Posts - CLL Support | HealthUnlocked

CLL Support

22,985 members • 39,471 posts

All posts for August 2024

Smudge cells

Is it better to have few or many smudge cells on the light microscopy test. My husband bounces back and forth between the two. Blood drawn every 3 months....

Is it better to have few or many smudge cells on the light microscopy test. My ...

Buffy-1

•3 hours ago

2 Replies

I had a full CT scan last Saturday, and I am waiting to hear if they found anything. Does anyone know what they are looking for?

I am scared, my Doctor is not very good. I am thinking of moving to another surgery where people have said it is much better than my Doctor. I am also awaiting...

I am scared, my Doctor is not very good. I am thinking of moving to another surg...

Curry777

•7 hours ago

7 Replies

Update.

Spoke with Dr Sidra my haematologist yesterday. My red cells are still being destroyed more rapidly than they are replenishing. He has reduced my Imber from...

Spoke with Dr Sidra my haematologist yesterday. My red cells are still being des...

Jacksc06

•8 hours ago

5 Replies

Want to take advantage of all our features? Just log in!

6 weeks zanu

it’s been six weeks or so and in doing great! WBC is still pushing 300k …. Energy is at 90%. Occasional diarrhea , bruises and sores in mouth. All very...

it’s been six weeks or so and in doing great! WBC is still pushing 300k …. Ener...

Nana1961

•14 hours ago

Be the first to reply

All lymph nodes are gone but WBC are very high.

Hi everyone I was diagnosed with CLL in September 2021 at age 43 with elevated white blood cells of 17000, and I was very stressed. I lost a lot of patience...

Hi everyone I was diagnosed with CLL in September 2021 at age 43 with elevated ...

Karate

•1 day ago

6 Replies

SARS-CoV-2 mRNA vaccination exposes progressive adaptive immune dysfunction in patients with chronic lymphocytic leukemia

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9810225/#:~:text=Multiple%20reports%20indicate%20diminished%20immune,na%C3%AFve%20patients%20remain%20largely%20unk

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9810225/#:~:text=Multiple%20reports...

zaax

•1 day ago

8 Replies

New COVID Available Next Week in US

https://www.cnbc.com/2024/08/22/covid-vaccines-fda-approves-pfizer-moderna-updated-kppoint2-shots.html

https://www.cnbc.com/2024/08/22/covid-vaccines-fda-approves-pfizer-moderna-updat...

PennyLane2024

•2 days ago

1 Reply

expired Ibrutinib

Hello. I’ve been on Ibrutinib 140mg/day since 2015. My health provider recently started only prescribing one month worth at a time instead of the usual three...

Hello. I’ve been on Ibrutinib 140mg/day since 2015. My health provider recently ...

Refuashleima

•2 days ago

5 Replies

Low neutrophils

Hey just got back latest blood work lymphocytes hasn't changed much but my neutrophils are pretty low ..is this common with CLL and what does it cause or mean...

Hey just got back latest blood work lymphocytes hasn't changed much but my neutr...

CountryHarbour

•2 days ago

5 Replies

CAR-T and IG weekly injections

I am nearly 9 years into CLL with TP53 deletion and unmutated IGHV. I am starting Breyanzi CAR-T therapy with lymphodepletion this week and CAR-T cell...

I am nearly 9 years into CLL with TP53 deletion and unmutated IGHV. I am start...

mnmnewtons

•2 days ago

2 Replies

O&V Aciclovir and Warts Part 2

To this massive improvement Julian

TheFlyer

•2 days ago

1 Reply

Started O plus V a few weeks ago. i have a question

I feel great after a few infusions and am starting pills next week. My bloodwork was normal for the first time in 10 years. I seem to be nervous about...

I feel great after a few infusions and am starting pills next week. My bloodwor...

elm1

•3 days ago

27 Replies

ALC question

i have what seems to me a dumb question. I see lots of references to ALC in CLL posts. In reviewing my lab results I don’t see any results for ALC. can someone...

i have what seems to me a dumb question. I see lots of references to ALC in CLL ...

Lind29

•3 days ago

5 Replies

Covid in the house

I have just started Zanubrutinib 3 months ago and I don't want to pause it at this point, but there is covid in my house and I'm worried I might get it. Are...

I have just started Zanubrutinib 3 months ago and I don't want to pause it at th...

johnliston

•4 days ago

4 Replies

Richter's and Novel Treatments/Combinations

We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a...

We've had a few members post about Richter's recently so I thought it might be t...

Jm954

Administrator•4 days ago

25 Replies

possible secondary diagnosis?

Hi all, Been a long time since ive logged in. Bf has been NED for almost 3yrs!! And he stopped taking imbruvica for the last 2 yrs or so. …Back in December...

Hi all, Been a long time since ive logged in. Bf has been NED for almost 3yrs!...

Beefcakesgirl

•5 days ago

4 Replies

High white blood cell count

I am on watch and wait. My GP did a blood test and it showed my wbc as 34.5 all it said was abnormal but expected. I’m not sure this is passed on to my...

