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All posts for May 2014

On FCR and mum has shingles

The title says it all ! Im on round 4 and have a little neutropenia after my chemo's. My mum has shingles which she gets a lot. How long should i stay away...

The title says it all ! Im on round 4 and have a little neutropenia after my che...

grizzlebear

•10 years ago

4 Replies

The Exciting Pipeline of new Oral Therapies for CLL (chronic lymphocytic leukemia) by Dr. Bill Wierda

Friends, I am leaving early tomorrow morning for ASCO, but before I leave I wanted to share this link to a nice interview with Dr. Wierda and a list of...

Friends, I am leaving early tomorrow morning for ASCO, but before I leave I wan...

bkoffman

CLL CURE Hero•10 years ago

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Scientists find killer chemical for virus behind SARS and MERS

"A team of European researchers has identified a novel compound that stops coronaviruses from replicating. The study, published in PLOS Pathogens today, also...

"A team of European researchers has identified a novel compound that stops coron...

AussieNeil

Administrator•10 years ago

2 Replies

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ABT-199 and TRU-016 from ASH 2013 with Dr. Pagel

Hi friends Dr. John Pagel discusses the risks and benefits of ABT-199 and TRU-016 in CLL (chronic lymphocytic leukemia) in an interview from ASH 2013 that I...

Hi friends Dr. John Pagel discusses the risks and benefits of ABT-199 and TRU-0...

bkoffman

CLL CURE Hero•10 years ago

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Another Front Against Leukemia: Using Stem Cells to Make Bone Marrow Transplants Low-Risk

Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is...

Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the de...

zevkalman

•10 years ago

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Dr Wierda from ASCO 2013

Hi friends, This is from last year stuff I did with Patient Power and with Primary Care Network, a patient and medical education company. It covers...

Hi friends, This is from last year stuff I did with Patient Power and with Pri...

bkoffman

CLL CURE Hero•10 years ago

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Bites and parasites: vector-borne diseases and the bugs spreading them

Simona John von Freyend, Research Fellow, Malaria biochemistry at Monash University, Victoria, Australia provides an overview of some important vector-borne...

Simona John von Freyend, Research Fellow, Malaria biochemistry at Monash Univer...

AussieNeil

Administrator•10 years ago

1 Reply

CT scan series part 13 – 2 important professional perspectives with a scary revelation.

An “AE” for us CLLers in TX is short for Adverse Event. “AE” are also the initials of a great man of wisdom, Albert Einstein who is quoted in a radiologist's...

An “AE” for us CLLers in TX is short for Adverse Event. “AE” are also the initi...

ThreeWs

•10 years ago

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Rehearsing being 'In Remission'

Hello all, I just wanted to say: "I've finished chemo and I'm in remission". It's as if I need to practice saying that to remind me that there was an...

Hello all, I just wanted to say: "I've finished chemo and I'm in remission". ...

jibs60

•10 years ago

15 Replies

What you need to know about strong pain killers

When you need a strong pain killer, how do you choose what’s best for you? And what are the side effects? Michael Vagg, Clinical Senior Lecturer at Deakin...

When you need a strong pain killer, how do you choose what’s best for you? And w...

AussieNeil

Administrator•11 years ago

3 Replies

When you first started imbruvica....did your leckocytes go up for the first few weeks few weeks.....and why did that happened ??? Diablo

eldiablo

•11 years ago

8 Replies

ASH 2013: Dr. John Pagel Speculates on the Future of CLL Therapies including the late breaking data on Idelalisib

ASH 2013: Dr. John Pagel Speculates on the Future of CLL (chronic lymphocytic leukemia) Therapies including the late breaking data on Idelalisib ASCO is...

ASH 2013: Dr. John Pagel Speculates on the Future of CLL (chronic lymphocytic le...

bkoffman

CLL CURE Hero•11 years ago

6 Replies

Anybody out there had 7 cycles of FCR treatment for CLL rather than the usual 6?

