Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for December 2019

Diagnosed with CLL November 2019

I’m newly diagnosed. I have positive for Zap 70 and CD 38 and Trisomy 12. My CBC and BMP normal. My IGM is low at 28. Ive read and read cancer articles on...

I’m newly diagnosed. I have positive for Zap 70 and CD 38 and Trisomy 12. My C...

annetxfan

•5 years ago

37 Replies

Managing Side Effects and More

The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the......

The following site is Cleveland Clinic's presentation. Please do not get hung u...

cllady01

Former Volunteer•5 years ago

9 Replies

14000 Members!

Looks like the site has just broken 14000! Nice to not be alone!

JustAGuy

•5 years ago

3 Replies

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Is CLL hereditary?

Hi all, I hope you all had a wonderful Christmas ( and to those who might not celebrate, my hope is simply that you had a wonderful day!). I'm coming up on my...

Hi all, I hope you all had a wonderful Christmas ( and to those who might not ce...

Hilomom

•5 years ago

14 Replies

Middle of Venetoclax and Gazyva combo MDA

We are still alive and kicking my fellow CLLers! Gazyva treatment ended Dec 2. Now on Venetoclax only. Just working hard these days. Labs still excellent. Just...

We are still alive and kicking my fellow CLLers! Gazyva treatment ended Dec 2. N...

LovecuresCLL

•5 years ago

17 Replies

Ighv unmutated

Just got bloodwork results and it shows ighv unmutated. Have not talked with doctor yet but I know prognosis is not good . Have been crying and heartbroken all...

Just got bloodwork results and it shows ighv unmutated. Have not talked with doc...

joann504

•5 years ago

12 Replies

WBC/ABSOLUTE LMPHS/LMPHS % HAVE UNACCOUNTABLY RETURNED TO NORMAL RANGE

Total WBC, and ABSOLUTE LYMPHOCYTE COUNT have returned to normal range from around 13,000 WBC/6,200 ABS LMPHS/ 45% LYMPHS to,...... NOW down to 10,200 WBC/...

Total WBC, and ABSOLUTE LYMPHOCYTE COUNT have returned to normal range from arou...

hutampico

•5 years ago

5 Replies

Scared !!!

Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time...

Hi. I went to my gyn last week for female issues and I had blood work drawn. M...

Madison1995

•5 years ago

40 Replies

imbruvica tendonitis

i have been 1 year on Imbruvica.I amgettinvg tendonitis too often: wrists, knees,ankles.Anyone experiencing that?

i have been 1 year on Imbruvica.I amgettinvg tendonitis too often: wrists, knees...

agatha123

•5 years ago

21 Replies

GP thinks I might have CLL Freaking Out

Back in March 2019 my bloodwork came back with high RBC, Hemoglobin, and Hematocrit due to side effects of testosterone therapy RBC6.11x10e6/uL4.14 – 5.80...

Back in March 2019 my bloodwork came back with high RBC, Hemoglobin, and Hematoc...

jhatx

•5 years ago

12 Replies

low dose naltrexone

Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for...

Hi - I am new to the forum, have had cll for over 10 years, still at stage zero....

Hidden

•5 years ago

8 Replies

Howard's Salad Dressing

If you have been diagnosed with CLL, but are not yet being treated, you might want to try my salad dressing which includes foods and spices that are reputed to...

If you have been diagnosed with CLL, but are not yet being treated, you might wa...

HowardR

•5 years ago

27 Replies

Anardana Powder (ground pomegranate seeds) for treating CLL?

Some spices from India may have been discovered by herbalists as effective ways to treat diseases. Turmeric is a well known as an anti-cancer spice, but...

Some spices from India may have been discovered by herbalists as effective ways ...

HowardR

•5 years ago

28 Replies

Should I See A Top Specialist

I'm diagnosed a year and a half ago, and not yet in treatment. My white count just reached 30,000, i seem to be more tired than usual daily, each week I feel...

I'm diagnosed a year and a half ago, and not yet in treatment. My white count j...

wizzard166

•5 years ago

43 Replies

Mom diagnosed with CLL

As per the flow cytometry report, it says atypical B- CLL with dim CD5 expression. WBC is at 16.5, hb had fell significantly, diagnosed as AIHA, hb seems to be...

As per the flow cytometry report, it says atypical B- CLL with dim CD5 expressio...

Almanac

•5 years ago

11 Replies

Bags under your eyes !

Having bags under my eyes when reaching the end of a working term and hitting Christmas and new year is hard. I know some of it’s fatigue and the CLL but...

Having bags under my eyes when reaching the end of a working term and hitting Ch...

Roseneath69

•5 years ago

4 Replies

I'm new here.

Hello, I live in Chicago, USA. I practice Macrobiotics for over 20 years. Was diagnosed with CLL in March of 2019. Would like to know more about holistic ways...

Hello, I live in Chicago, USA. I practice Macrobiotics for over 20 years. Was di...