I am on watch and wait. My GP did a blood test and it showed my wbc as 34.5 all ...

21Bedlam21

•5 days ago

19 Replies

Melanoma

I got a double whammy diagnosis 10 days ago. My CLL was diagnosed when getting a mole removed which turns out to be a malignant melanoma. Am going in for some...

I got a double whammy diagnosis 10 days ago. My CLL was diagnosed when getting a...

Mokoia

•6 days ago

1 Reply

Diagnosed with Richters

My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing...

My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Vene...

Louie_CC

•6 days ago

18 Replies

newly diagnosed

I’m newly diagnosed CLL. Very new! It’s been 3 days! 😀. My emotions are crazy, I go from depression, to being ok. I just need a support group. Also at the...

I’m newly diagnosed CLL. Very new! It’s been 3 days! 😀. My emotions are crazy, ...

Hidden

•6 days ago

47 Replies

Hello from Nova Scotia

Hey I often wonder if it's beneficial to only be 57 when diagnosed..I'll be 59 in March ..I read that CLL usually afflicts elderly people..had more blood work...

Hey I often wonder if it's beneficial to only be 57 when diagnosed..I'll be 59 i...

CountryHarbour

•6 days ago

11 Replies

Continued Journey

I’m now at day +52 from my BMT. Two weeks ago I started experiencing symptoms of Graft VS Host Disease. These were sores in the mouth and then a rash starting...

I’m now at day +52 from my BMT. Two weeks ago I started experiencing symptoms o...

FiArt12X

•6 days ago

8 Replies

Mind/Emotion/Body connection

Hi, folks. I haven't been on this site for quite awhile, as I was (justly or not) put off by so much negative reaction to the concept that there is, science...

Hi, folks. I haven't been on this site for quite awhile, as I was (justly or not...

ybird

•6 days ago

10 Replies

Apparent PD on Ven

Hi I had 3 rounds FCR in Winter 2018 stopped for Neutropenia. My doc did NO testing for mrd or even flow. Ignorance was bliss til release 2 years......

Hi I had 3 rounds FCR in Winter 2018 stopped for Neutropenia. My doc did NO ...

skipro

•6 days ago

4 Replies

Acalabrutnib

I have read all about people talking about side effects ranging from fatigue, headache, diarrhea and other maladies. I just started taking acalabrutnib two...

I have read all about people talking about side effects ranging from fatigue, he...

1reb

•6 days ago

6 Replies

Amazing results from Brukinsa

I was diagnosed in 2020 with CLL/SLL. I had a 6.3 cm lymph node excised for biopsy. Following diagnosis I underwent radiation treatments to my axilla and...

I was diagnosed in 2020 with CLL/SLL. I had a 6.3 cm lymph node excised for biop...

akirsch973

•7 days ago

9 Replies

When to take Medication

My problem is..... I take loads of different meds for CLL & IPF also for gout, diabetes and heart. They all have side effects I know, but recently I have been...

My problem is..... I take loads of different meds for CLL & IPF also for gout, ...

Suzie42

•7 days ago

17 Replies

Obinutuzumab and Venetoclax update

Hi All I started on the 9th of July and just commenced the start of Cycle 2. Initially I was focused on have some sort of reaction to the infusion but...

Hi All I started on the 9th of July and just commenced the start of Cycle 2. I...

TheFlyer

•7 days ago

21 Replies

Spirulina

I bought a big bag of this to add to my breakfast smoothie (strawberries, raw broccoli, nuts, flaxseed), been enjoying it then read may be good or bad as it...

I bought a big bag of this to add to my breakfast smoothie (strawberries, raw br...

Research123

•7 days ago

8 Replies

Benzodiazepine and CLL

Has there been any studies or research that shows Benzodiazepine (Ativan) to be the cause of CLL ?

Has there been any studies or research that shows Benzodiazepine (Ativan) to ...

Sillysand

•8 days ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2024

Smudge cells

I had a full CT scan last Saturday, and I am waiting to hear if they found anything. Does anyone know what they are looking for?

Update.

6 weeks zanu

All lymph nodes are gone but WBC are very high.

SARS-CoV-2 mRNA vaccination exposes progressive adaptive immune dysfunction in patients with chronic lymphocytic leukemia

New COVID Available Next Week in US

expired Ibrutinib

Low neutrophils

CAR-T and IG weekly injections

O&V Aciclovir and Warts Part 2

Started O plus V a few weeks ago. i have a question

ALC question

Covid in the house

Richter's and Novel Treatments/Combinations

possible secondary diagnosis?

High white blood cell count

Melanoma

Diagnosed with Richters

newly diagnosed

Hello from Nova Scotia

Continued Journey

Mind/Emotion/Body connection

Apparent PD on Ven

Acalabrutnib

Amazing results from Brukinsa

When to take Medication

Obinutuzumab and Venetoclax update

Spirulina

Benzodiazepine and CLL

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive