Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for June 2022

IMMATURE GRAN% ?

My CBC lab test for CLL is currently "normal" as in CLL remission. The only item flagged is IMMATURE GRAN% at 1.1 (Range 0.0-0.5). What does that indicate ?...

My CBC lab test for CLL is currently "normal" as in CLL remission. The only item...

janvog

•2 years ago

16 Replies

Weight gain before and after Imbruvica

Hello everybody, I've been on Imbruvica (140mg per day) for over two years now and during that period have gained 5kg (11lbs). My normal weight used to be...

Hello everybody, I've been on Imbruvica (140mg per day) for over two years now ...

Snoopy234

•2 years ago

5 Replies

Thoughts after Dame Deborah James

I was diagnosed in 2016 with CLL I had 17P deletion and 11q. Dame Deborah James was diagnosed with stage 4 bowel cancer the same year, today the news is full...

I was diagnosed in 2016 with CLL I had 17P deletion and 11q. Dame Deborah James...

peghip

•2 years ago

13 Replies

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Novel Ibrutinib Combo Shows High Response Rates in MCL, CLL

https://ascopubs.org/doi/abs/10.1200/JCO.2022.40.16_suppl.7520

whmk

•2 years ago

2 Replies

2 months on Calquence

Did it take longer than 2 months on Calquence for any of you to start seeing your ALC decline and your RBC increase (after that initial spike and fall)? I'm...

Did it take longer than 2 months on Calquence for any of you to start seeing you...

lpac

•2 years ago

6 Replies

CCL - Debilitating exhaustion

I was diagnosed with Non Hodgkin Lymphoma in April 2016. I have been taking Inbruvica for the past 3 years which has been successful. Today I find it hard most...

I was diagnosed with Non Hodgkin Lymphoma in April 2016. I have been taking Inbr...

PAgrandmom

•2 years ago

10 Replies

Newbie here, not sure if I belong

Hi everyone , I have clpd-nk, am I in the right community? If I am I have questions for all of you. I have had numerous blood draws starting with the discovery...

Hi everyone , I have clpd-nk, am I in the right community? If I am I have questi...

LaurelD

•2 years ago

5 Replies

Difficulty getting the 5th dose ( 2nd booster) of the COVID vaccine

Hi, If you wanted to get the 5th dose ( 2nd booster) of the COVID vaccine, and were denied or had difficulty, please contact me. CNN is looking for patients'...

Hi, If you wanted to get the 5th dose ( 2nd booster) of the COVID vaccine, and ...

bkoffman

CLL CURE Hero•2 years ago

1 Reply

How safe are we with Evusheld ?

I just got my Evusheld shots and hope to be able to rejoin some of the groups I give workshops to. They are vaccinated. When I asked my oncologist , her...

I just got my Evusheld shots and hope to be able to rejoin some of the groups I ...

angelikab

•2 years ago

11 Replies

CLL doctor in Phoenix, AZ

Could you recommend CLL specialist in Phoenix, AZ?

pragnar

•2 years ago

5 Replies

Richters Syndrome

Hi. My husband was just diagnosed with Richters Syndrome. Non-hodgkins. Anyone have any success stores? I’m looking for any information. Thank you.

Hi. My husband was just diagnosed with Richters Syndrome. Non-hodgkins. Anyone h...

Deserthope

•2 years ago

14 Replies

Worrying complacency...

I see that former Prime Minister John Major has referred to the avoidable infection of many people with HIV as a result of using infected blood product factor...

I see that former Prime Minister John Major has referred to the avoidable infect...

scarletnoir

•2 years ago

12 Replies

5th jab or not

Still can't decide on if to get 5th jab spring booster got one booked had my last in early February but was going to wait until around October for my next ....

Still can't decide on if to get 5th jab spring booster got one booked had my las...

cartwheels

•2 years ago

15 Replies

Booster Now or Later

I’m in California. Four covid vaccines zero antibodies. I’m debating, booster on Monday ( I am eligible) or wait until later summer when we are suppose to...

I’m in California. Four covid vaccines zero antibodies. I’m debating, booster o...

Davidcara

•2 years ago

27 Replies

Allergies and CLL

Hi. I’m still trying to figure out the lymphadenopathy getting worse but blood work, PET, and BMB are normal. Nothing alarming there except for three larger...

Hi. I’m still trying to figure out the lymphadenopathy getting worse but blood w...

schmooth97

•2 years ago

1 Reply

How about a party in the Caribbean tonight ?

How about a party in the Caribbean tonight ? We all deserve a night out to really party. We need and deserve it to support our therapy: Take me away from all...

How about a party in the Caribbean tonight ? We all deserve a night out to reall...

janvog

•2 years ago

20 Replies

Has anybody else developed Auto Immune Haemolytic Anaemia with their CLL?

I was diagnosed with CLL just over 3 years ago and gave been on W&W since December last year when I was admitted to hospital with severe anaemia, after many...

I was diagnosed with CLL just over 3 years ago and gave been on W&W since Decem...

