Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for November 2016

Disappointing day...

As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this...

As you may know, my husband went through 6 treatments FCR ending December 2015 a...

jules_c

•8 years ago

17 Replies

How to prevent chest infections?

I am a 67 year old W and W er in the UK possibly looking at some form of treatment next year. I am otherwise fit with no other symptoms other than every time...

I am a 67 year old W and W er in the UK possibly looking at some form of treatme...

Clovelly

•8 years ago

19 Replies

Iss this time to start treatment???

Hi All, Diagnosed in April 2015 with ALC 132 and in yesterday's test ALC is 248. Is ALC is only indicator to determine time for treatment? Platelets are in...

Hi All, Diagnosed in April 2015 with ALC 132 and in yesterday's test ALC is 248....

AAli

•8 years ago

5 Replies

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‘It’s your fault you got cancer’: the blame game that doesn’t help anyone

'Culturally, we have very clear ideas about cancer: what someone with cancer looks like, how it must feel, and even what it says about those who get...

'Culturally, we have very clear ideas about cancer: what someone with cancer loo...

AussieNeil

Administrator•8 years ago

2 Replies

CT scan or not

I've been having some minor side pain in the last couple months, more of a discomfort than pain...I'd give it a 2 out a 1-10 scale. I thought it was a kidney...

I've been having some minor side pain in the last couple months, more of a disco...

garrick66

•8 years ago

18 Replies

Looking for Far Flung CLL Patients to Tell Their Story

Hello CLL friends: Can anyone here from Brazil, France, an Arabic speaking country, Spain, Hong Kong, Taiwan, Mexico, Austria, Argentina, and Portugal please...

Hello CLL friends: Can anyone here from Brazil, France, an Arabic speaking count...

andrewschorr

•8 years ago

10 Replies

Ibrutinib

I have met with CLL expert and heard that I am the first case he has ever known, of CLL forming brain lymphomas. My CLL, in every other respect is level,...

I have met with CLL expert and heard that I am the first case he has ever know...

perfecteverytime

•8 years ago

9 Replies

PAN Foundation has Reopened its CLL (chronic lymphocytic leukemia) Financial Assistance Fund

Friends, It is tough enough to have CLL, but for those of us on Medicare, the cost of some treatments can be prohibitive. Organizations such as LLS and PAN...

Friends, It is tough enough to have CLL, but for those of us on Medicare, the co...

bkoffman

CLL CURE Hero•8 years ago

5 Replies

Dr George Follows and your CLL questions

Dear CLL friends: I am so excited that ASH is in my new home city, San Diego later this week. And I am also excited we've got a great panel discussion lined up...

Dear CLL friends: I am so excited that ASH is in my new home city, San Diego lat...

andrewschorr

•8 years ago

5 Replies

fatigue and leg pain

70 year old male, diagnosed in September 2016 with CLL. Totally exhausted, night sweats, leg cramps etc. seems way too soon to be having symptoms. Also seeing...

70 year old male, diagnosed in September 2016 with CLL. Totally exhausted, night...

cemax

•8 years ago

14 Replies

How a mosquito bite led to paralysis — and turned this teacher's life upside down

From the LA Times - West Nile virus in California. ...Morris, 55, did not know she’d been bitten, but her body did. A small red welt rose on her skin, an...

From the LA Times - West Nile virus in California. ...Morris, 55, did not know...

marcyh

•8 years ago

7 Replies

One year from diagnosis/surgery/BR chemo start

We one year ago on Nov 12th..I had a doctor look at me and say "You have a lymphoma". He sent me to another doctor at the Cleveland Clinic. On Black Friday...

We one year ago on Nov 12th..I had a doctor look at me and say "You have a lymph...

momof12

•8 years ago

10 Replies

CLLSA Newsletter Winter 2016

The Winter 2016 Newsletter is now available from www.cllsupport.org.uk/article/cllsa-newsletter-winter-2016

The Winter 2016 Newsletter is now available from www.cllsupport.org.uk/article/c...

Myrddin

•8 years ago

1 Reply

Smart balaclava that would help athletes avoid chest infections in the depths of winter makes mask wearing look good!

'If you don't mind looking a bit like a Mortal Kombat character, a new electric balaclava would let you keep training like a champ in the cold while...

'If you don't mind looking a bit like a Mortal Kombat character, a new electric ...

AussieNeil

Administrator•8 years ago

7 Replies

Bendamustine and Rituximab

Hi, I will be starting BR on Dec. 2nd and would love to hear from those who have had this treatment...pros and cons. Anything I need to know? I had R-CHOP in...

