 Replies

Thinking about the good old days is good for your psychological health

I'm sure many of us think back before our diagnosis with fond nostalgia. Seems the negative connotations associated with nostalgic thinking are without...

I'm sure many of us think back before our diagnosis with fond nostalgia. Seems ...

Administrator•11 years ago

I just caught the Fever Pitch episode of Mythbusters on repeat last night. Of particular interest is their testing of the myth (which they confirmed), that...

Mythbusters have fun with fake nasal secretions and sneezing

I just caught the Fever Pitch episode of Mythbusters on repeat last night. Of p...

When researchers from UCLA's Cousins Center for Psychoneuroimmunology and the University of North Carolina examined how positive psychology impacts human gene...

Administrator•11 years ago

6 Replies

Happiness from helping others is better for our immune system than hedonism.

When researchers from UCLA's Cousins Center for Psychoneuroimmunology and the Un...

Natural ultraviolet blockers from Great Barrier Reef corals and bacteria found in the Trondheim Fjord in Norway may soon be appearing in broad spectrum...

Administrator•11 years ago

6 Replies

Better sunscreens coming to you from the Tropics and the Arctic

Natural ultraviolet blockers from Great Barrier Reef corals and bacteria found i...

No doubt many of you have seen T shirts or bumper stickers with the catchy slogan: "Don't Take Your Organs to Heaven... Heavens Knows We Need Them Here." Prior...

Administrator•11 years ago

6 Replies

Organ donations, can we? Should we?

No doubt many of you have seen T shirts or bumper stickers with the catchy sloga...

This can be a confusing subject and thus a website now will lead you through the basics of your genome. See http://genesinlife.org/ See public announcement...

Administrator•11 years ago

10 Replies

How genetics affects your CLL and other health matters.

This can be a confusing subject and thus a website now will lead you through the...

Kwenda

•11 years ago

Short (under 3 minute) New Scientist video on how our on-line presence can be analysed to learn more about us than you'd ever believe possible. While not CLL...

How the internet can read your mind

Short (under 3 minute) New Scientist video on how our on-line presence can be an...