Nelka

•5 years ago

37 Replies

Curious lumps

Hi all of you that responded to my question about painful lumps under the skin on thighs, arms and 1 in each breast. That gave me pause! I saw my oncologist...

Hi all of you that responded to my question about painful lumps under the skin o...

Italianpainter

•5 years ago

11 Replies

Filgrastim Raising Creatinine

Does anyone have significantly higher creatinine levels when taking figrastim?

profrich

•5 years ago

2 Replies

Ibrutinib and mouth ulcers

Hi everyone. Seasons Greetings! I’ve been on Ibrutinib for about a month. All going pretty well but I’ve got a very unpleasant sore mouth/mouth ulcers...has...

Hi everyone. Seasons Greetings! I’ve been on Ibrutinib for about a month. All g...

GD67

•5 years ago

18 Replies

Imbruvica and chemo

Has anyone had a secondary cancer while on Imbruvica? My oncologist is coordinating with Dr. Choi at UCSD. I have to start chemo for breast cancer 2nd week of...

Has anyone had a secondary cancer while on Imbruvica? My oncologist is coordinat...

migirlusa

•5 years ago

8 Replies

Understanding Immunophenotypic Analysis results

Just got my FISH results along with the Immunophenotypic results and I am trying to find good articles and publications that can better explain them. Here are...

Just got my FISH results along with the Immunophenotypic results and I am trying...

Bowie1957

•5 years ago

1 Reply

Greetings of the season!

Hello all — I wanted to share holiday wishes and a healthy new year with everyone on this group! Newly diagnosed in March, you’ve given me so much information...

Hello all — I wanted to share holiday wishes and a healthy new year with everyon...

Jcalichi

•5 years ago

7 Replies

Christmas Greetings

Wishing everyone a Merry Christmas and as healthy as possible 2020

Myrddin

•5 years ago

14 Replies

Update

Merry Christmas to everyone on here and also a quick update about my hubby cll finally went to heamotology yesterday and all went well his haemoglobin has...

Merry Christmas to everyone on here and also a quick update about my hubby cll f...

Nikkij81

•5 years ago

15 Replies

Prevention from Flu and Colds - anyone used this?

I was researching how to avoid germs on a flight and I came across mini personal air supplies. Has anyone used them and had success? They claim to operate by...

I was researching how to avoid germs on a flight and I came across mini personal...

PalmettoMiami

•5 years ago

6 Replies

Reading and Listening for Christmas Eve and the the 3rd night of Hanukkah

Hi, While waiting for SANTA... In my brief video review of my #4 of my top 10 CLL abstracts from ASCO 2019 I share the reassuring news that lowering or holding...

Hi, While waiting for SANTA... In my brief video review of my #4 of my top 10 CL...

bkoffman

CLL CURE Hero•5 years ago

6 Replies

Use of selinexor with ibrutinib to overcome ibrutinib resistance

New study involving the use of selinexor to overcome ibrutinib resistance is seen as a “breakthrough” by some people who are undoubtedly smarter than me....

New study involving the use of selinexor to overcome ibrutinib resistance is see...

Hidden

•5 years ago

1 Reply

Sending Seasons greetings to everyone

On behalf of CLL Support, we wish everyone a very Happy Christmas and a healthy New Year wherever you may be.

On behalf of CLL Support, we wish everyone a very Happy Christmas and a healthy ...

pkguk2

Partner•5 years ago

6 Replies

CLL, Gazyva, and the VA

I know "one size doesn't fit all", still I want to share that Gazyva treatments (5th recently) have been super effective in bringing my CLL under "control". My...

I know "one size doesn't fit all", still I want to share that Gazyva treatments ...

JimboW

•5 years ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2019

Diagnosed with CLL November 2019

Managing Side Effects and More

14000 Members!

Is CLL hereditary?

Middle of Venetoclax and Gazyva combo MDA

Ighv unmutated

WBC/ABSOLUTE LMPHS/LMPHS % HAVE UNACCOUNTABLY RETURNED TO NORMAL RANGE

Scared !!!

imbruvica tendonitis

GP thinks I might have CLL Freaking Out

low dose naltrexone

Howard's Salad Dressing

Anardana Powder (ground pomegranate seeds) for treating CLL?

Should I See A Top Specialist

Mom diagnosed with CLL

Bags under your eyes !

I'm new here.

Curious lumps

Filgrastim Raising Creatinine

Ibrutinib and mouth ulcers

Imbruvica and chemo

Understanding Immunophenotypic Analysis results

Greetings of the season!

Christmas Greetings

Update

Prevention from Flu and Colds - anyone used this?

Reading and Listening for Christmas Eve and the the 3rd night of Hanukkah

Use of selinexor with ibrutinib to overcome ibrutinib resistance

Sending Seasons greetings to everyone

CLL, Gazyva, and the VA

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