Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for April 2021

Are you a vaccinated CLL patient who got covid infection anyway?

On April 29th 2021, I saw my hematologist. He told me that CLL patients are more seriously affected by covid infections and that the vaccines don't work as...

On April 29th 2021, I saw my hematologist. He told me that CLL patients are mor...

Bobsterguy

•4 years ago

28 Replies

Moral dilema.

Is anyone, living with a co-cohabitant who has decided not to take the Lateral Flow Home Test. (A decision I absolutely respect,) but how best to deal with...

Is anyone, living with a co-cohabitant who has decided not to take the Lateral ...

Vindicatrix

•4 years ago

25 Replies

Stopping medication temporarily

should I stop taking ibrutinib before a colonoscopy as I believe it thins the blood.

should I stop taking ibrutinib before a colonoscopy as I believe it thins the bl...

FranceMary

•4 years ago

9 Replies

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Vaccine Efficacy in Blood Cancer Patients

I read an article on a BBC news web-site that stated that vaccine efficacy for patients with blood cancers give protection at about 9-13% after fist jab and...

I read an article on a BBC news web-site that stated that vaccine efficacy for p...

Grembold

•4 years ago

6 Replies

My Covid Antibodies Test Result

Hi, does anybody know if :- 1. My 2 jabs have been a complete waste of time or, 2. There is something there and catching Covid would result in less severe...

Hi, does anybody know if :- 1. My 2 jabs have been a complete waste of time or,...

FarmerJacks

•4 years ago

7 Replies

2nd vaccination

Had 2nd jab yesterday and feel ok apart from a bruised feeling in my arm. After my first vaccination I noticed that my raised lymph nodes in my neck reduced in...

Had 2nd jab yesterday and feel ok apart from a bruised feeling in my arm. After ...

kitchengardener2

•4 years ago

3 Replies

Immunity question

Sorry my question was after vaccination not vacation!

robertsw

•4 years ago

5 Replies

Ibrutinib combinations in CLL therapy: scientific rationale and clinical results

From Blood Cancer Journal 29th April 2021 Four strategies have been tested in recent years with combinations of ibrutinib with immunotherapy,...

From Blood Cancer Journal 29th April 2021 Four strategies have been tested in re...

Jm954

Administrator•4 years ago

14 Replies

Is it-safe-to-get-1-covid-19-vaccine-now-and-another-later

Interesting article on this topic. Says yes, it’s safe. Though it notes a disclaimer that no studies on that topic question, so it makes me wonder if it...

Interesting article on this topic. Says yes, it’s safe. Though it notes a di...

Pin57

•4 years ago

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CLL and high covid vaccine failure rates.

Hi all, I just saw an article on the news stating that patients with CLL have a high covid vaccine failure rate. It stated that we simply don’t make or stop...

Hi all, I just saw an article on the news stating that patients with CLL have a ...

dianejoyce

•4 years ago

7 Replies

Painful lymph node under armpit.

Hi. Last Friday I had my second Covid jab, but the day after a lymph node the size of a tennis ball appeared under my right armpit (the same side as the jab)...

Hi. Last Friday I had my second Covid jab, but the day after a lymph node the si...

ChuckyB

•4 years ago

10 Replies

prophylactic Drugs and ibrutinib

Hi friends, the doctor has prescribed Trimethoprim ,Allopurinol, and Valasiklovir ,Flukonazol, drugs for my father along with ibrutinib . Does anyone have any...

Hi friends, the doctor has prescribed Trimethoprim ,Allopurinol, and Valasiklov...

Elnaazz

•4 years ago

8 Replies

Has anyone experienced prolonged reaction to COVID 19 vaccine?

I'm wondering if anyone else has experienced prolonged reactions to COVID 19 vaccine? It has been 7 days since my 2nd dose of Moderna and I am still having...

I'm wondering if anyone else has experienced prolonged reactions to COVID 19 vac...

ANTIQUEHUNTER

•4 years ago

5 Replies

High IgM meaning ?

My IgM is always very 715 (44-209). What does that mean ? IgA and IgG always normal. CBC near normal. CMP all normal range.

My IgM is always very 715 (44-209). What does that mean ? IgA and IgG alw...

janvog

•4 years ago

9 Replies

Lateral Flow Covid Home Tests

Hi all, does anyone know the current thinking on these tests with regard to CLL. Is there any value, or downsides to us taking them.? Regards Ron

Hi all, does anyone know the current thinking on these tests with regard to CLL....

Vindicatrix

•4 years ago

13 Replies

What’s wrong with my account

The ability to reply to post has been turned off as I changed my phone How can I turn it back on please

The ability to reply to post has been turned off as I changed my phone How can ...

Altindal22

•4 years ago

1 Reply

What is best Covid vaccine

Hi all, I was diagnosed Dec 2020 with CLL, in wait and see period. Going through and getting all the vaccines up to date and wondering about the covid shot and...

Hi all, I was diagnosed Dec 2020 with CLL, in wait and see period. Going through...

