Posts - CLL Support | HealthUnlocked

CLL Support

22,513 members • 38,667 posts

All posts for January 2018

CLL specialist - QE or Heartlands West Midlands?

I have not posted for some time as other health problems took priority but today I have had an appointment at Heartlands Hospital, Birmingham where I was...

I have not posted for some time as other health problems took priority but today...

NooNoo14

•6 years ago

25 Replies

Weird symptoms?

I'm on imbruvica and recently I had been experiencing a rather painful swelling in my little finger and top of my hand. It came on rather suddenly and at...

I'm on imbruvica and recently I had been experiencing a rather painful swelling ...

joycecanada

•6 years ago

18 Replies

The Cancer Genome Atlas (from NIH) - Great Cancer Resource

There are at least 200 forms of cancer, and many more subtypes. Each of these is caused by errors in DNA that cause cells to grow uncontrolled. Identifying the...

There are at least 200 forms of cancer, and many more subtypes. Each of these is...

wmay13241

•6 years ago

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AussieNeil

Administrator•6 years ago

9 Replies

CLL

About to start treatment with GAZYA, anyone else on this?

Nanapapa6

•6 years ago

10 Replies

Round 4 FCR complete

I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but am having absolutely 000000 side effects. If anything, I am...

I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowes...

Marie-54

•6 years ago

16 Replies

Would someone shed some light on a few questions regarding a continuous drop in ALC and the connection to lymphocyte % means? Thank you!

Just for historical background. I am treatment naive. So I am trisomy 12, zap 70+(one test says yes another was inconclusive for zap 70),have a rare BCL-2 gene...

Just for historical background. I am treatment naive. So I am trisomy 12, zap 70...

jettyguy1

•6 years ago

30 Replies

What Does the Spleen Do

Spoof that is great! Old but entertaining. https://youtu.be/aEi_4Cyx4Uw Dennis, 71, Ibrutinib

Spoof that is great! Old but entertaining. https://youtu.be/aEi_4Cyx4Uw Denni...

Fant1924

•6 years ago

3 Replies

This is my rant for the day

Today is my first day without taking Ibrutinib since April 2, 2017. Last November my company made the decision to change insurance providers. Meanwhile, in...

Today is my first day without taking Ibrutinib since April 2, 2017. Last Novemb...

pilantd

•6 years ago

17 Replies

Do I go back to the doctor for frequent infections?

Hi, I'm a 19 year old female and am concerned with my general health. I went to the doctor three weeks ago with lots of small and large random bruises. I also...

Hi, I'm a 19 year old female and am concerned with my general health. I went to ...

lexi99916

•6 years ago

1 Reply

Ibrutinib

Hi folks, I start my Ibrutinib treatment (part of the FLAIR trial) tomorrow, I was due to begin last week but had a nasty viral infection. Does anyone else...

Hi folks, I start my Ibrutinib treatment (part of the FLAIR trial) tomorrow, I ...

Daveyo

•6 years ago

15 Replies

Five years ago

I was diagnosed 5 years ago with cll. Tired a lot of the time. Going to doctor every 6 months to tell me no change. Monday I went to the emergency room because...

I was diagnosed 5 years ago with cll. Tired a lot of the time. Going to doctor e...

Cleanliver

•6 years ago

25 Replies

Flu shots

I've been reading a lot about how aggressive this year's flu strain is. Does anyone know if flu shots are advisable for those of us with Cll?

I've been reading a lot about how aggressive this year's flu strain is. Does any...

TXteacher

•6 years ago

18 Replies

Repeated major infections

Hi..my mum has cll since 2001 and she has had 4 major infections from Sept on..she was on imbruvica but became too ill to continue. They just can't seem to...

Hi..my mum has cll since 2001 and she has had 4 major infections from Sept on..s...

CiaraAnnJosie

•6 years ago

6 Replies

Partial treatment to shrink nodes

Hi My wife has been diagnosed with Cll 3 years ago and still too scared to research it so that’s my job .She’s 47 and quite beautiful but the lymph nodes in...

Hi My wife has been diagnosed with Cll 3 years ago and still too scared to resea...

Sergi

•6 years ago

25 Replies

Cll n Ibrutinib

Hi I'm new to posting. I was diagnosed with CLL in April 2016. My WBC was 50. But my hemoglobin continued to go down at every 3 month visit. Nov. it went down...

Hi I'm new to posting. I was diagnosed with CLL in April 2016. My WBC was 50. Bu...

Cindi73

•6 years ago

10 Replies

Hard(ish) bulky lymph nodes - anything to worry about?

Hello! I've mentioned before that my lymph nodes tend to wax and wane a bit in size - Over the past few days, I've had an inguinal (groin area) lymph node that...

Hello! I've mentioned before that my lymph nodes tend to wax and wane a bit in s...

jijic

•6 years ago

6 Replies

not so much

Got any results after being cut down to 1 Imbrovica every other day? Just in the process now.

Got any results after being cut down to 1 Imbrovica every other day? Just in the...

betmaxbaby

•6 years ago

3 Replies

Son diagnosed with Chronic Lymphocytic Leukemia

Hi all , I'm from Denmark Wisconsin, last June 2017 my 27 year old son was diagnosed with Chronic Lymphocytic Leukemia, His Doctor's told us he probably had it...

Hi all , I'm from Denmark Wisconsin, last June 2017 my 27 year old son was diagn...

deters

•6 years ago

17 Replies

Pleasure to be with all of you

Hello from Portugal... I've been diagnosed with CLL since 2000. I've been treated with different drugs for all these years, now, i'm since aug 2017 treated...

Hello from Portugal... I've been diagnosed with CLL since 2000. I've been treate...

Deta1961

•6 years ago

6 Replies

Take precautions against infection when using potting mix

Many of us enjoy time in our gardens. "Gardening is generally a healthy and pleasurable hobby or occupation. However, any activity carries some risk – and...

Many of us enjoy time in our gardens. "Gardening is generally a healthy and plea...

AussieNeil

Administrator•6 years ago

5 Replies

Test Results Questions

I am in watch and wait being diagnosed about 6 months ago. I had a checkup on Jan 5 and got a copy of the blood tests. Dr. did not express concern about...

I am in watch and wait being diagnosed about 6 months ago. I had a checkup on J...

Elam

•6 years ago

4 Replies

NEABS

NEABS keeps appearing on my blood results. Does anyone know what they are?

Rog69

•6 years ago

3 Replies

White Cell Count Reducing

Hi. I was diagnosed Dec 15 and over the first 9 months my count reached over 50. In April last year I decided to adopt a plant based diet for health reasons....

Hi. I was diagnosed Dec 15 and over the first 9 months my count reached over 50....

Britcom

•6 years ago

9 Replies

What is the normal lymphocyte blood count. Mine jumped from 43 to 91 then to 94 I am on s watch and wait I was diagnosed in January 2015.

I am Jenny this is my first post don't know if it looks ok. Maybe someone will tell me

I am Jenny this is my first post don't know if it looks ok. Maybe someone will...

Rensh3

•6 years ago

5 Replies

Just low platlets, no other symptoms

I just happened on this site because I have had low 99-102 platlets for the past year. My dr had my spleen checked and it was fine. What does cll stand for. I...

I just happened on this site because I have had low 99-102 platlets for the past...

lorimaske

•6 years ago

3 Replies

Feeling really unwell

Viral/infection symptoms have gotten worse so suddenly. My WBC count lymphocytes are rising but not exponentially and still well below what others have who...

Viral/infection symptoms have gotten worse so suddenly. My WBC count lymphocy...

TAS50

•6 years ago

10 Replies

SLL/CLL

Went in for a routine female check up on 10/27/17 and next thing I know she said all my lymph nodes were swollen (I could not tell) and she suspected SLL. On...

Went in for a routine female check up on 10/27/17 and next thing I know she said...

CMW1

•6 years ago

3 Replies

Neck node biopsy

5 + yrs post diagnosis of CLl and have lump on right side of neck. They thought it was CLL but during biopsy yesterday they seem to think it is “another”...

5 + yrs post diagnosis of CLl and have lump on right side of neck. They thought ...

Huzzy

•6 years ago

10 Replies

Just a quick message

Hello all just a quick message just left heamotolgy and my hubby wbc has gone down from 79 thousand to 57 thousand and he is still watch and wait x

Hello all just a quick message just left heamotolgy and my hubby wbc has gone do...

Nikkij81

•6 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2018

CLL specialist - QE or Heartlands West Midlands?

Weird symptoms?

The Cancer Genome Atlas (from NIH) - Great Cancer Resource

Introducing clearer reply threads on HealthUnlocked

CLL

Round 4 FCR complete

Would someone shed some light on a few questions regarding a continuous drop in ALC and the connection to lymphocyte % means? Thank you!

What Does the Spleen Do

This is my rant for the day

Do I go back to the doctor for frequent infections?

Ibrutinib

Five years ago

Flu shots

Repeated major infections

Partial treatment to shrink nodes

Cll n Ibrutinib

Hard(ish) bulky lymph nodes - anything to worry about?

not so much

Son diagnosed with Chronic Lymphocytic Leukemia

Pleasure to be with all of you

Take precautions against infection when using potting mix

Test Results Questions

NEABS

White Cell Count Reducing

What is the normal lymphocyte blood count. Mine jumped from 43 to 91 then to 94 I am on s watch and wait I was diagnosed in January 2015.

Just low platlets, no other symptoms

Feeling really unwell

SLL/CLL

Neck node biopsy

Just a quick message

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