Wen_dy

•2 years ago

25 Replies

Thank you

Thank you for all your lovely and reassuring comments. I will take on board all that you have said. X

Thank you for all your lovely and reassuring comments. I will take on board all ...

Wilcop

•2 years ago

1 Reply

Low Blood Sodium When On BTK Inhibitors

Wondering if anyone has developed low sodium levels while on Acalabrutinib, Ibrutinib, or Zanubrutinib. We are told to drink plenty of water while on these...

Wondering if anyone has developed low sodium levels while on Acalabrutinib, Ibru...

Davidcara

•2 years ago

7 Replies

Time to decide about leaving the initial NON TIME LIMITED Captivate trial because of potential toxicity

Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until...

Hi all, My husband is in the initial 164 trial group of Non Time limited Captiv...

I282much

•2 years ago

1 Reply

Newly diagnosed

Hello I have just been diagnosed with CLL - it scares me. It was found by a routine blood test and showed wbc of 15.9. Don’t know what to do or thinks

Hello I have just been diagnosed with CLL - it scares me. It was found by a rout...

Wilcop

•2 years ago

28 Replies

Ibrutinib to Acalabrutinib

My oncologist is switching me from IB to Calquence because I had some irregular heart activity. I have been on IB for 3.6 years and it has been very good for...

My oncologist is switching me from IB to Calquence because I had some irregular ...

steve_canada

•2 years ago

5 Replies

CLL & Covid

June 23, 2022 Good news; Husband finally tested Negative for Covid. Eleven days from positive. Still a bit tired. Also feeling thankful. Fairly mild case of...

June 23, 2022 Good news; Husband finally tested Negative for Covid. Eleven days ...

Tapps

•2 years ago

4 Replies

Encouraging results from venetoclax retreatment of patients with chronic lymphocytic leukemia after a previous venetoclax-based regimen

We've heard that re-treatment with venetoclax is possible. Per the attached image, here's some encouraging evidence showing a good response to a second...

We've heard that re-treatment with venetoclax is possible. Per the attached imag...

AussieNeil

Administrator•2 years ago

14 Replies

Just another new CLL Victim

Hi, I am a newly diagnosed male aged 61 living in Lincolnshire UK. I was given the devastating news in April by my GP following a routine blood test. I display...

Hi, I am a newly diagnosed male aged 61 living in Lincolnshire UK. I was given t...

Typhoon770

•2 years ago

44 Replies

Sore lymph node with Covid

Hi All I am currently Covid positive and now a lymph node in my neck has popped up and is quite sore. Has anyone else had that issue? I’m waiting on a call...

Hi All I am currently Covid positive and now a lymph node in my neck has poppe...

Jimmy_9

•2 years ago

6 Replies

Osteoporosis

I am just completing 1 year on Venetoclax having also had 6 x Rituximab. My most recent CT scan showed 2 fractured vertebrae which my GP thinks is probably...

I am just completing 1 year on Venetoclax having also had 6 x Rituximab. My most...

Dawson21

•2 years ago

9 Replies

Venetoclax and muscle/joint pain in just one area ?

I've seen a few posts from people experiencing joint/muscle pain while on Venetoclax and am wondering if this might be cause my shoulder problem. Started...

I've seen a few posts from people experiencing joint/muscle pain while on Veneto...

Moggn

•2 years ago

42 Replies

What happens after treatment?

I am approaching the time when I will start treatment. I have read many encouraging posts on here, so thank you all. What happens after though? A consultant...

I am approaching the time when I will start treatment. I have read many encourag...

lemonbutterfly

•2 years ago

15 Replies

First post

Hi all, my first post. I found out 3 weeks ago that I have CLL. I’m 39 and it was picked up in my bloods that I was having done due to experiencing chronic...

Hi all, my first post. I found out 3 weeks ago that I have CLL. I’m 39 and it w...

Macymoomoo1983

•2 years ago

50 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2022

IMMATURE GRAN% ?

Weight gain before and after Imbruvica

Thoughts after Dame Deborah James

Novel Ibrutinib Combo Shows High Response Rates in MCL, CLL

2 months on Calquence

CCL - Debilitating exhaustion

Newbie here, not sure if I belong

Difficulty getting the 5th dose ( 2nd booster) of the COVID vaccine

How safe are we with Evusheld ?

CLL doctor in Phoenix, AZ

Richters Syndrome

Worrying complacency...

5th jab or not

Booster Now or Later

Allergies and CLL

How about a party in the Caribbean tonight ?

Has anybody else developed Auto Immune Haemolytic Anaemia with their CLL?

Thank you

Low Blood Sodium When On BTK Inhibitors

Time to decide about leaving the initial NON TIME LIMITED Captivate trial because of potential toxicity

Newly diagnosed

Ibrutinib to Acalabrutinib

CLL & Covid

Encouraging results from venetoclax retreatment of patients with chronic lymphocytic leukemia after a previous venetoclax-based regimen

Just another new CLL Victim

Sore lymph node with Covid

Osteoporosis

Venetoclax and muscle/joint pain in just one area ?

What happens after treatment?

First post

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