I have had 4 treatments but have concerns, shared by my consultant, that I will still have lumps in my neck after the 6th and final treatment. Wondering what...

I have had 4 treatments but have concerns, shared by my consultant, that I will ...

yorkie19

•11 years ago

5 Replies

CT scan series part 12 - Radiation risk video and calculator

I have been searching for simplified ways to express to you the risk from CT scanning without getting overly technical. I hope you all got my prior message...

I have been searching for simplified ways to express to you the risk from CT sca...

ThreeWs

•11 years ago

17 Replies

Is there anything that can be done if lumps in neck remain after 6 cycles of FCR treatment?

Due to have 5th cycle of FCR treatment next week and although lumps in neck are much reduced they are still significant in size : two of them about 2.5cm...

Due to have 5th cycle of FCR treatment next week and although lumps in neck are ...

yorkie19

•11 years ago

17 Replies

Aussie Ticks come with different risks

Regular CLL Forum readers would be familiar with warnings about the risk of getting Lyme Disease from ticks However in Australia, no causative agent for this...

Regular CLL Forum readers would be familiar with warnings about the risk of gett...

AussieNeil

Administrator•11 years ago

9 Replies

Hi everybody. This is a request for anyone who feels up to it to get moving and enter the London 10k in July.

I took part last year and raised over £700 for CLLSA. That's in my 68th year and the 18th year since CLL diagnosis. This year I hope to do it again - but only...

I took part last year and raised over £700 for CLLSA. That's in my 68th year and...

william1945

CLLSA•11 years ago

4 Replies

Summer is here (in UK) and news on suncream

Well, this news item is quite timely I think. Something I've been wondering about is touched on by this news item on BBC reporting on a Which? test....

Well, this news item is quite timely I think. Something I've been wondering abo...

Oleboyredw-uk

•11 years ago

4 Replies

New CLL Ask the Expert Series on video starting

Patient Power is starting an Ask the Expert series in CLL. The host is my friend Jeff Folloder, a CLL patient and volunteer. Look for video segments soon on...

Patient Power is starting an Ask the Expert series in CLL. The host is my friend...

andrewschorr

•11 years ago

1 Reply

ASH 2013: Dr. John Pagel Discusses Radio-Immune Therapy (RIT) in Chronic Lymphocytic Leukemia (CLL)

Friends In another interview from ASH 2013 that I just posted on my blog http://bkoffman.blogspot.com , Dr. John Pagel out of the Hutch and I discuss the role...

Friends In another interview from ASH 2013 that I just posted on my blog http:/...

bkoffman

CLL CURE Hero•11 years ago

7 Replies

Don't be a drip; treat cuts and scrapes seriously, particularly if you have CLL (Chronic Lymphocytic Leukemia)

I recently spent 4 days in hospital so that I could have twice daily intravenous antibiotics to control a hand infection which developed from a very small...

I recently spent 4 days in hospital so that I could have twice daily intravenous...

AussieNeil

Administrator•11 years ago

19 Replies

CT scan series part 11 – Inside the “Donut” - How many scans ...?

When a CT scan is ordered for you, think of it as a “Session” because unless you ask you won't know how many actual scans you are getting. A typical CT session...

When a CT scan is ordered for you, think of it as a “Session” because unless you...

ThreeWs

•11 years ago

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Website problems?

It might just be me, but I'm seeing no graphics today and pages are taking a long time to load. iPad... iOS7.1.1 in all browsers, Safari, Chrome, Opera...

It might just be me, but I'm seeing no graphics today and pages are taking a lon...

Cllcanada

CT scan series part 10 - Clinical Trial CT scan Context

CT scan series part 10 - Clinical Trial CT scan Context There is solid rationale for CT-scanning in a Clinical Trial setting that cannot be avoided but is it...

CT scan series part 10 - Clinical Trial CT scan Context There is solid rational...

