Posts - CLL Support | HealthUnlocked

CLL Support

22,514 members • 38,671 posts

All posts for July 2022

Beginning Calquence

Hi ,New to the group. I have been on WW for a year and Tuesday I am beginning my journey of CLL treatment of calquence twice a day. I am somewhat uptight,...

Hi ,New to the group. I have been on WW for a year and Tuesday I am beginning my...

Missmuffinandme

•2 years ago

14 Replies

Ten minutes respite visual and music therapy:

A genius, probably French, combined videos of the Caribbean's nature, ocean, animals, vegetation and individuals with unrelated chants and rythms from...

A genius, probably French, combined videos of the Caribbean's nature, ocean, an...

janvog

•2 years ago

2 Replies

travel insurance

hi everyone I’m currently on Venetoclax and will be until September 2023. I’ve searched everywhere for travel insurance but getting crazy quotes. Does anyone...

hi everyone I’m currently on Venetoclax and will be until September 2023. I’ve...

Billys60

•2 years ago

6 Replies

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Still Positive

Teated positive for covid 10 days ago. Received bebtelovimab day 1, felt pretty crummy for about a week. Feeling somewhat better now but, still a bit weak...

Teated positive for covid 10 days ago. Received bebtelovimab day 1, felt pretty...

Davidcara

•2 years ago

13 Replies

PROTECTION FROM COVID WITH EVUSHELD??

I have not been on this site for a while, but wanted to share some interesting information with you. I have been in a random trial (arm 1; I/O) at Mayo’s...

I have not been on this site for a while, but wanted to share some interesting ...

Varney

•2 years ago

34 Replies

Swollen lymph nodes in the neck.

I have throbbing swollen lymph nodes in my neck. It’s been causing a lot of discomfort in my neck and at night as I sleep. Has anyone else had this because...

I have throbbing swollen lymph nodes in my neck. It’s been causing a lot of disc...

Willowbug

•2 years ago

6 Replies

Are there any targeted drugs that only kill cancerous wbc?

I have very high wbc,and will probably be given calquence which I thought only targeted cancerous cells, however, after talking to my consultant apparently...

I have very high wbc,and will probably be given calquence which I thought onl...

PACWOMAN

•2 years ago

12 Replies

Past Vaccines and CLL

I am overwhelmed with tears of joy and thanks to all of the people on this forum. I cannot tell you how much your support and responses have helped to relieve...

I am overwhelmed with tears of joy and thanks to all of the people on this forum...

lisakc1

•2 years ago

13 Replies

starting W&W

So I recently had two visits at the Mayo Clinic and had genetic testing along with ct scans. I’m “normal” karyotype, unmutated igh, unmutated tp53. I’m being...

So I recently had two visits at the Mayo Clinic and had genetic testing along wi...

Snakejaw

•2 years ago

57 Replies

acalabrutinib stopped working. Can switching to venclexta help?

I am on acalabrutinib for two years. In first year my wbc went down from 150k to 18k, and for the second year from from 18k to 14k. My hgb is 15, plt 200k. My...

I am on acalabrutinib for two years. In first year my wbc went down from 150k to...

Belkin123

•2 years ago

28 Replies

Shingles vaccine reactions

Has anyone had any adverse reactions to the Shingerix vaccine? Particularly pain around the spleen area.

Has anyone had any adverse reactions to the Shingerix vaccine? Particularly pai...

LadyRichmond

•2 years ago

22 Replies

Omicron phase research re Evusheld

Israeli research including the Omicron phase "Association between AZD7442 (tixagevimab-cilgavimab) administration and SARS-CoV-2 infection, hospitalization and...

Israeli research including the Omicron phase "Association between AZD7442 (tixag...

JIDD

•2 years ago

17 Replies

Venclexta

Hi everyone, I receive Venclexta via UPS. The hospital pharmacy sent it out yesterday and it was scheduled to be delivered today(Friday). I just received a...

Hi everyone, I receive Venclexta via UPS. The hospital pharmacy sent it out yest...

Gman2

•2 years ago

11 Replies

CLL & Mastectomy / Implants

I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of...

I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or m...

Amberesque

•2 years ago

6 Replies

Relapse of CLL

Has anyone who had relapsed CLL had strong CLL symptoms prior to that diagnosis? I have blood work in a few weeks but my CLL symptoms have been very prevalent...

Has anyone who had relapsed CLL had strong CLL symptoms prior to that diagnosis?...

Jvander11

•2 years ago

13 Replies

Husband beginning V+O treatment for unmutated CLL

My husband will be beginning the combo Ventaclax and Obinutuzumab for unmutated CLL which will continue for 1 year. We would love any helpful advice about how...

My husband will be beginning the combo Ventaclax and Obinutuzumab for unmutated ...

lisakc1

•2 years ago

41 Replies

Atypical cll

Hi I was diagnosed with Atypical cll in 2014,currently W/W I' m 13q delected and IGHV mutated FISH as below CD3+ T CELL CD3- NK CELL CD5 weak B CELL...

Hi I was diagnosed with Atypical cll in 2014,currently W/W I' m 13q delected an...

tms99532

•2 years ago

5 Replies

does having covid recently stop treatment from starting?

so I had a reactivation of EPstein Barr Virus in May that caused a Monk infection so we put off treatment until I see my doc again next week. To give me time...

so I had a reactivation of EPstein Barr Virus in May that caused a Monk infecti...

WittyApricot

•2 years ago

20 Replies

Updated my profile.. can someone have a look and advice! Thanks

Hi everyone Have updated my profile with all the relevant details about my husband’s case Would really appreciate if someone can guide us through with a...

Hi everyone Have updated my profile with all the relevant details about my hus...

theoptimistduo

•2 years ago

7 Replies

Messages of hope for anyone with anxiety or stress

I hesitate to post this, but CLL can be an emotional burden and if this helps just one person... Though it isn't the kind of subject I write or even think...

I hesitate to post this, but CLL can be an emotional burden and if this helps ju...

bennevisplace

•2 years ago

50 Replies

obinutuzumab and eyes

Anyone have issue with floaters/light flashing after obinutuzumab infusion? Went to ED to be on safe side and following up with ophthalmologist . Definately...

Anyone have issue with floaters/light flashing after obinutuzumab infusion? Wen...

Gardengirl44

•2 years ago

2 Replies

CLL, Diabetic, dialysis, afib

I want to ask if anyone has troubling walking all of a sudden. There are days my legs give out. Does anyone know if it’s my newly diagnosed CLL or diabetic...

I want to ask if anyone has troubling walking all of a sudden. There are days m...

sylsherbs

•2 years ago

5 Replies

live vaccine exposure

If someone you know had the live monkeypox vaccine, do you need to stay away from them for a time in order to avoid exposure?

If someone you know had the live monkeypox vaccine, do you need to stay away fro...

Hidden

•2 years ago

16 Replies

Insurance cover for travel to France with CLL

I'm going to Paris for a week in September. I have my GHIC but looking for insurance for just that period comes up with quotes around £300. Anyone have any...

I'm going to Paris for a week in September. I have my GHIC but looking for insur...

JIDD

•2 years ago

32 Replies

infusion

is it difficult to get Immunoglobulin infusion? Mine is low?

Tapps

•2 years ago

2 Replies

Immunoglobulin G, Qn,

blood test said: Immunoglobulin G, Qn, Serum Low

Tapps

•2 years ago

7 Replies

venetoclax and obinutuzumab

good evening ( well it is in Wales) I am about to start treatment on venetoclax and obinutuzumab . I am extremely nervous but having been given a choice of...

good evening ( well it is in Wales) I am about to start treatment on venetocla...

Hilo13

•2 years ago

25 Replies

Wait time for second booster after testing positive and starting Paxlovid.

I did a rapid test yesterday, testing positive. I started Paxlovid this morning, (after discussions with the Pharmacist who didn't think i was eligible, ) and...

I did a rapid test yesterday, testing positive. I started Paxlovid this morning...

RSilver

•2 years ago

5 Replies

bacterial pneumonia

It turns out that my lower WBC was the least of my worries. I was hospitalized for bacterial pneumonia. I understand it’s going to take a while to get back on...

It turns out that my lower WBC was the least of my worries. I was hospitalized ...

May1270

•2 years ago

10 Replies

tumeric

hi everyone, Just a quick question. Does anyone here take tumeric? I’ve been reading about all the anti inflammatory benefits and wondering if this is ok to...

hi everyone, Just a quick question. Does anyone here take tumeric? I’ve been r...

Grandmajoanie

•2 years ago

52 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2022

Beginning Calquence

Ten minutes respite visual and music therapy:

travel insurance

Still Positive

PROTECTION FROM COVID WITH EVUSHELD??

Swollen lymph nodes in the neck.

Are there any targeted drugs that only kill cancerous wbc?

Past Vaccines and CLL

starting W&W

acalabrutinib stopped working. Can switching to venclexta help?

Shingles vaccine reactions

Omicron phase research re Evusheld

Venclexta

CLL & Mastectomy / Implants

Relapse of CLL

Husband beginning V+O treatment for unmutated CLL

Atypical cll

does having covid recently stop treatment from starting?

Updated my profile.. can someone have a look and advice! Thanks

Messages of hope for anyone with anxiety or stress

obinutuzumab and eyes

CLL, Diabetic, dialysis, afib

live vaccine exposure

Insurance cover for travel to France with CLL

infusion

Immunoglobulin G, Qn,

venetoclax and obinutuzumab

Wait time for second booster after testing positive and starting Paxlovid.

bacterial pneumonia

tumeric

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2022

Beginning Calquence

Ten minutes respite visual and music therapy:

travel insurance

Still Positive

PROTECTION FROM COVID WITH EVUSHELD??

Swollen lymph nodes in the neck.

﻿Are there any targeted drugs that only kill cancerous wbc?

Past Vaccines and CLL

starting W&W

acalabrutinib stopped working. Can switching to venclexta help?

Shingles vaccine reactions

Omicron phase research re Evusheld

Venclexta

﻿CLL & Mastectomy / Implants

Relapse of CLL

Husband beginning V+O treatment for unmutated CLL

Atypical cll

does having covid recently stop treatment from starting?

Updated my profile.. can someone have a look and advice! Thanks

Messages of hope for anyone with anxiety or stress

obinutuzumab and eyes

CLL, Diabetic, dialysis, afib

live vaccine exposure

Insurance cover for travel to France with CLL

infusion

Immunoglobulin G, Qn,

venetoclax and obinutuzumab

﻿Wait time for second booster after testing positive and starting Paxlovid.

bacterial pneumonia

tumeric

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

Are there any targeted drugs that only kill cancerous wbc?

CLL & Mastectomy / Implants

Wait time for second booster after testing positive and starting Paxlovid.