Blessed4life

•4 years ago

4 Replies

Venetoclax

When add venetoclax to Ibrutinib in Cll Treatment

Chinhdo

•4 years ago

10 Replies

Venteclax and muscle joint pain

My wife has been on venteclax for 6 months and is experiencing muscle and shoulder pain Specialist advised 12 percent experienced as side effect in taking...

My wife has been on venteclax for 6 months and is experiencing muscle and should...

GL64

•4 years ago

3 Replies

Anyone with Monoclonal IgG here?

Dear Fellow Travelers When I was first diagnosed in 2015 my IgG was way above the normal high.Dr said it may be “reactive” (I assumed he meant reacting to...

Dear Fellow Travelers When I was first diagnosed in 2015 my IgG was way above t...

Seok

•4 years ago

8 Replies

Help make a drug to treat GvHD available to patients

You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood...

You can help make a drug to treat GvHD available to patients in Canada, regardle...

CLL_Canada_Group

•4 years ago

1 Reply

Polycythemia Vera diagnoses with their SLL/CLL?

Has anyone else received the Polycythemia Vera diagnoses with their SLL/CLL? I just received the secondary diagnosis and I am on Imbruvica but wondering how...

Has anyone else received the Polycythemia Vera diagnoses with their SLL/CLL? I j...

Bishopr

•4 years ago

5 Replies

Excruciating back pain

My wife have been in imbruvica for 3 months in the 420mg dose. She weighs 130 lbs and it was working fine. All of a sudden she got this excruciating back pain...

My wife have been in imbruvica for 3 months in the 420mg dose. She weighs 130 lb...

Maloncll

•4 years ago

36 Replies

Ibrutinib/Imbruvia and low antibody

The NYTimes article cited Imbruvica and low antibody reading, but it's information was sparse. Does Imbruvica reduce response or do people who need Imbruvica...

The NYTimes article cited Imbruvica and low antibody reading, but it's informati...

prichman

•4 years ago

5 Replies

New Study reveals vaccines not very effective for CLL and MM patients

Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic lymphocytic leukemia (CLL) and...

Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may ha...

naddude

•4 years ago

2 Replies

first day on ibruntinib

This is my husbands first dose today. what are some of the symptoms y’all had during the first week, month? Did it subside? I can read aside effects but...

This is my husbands first dose today. what are some of the symptoms y’all had ...

Nanatoo4

•4 years ago

32 Replies

CLL specialist in West Midlands Uk

Hi new on here as my husband has CLL. He is currently watch and wait and care of haematologist in the UK. We are going to ask for a referral to a CLL...

Hi new on here as my husband has CLL. He is currently watch and wait and care of...

Rugby19

•4 years ago

8 Replies

T Cell response to Pfizer’s Covid vaccine

Just thought I’d share a medical journal study on the T cell response to Pfizer’s Covid vaccine. This study doesn’t mention CLL or immune compromised responses...

Just thought I’d share a medical journal study on the T cell response to Pfizer’...

Twin21

•4 years ago

1 Reply

CLL responses to Pfizer’s Covid vaccines.

Just sharing an ASH medical journal study of CLL patient’s responses to the Pfizer Covid vaccine: Among patients with chronic lymphocytic leukemia (CLL, n =...

Just sharing an ASH medical journal study of CLL patient’s responses to the Pfiz...

Twin21

•4 years ago

5 Replies

Non-CLL Drugs - Any harmful towards the CLL fight?

So relatively new to the “CLL journey” on W&W, and the posted question certainly is one for a CLL specialist n maybe a GP. But I thought as a general...

So relatively new to the “CLL journey” on W&W, and the posted question certainly...

Pin57

•4 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2021

Are you a vaccinated CLL patient who got covid infection anyway?

Moral dilema.

Stopping medication temporarily

Vaccine Efficacy in Blood Cancer Patients

My Covid Antibodies Test Result

2nd vaccination

Immunity question

Ibrutinib combinations in CLL therapy: scientific rationale and clinical results

Is it-safe-to-get-1-covid-19-vaccine-now-and-another-later

CLL and high covid vaccine failure rates.

Painful lymph node under armpit.

prophylactic Drugs and ibrutinib

Has anyone experienced prolonged reaction to COVID 19 vaccine?

High IgM meaning ?

Lateral Flow Covid Home Tests

What’s wrong with my account

What is best Covid vaccine

Venetoclax

Venteclax and muscle joint pain

Anyone with Monoclonal IgG here?

Help make a drug to treat GvHD available to patients

Polycythemia Vera diagnoses with their SLL/CLL?

Excruciating back pain

Ibrutinib/Imbruvia and low antibody

New Study reveals vaccines not very effective for CLL and MM patients

first day on ibruntinib

CLL specialist in West Midlands Uk

T Cell response to Pfizer’s Covid vaccine

CLL responses to Pfizer’s Covid vaccines.

Non-CLL Drugs - Any harmful towards the CLL fight?

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