ThreeWs

•11 years ago

5 Replies

Had my first course of FCR with great blood results. Consultant tells me I have the 11Q variation. What will this mean in the future ? David

Haileybury

•11 years ago

5 Replies

Mayo Clinic cures Myeloma with a Billion Units of the Measles Virus

Here's an interesting article in today's local newspaper (my local newspaper: The Washington Post): the Mayo Clinic cures myeloma in a patient by giving her a...

Here's an interesting article in today's local newspaper (my local newspaper: Th...

zevkalman

•11 years ago

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Just stared imbruvicia and got a little nausea....so many drugs interact with it.....any suggestions.....thanks....el diablo !

eldiablo

•11 years ago

4 Replies

As CLL is incurable (at the moment), is it classed as being terminal?

I ask because to be able to claim for Disability Living Allowance, your illness has to be terminal but they only consider "terminal" as expected to live less...

I ask because to be able to claim for Disability Living Allowance, your illness ...

stunned

•11 years ago

11 Replies

CLL Results - Blood - Full Blood Count - In order of significance

I have my blood test (taken at 7th May 2014) results. They are the first since my 2nd round of FCR on 17th April 2014. This intrigues me and I trust someone...

I have my blood test (taken at 7th May 2014) results. They are the first since m...

Bribin

•11 years ago

5 Replies

What is more important .... health research or money?

Daily Mail Health News - Pfizer takeover bid of Astra Zeneca Yesterday, MPs were warned that Pfizer’s bid will cost lives by delaying the development of...

Daily Mail Health News - Pfizer takeover bid of Astra Zeneca Yesterday, MPs ...

ygtgo

•11 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2014

On FCR and mum has shingles

The Exciting Pipeline of new Oral Therapies for CLL (chronic lymphocytic leukemia) by Dr. Bill Wierda

Scientists find killer chemical for virus behind SARS and MERS

ABT-199 and TRU-016 from ASH 2013 with Dr. Pagel

Another Front Against Leukemia: Using Stem Cells to Make Bone Marrow Transplants Low-Risk

Dr Wierda from ASCO 2013

Bites and parasites: vector-borne diseases and the bugs spreading them

CT scan series part 13 – 2 important professional perspectives with a scary revelation.

Rehearsing being 'In Remission'

What you need to know about strong pain killers

When you first started imbruvica....did your leckocytes go up for the first few weeks few weeks.....and why did that happened ??? Diablo

ASH 2013: Dr. John Pagel Speculates on the Future of CLL Therapies including the late breaking data on Idelalisib

Anybody out there had 7 cycles of FCR treatment for CLL rather than the usual 6?

CT scan series part 12 - Radiation risk video and calculator

Is there anything that can be done if lumps in neck remain after 6 cycles of FCR treatment?

Aussie Ticks come with different risks

Hi everybody. This is a request for anyone who feels up to it to get moving and enter the London 10k in July.

Summer is here (in UK) and news on suncream

New CLL Ask the Expert Series on video starting

ASH 2013: Dr. John Pagel Discusses Radio-Immune Therapy (RIT) in Chronic Lymphocytic Leukemia (CLL)

Don't be a drip; treat cuts and scrapes seriously, particularly if you have CLL (Chronic Lymphocytic Leukemia)

CT scan series part 11 – Inside the “Donut” - How many scans ...?

Website problems?

CT scan series part 10 - Clinical Trial CT scan Context

Had my first course of FCR with great blood results. Consultant tells me I have the 11Q variation. What will this mean in the future ? David

Mayo Clinic cures Myeloma with a Billion Units of the Measles Virus

Just stared imbruvicia and got a little nausea....so many drugs interact with it.....any suggestions.....thanks....el diablo !

As CLL is incurable (at the moment), is it classed as being terminal?

CLL Results - Blood - Full Blood Count - In order of significance

What is more important .... health research or money?

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