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Low vitamin d high serum ferritin

Hello My husband has been on watch and wait for 12 years. Due to a constant chronic cough he recently had a blood test which showed low vitamin D levels of 45...

Hello My husband has been on watch and wait for 12 years. Due to a constant chro...

Debs4

•4 days ago

12 Replies

brukinsa cll patient

cll patient that has been on brukinsa for six weeks and with wbc count of 30.3 and lymphocyte absolute count of 27.6 should i be concerned.

cll patient that has been on brukinsa for six weeks and with wbc count of 30.3 a...

ceciljr1958

•20 days ago

4 Replies

CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors

Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. Hopefully we subsequently read that search engine information...

Many of us were shocked after our CLL/SLL diagnosis when we googled for survival...

AussieNeil

Administrator•27 days ago

9 Replies

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Tinnitus & CLL

Hi I was diagnosed with CLL a year ago and not currently on any treatment . However, since January I have suffered from continuous Tinnitus , day and night ....

Hi I was diagnosed with CLL a year ago and not currently on any treatment . Ho...

Ternheim1967

•2 months ago

12 Replies

Latest COVID-19 guide for immunocompromised blood cancer patients from the International COVID-19 Blood Cancer Coalition (ICBCC)

The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled "Navigating a post-pandemic...

The latest Patient Impact Statement has been released by the International COVID...

CLLerinOz

Administrator•3 months ago

10 Replies

cll and associated skin disorder

I was treated for CLL with Venetoclax for a year ending last April. It was very effective. Half-way through the treatment I developed a skin rash on arms and...

I was treated for CLL with Venetoclax for a year ending last April. It was very ...

nigeldodd

•4 months ago

12 Replies

New to an on line community

Never been evolved in an on line community before and not sure how to get the best out of it

Never been evolved in an on line community before and not sure how to get the be...

Geministars

•5 months ago

7 Replies

Shingrix availability on PBS in Australia from 1 November has been confirmed

SEE THIS REPLY for the latest update to this post:...

CLLerinOz

Administrator•7 months ago

3 Replies

Lymphatic drainage massages

After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the...

After reading CLL is dormant in the blood stream but active in the lymph nodes I...

Rando21

•8 months ago

4 Replies

4 weeks of Rituximab

I just finished 4 weeks of Rituximab 750ml once a week. Diagnosed cll 2019 at 42 developed Pure red cell aplasia at the start of this year. Only side affects...

I just finished 4 weeks of Rituximab 750ml once a week. Diagnosed cll 2019 at 4...

Jimmy_9

•8 months ago

14 Replies

Wearing a mask!

My wife has cll diagnosed in June of 2012. She is currently on Venclexta. My question I am sure has been discussed before. She goes in frequently for some...

My wife has cll diagnosed in June of 2012. She is currently on Venclexta. My qu...

Ecalv

•9 months ago

38 Replies

Hello strangers.

Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people...

Hello, just thought that having been banned from the Cllforum years ago for no g...

andysnat

•9 months ago

8 Replies

Lymph Node Resurgence

Hello Everyone! I started my treatment last December. Completed my last Gazyva in June and am still on my Venetoclax through the end of the year. Some of my...

Hello Everyone! I started my treatment last December. Completed my last Gazyva ...

filmcaptive1

•10 months ago

8 Replies

Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023

The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians...

The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be ...

CLLerinOz

Administrator•10 months ago

4 Replies

Cosentyx

I have been on WW CLL for about ten years. With wbc ranging from 13 to 28. I recently started injecting Cosentyx for a bad case of psoriasis. I previously was...

I have been on WW CLL for about ten years. With wbc ranging from 13 to 28. I rec...

eeebcll

•11 months ago

6 Replies

White Paper recommends steps to improve the care and support of people with Chronic Lymphocytic Leukemia who face immune challenges

". . . despite advances in therapy, infection remains a major risk in CLL and is a key challenge in CLL management. People with CLL face varied immune...

". . . despite advances in therapy, infection remains a major risk in CLL and is...

CLLerinOz

Administrator•1 year ago

14 Replies

Ibrutinib - Excessive Itching

My husband was diagnosed with CLL in Jan 2019. He began on daily Ibrutinib about a year later. About a year ago he started having severe itching that makes...

My husband was diagnosed with CLL in Jan 2019. He began on daily Ibrutinib abou...

macarr45

•1 year ago

34 Replies

CLL and Covid !

My father recently got covid and had to be hospitalised for the same. He got covid related pneumonia and had to be on oxygen support (nasal cannula) for the...

My father recently got covid and had to be hospitalised for the same. He got co...

Iwrite

•1 year ago

4 Replies

I’m scared of treatment

Venetoclax and Obinutuzumab My Haematologist has suggested that I may need to start treatment with these drugs and Calquence. I’ve been on Watch & Wait since...

Venetoclax and Obinutuzumab My Haematologist has suggested that I may need to s...

tigerbeauty

•1 year ago

24 Replies

Gazyva and Venclexta

Imbruvica, which has worked well for 2 1/2 years has stopped working and WBC are climbing. Next week I will begin Gazyva (infusions) and Venclexta. Has...

Imbruvica, which has worked well for 2 1/2 years has stopped working and WBC are...

Phyllis731

•1 year ago

8 Replies

The Importance of Front-Loading Your Knowledge During the Early Journey of CLL/SLL April 12, 2023 Joanna M. Rhodes, MD, Northwell Health

The Importance of Front-Loading Your Knowledge During the Early Journey of CLL/SLL Wednesday, April 12, 2023 9:30 AM PT / 10:30 AM MT / 11:30 AM CT /...

The Importance of Front-Loading Your Knowledge During the Early Journey of CLL/S...

lankisterguy

Volunteer•1 year ago

1 Reply

Interested in knowing if any CLL patients taking Calquence have developed neck cancer

Just need feedback

Mamouchi

•1 year ago

4 Replies

BLOOD PRESSURE PROBLEMS

Does anyone have trouble taking imbruvica in relation to high blood pressure.We know that this medication bumps up blood pressure a lot If anyone is suffering...

Does anyone have trouble taking imbruvica in relation to high blood pressure.We ...

studi

•1 year ago

6 Replies

Travel insurance covering chronic lymphocytic leukemia

Is there any affordable traveling insurance covering chronic lymphocytic leukemia CLL?

Is there any affordable traveling insurance covering chronic lymphocytic leukemi...

Louis33

•1 year ago

14 Replies

Diet to GAIN weight

Hello all CLL friends, Healthy Happy Safe New Year to all and your respective families. I was diagnosed with CLL 5 years ago. I also have a small chance of...

Hello all CLL friends, Healthy Happy Safe New Year to all and your respective f...

CouldBworse

•1 year ago

14 Replies

Shingles vaccine is now recommended in Australia for people aged ≥18 years who are immunocompromised

The Australian Government recently updated its advice about vaccination against shingles. The bad news is that the only vaccine funded through the National...

The Australian Government recently updated its advice about vaccination against ...

CLLerinOz

Administrator•1 year ago

6 Replies

Best exercise for CLLers?

Hello, I remember I think AussieNeil saying that perhaps exercise was perhaps the golden bullet for CLL*. I've had a cough for about a month like most of the...

Hello, I remember I think AussieNeil saying that perhaps exercise was perhaps th...

Research123

•1 year ago

52 Replies

Extreme fatigue with Rituximab and Venetoclax 24-month regimen

Hello everybody and best wishes for a healthy, happy and peaceful year. I am male, 73, diagnosed with CLL 11 years ago. IGHV mutated and no TP53 mutation or...

Hello everybody and best wishes for a healthy, happy and peaceful year. I am ma...

RamsesII

•1 year ago

6 Replies

A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program

What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who...

What a morning I've had to get my third pneumococcal vaccine. I'll share the de...

CLLerinOz

Administrator•1 year ago

1 Reply

CMDU working much better than last time.

10 months ago when I last tested positive for Covid the CMDU rang within 24 hours but due to misinterpretation (I think) of the medication that I said I was...

10 months ago when I last tested positive for Covid the CMDU rang within 24 hour...

Snellybob

•1 year ago

7 Replies

Write a post or ask a question

Posts - CLL Support | HealthUnlocked

CLL Support

Living with CLL_SLL posts

Low vitamin d high serum ferritin

brukinsa cll patient

CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors

Tinnitus & CLL

Latest COVID-19 guide for immunocompromised blood cancer patients from the International COVID-19 Blood Cancer Coalition (ICBCC)

cll and associated skin disorder

New to an on line community

Shingrix availability on PBS in Australia from 1 November has been confirmed

Lymphatic drainage massages

4 weeks of Rituximab

Wearing a mask!

Hello strangers.

Lymph Node Resurgence

Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023

Cosentyx

White Paper recommends steps to improve the care and support of people with Chronic Lymphocytic Leukemia who face immune challenges

Ibrutinib - Excessive Itching

CLL and Covid !

I’m scared of treatment

Gazyva and Venclexta

The Importance of Front-Loading Your Knowledge During the Early Journey of CLL/SLL April 12, 2023 Joanna M. Rhodes, MD, Northwell Health

Interested in knowing if any CLL patients taking Calquence have developed neck cancer

BLOOD PRESSURE PROBLEMS

Travel insurance covering chronic lymphocytic leukemia

Diet to GAIN weight

Shingles vaccine is now recommended in Australia for people aged ≥18 years who are immunocompromised

Best exercise for CLLers?

Extreme fatigue with Rituximab and Venetoclax 24-month regimen

A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program

CMDU working much better than last time.

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