Hi, I will be starting BR on Dec. 2nd and would love to hear from those who have...

emmiekay

•8 years ago

6 Replies

Sudden onset of weakness or speech disturbance? Seek urgent medical attention even if symptoms improve quickly. Stroke awareness.

'Anyone can have a mini stroke but it is more frequent in patients who have risk factors for blood vessel damage: old age, high blood pressure, diabetes,...

'Anyone can have a mini stroke but it is more frequent in patients who have risk...

AussieNeil

Administrator•8 years ago

3 Replies

Venetoclax

After 3 years, I'm failing ibrutinib. I will start Venetoclax on Monday. Any support out there? 17p

After 3 years, I'm failing ibrutinib. I will start Venetoclax on Monday. Any su...

jtaeross

•8 years ago

51 Replies

Ann

Hi i just found out that I my palette is 500 I'm a mum of 3 kid's is this hi

Annconnors

•8 years ago

2 Replies

Cll lymphocyte count.

Just wondering what others lymphocyte count is. My Dad had treatment at over 200 then over 400. Ibrutinib brought it down to about 20 tho had to come off it....

Just wondering what others lymphocyte count is. My Dad had treatment at over 200...

Fightingwithdad

•8 years ago

1 Reply

Amazing fighter.

Daughter of 92 year old man diagnosed cll aged 80. Two rounds of chemo..both times ended with pneumonia. On Ibrutinib trial..Ill again zero neutrophils. On...

Daughter of 92 year old man diagnosed cll aged 80. Two rounds of chemo..both tim...

Fightingwithdad

•8 years ago

9 Replies

How to Fight CLL

A recent message from an oncology nurse was so brilliant, I decided to build upon her theme. Please see the post (Sorry I cannot find link, but title was"To...

A recent message from an oncology nurse was so brilliant, I decided to build upo...

Davdow

•8 years ago

14 Replies

The Truth About Cancer encore

Ty Bollinger had several integrative and alternative doctors at a live symposium back in September. There is an encore presentation this Friday through Sunday...

Ty Bollinger had several integrative and alternative doctors at a live symposium...

Carrot_Top

•8 years ago

16 Replies

No Evidence of Aloe Vera Found in the Aloe Vera at Wal-Mart, CVS

'The aloe vera gel many Americans buy to soothe damaged skin contains no evidence of aloe vera at all. Samples of store-brand aloe gel purchased at...

'The aloe vera gel many Americans buy to soothe damaged skin contains no evidenc...

AussieNeil

Administrator•8 years ago

8 Replies

Sad

Hi Friends, Love reading all of your posts. Informative, helpful and inspirational. So thank you! I thought I'd be years away from treatment. Now they say it...

Hi Friends, Love reading all of your posts. Informative, helpful and inspiratio...

AM75

•8 years ago

38 Replies

Targeted therapy drugs could radically increase the costs of treatment

"The rising cost of cancer care is a serious concern," says Jagpreet Chhatwal, PhD, of the Massachusetts General Hospital based Institute for Technology...

"The rising cost of cancer care is a serious concern," says Jagpreet Chhatwal, P...

AussieNeil

Administrator•8 years ago

4 Replies

Microenvironment in CLL

Friends, Preparations are underway for the annual meeting of the American Society of Hematology, or ASH as it’s commonly referred. We’re scheduling interviews...

Friends, Preparations are underway for the annual meeting of the American Societ...

bkoffman

CLL CURE Hero•8 years ago

1 Reply

HI.

Hi. I'm Gina. I am an RN in the FL keys. I was diagnosed with CLL in 2011. I enjoy reading the posts. :) I am currently researching rso oil (from canibus)....

Hi. I'm Gina. I am an RN in the FL keys. I was diagnosed with CLL in 2011. I en...

GINABENAHUTCH

•8 years ago

10 Replies

How many here have Gilbert's Syndrome?

How many CLLers here have Gilbert's Syndrome? Does Gilbert's Syndrome have any bearing on treatment options? Some sources say that Gilbert's Syndrome is...

How many CLLers here have Gilbert's Syndrome? Does Gilbert's Syndrome have any b...

JustAGuy

•8 years ago

2 Replies

Our last line of defense against antibiotic-resistant bacteria is beginning to fail, says ECDC

'According to the Centers for Disease Control and Prevention (CDC) in the US, every year about two million people become infected with bacteria that are...

'According to the Centers for Disease Control and Prevention (CDC) in the US, ev...

AussieNeil

Administrator•8 years ago

4 Replies

CLL person - 1st post

I am a 72 year-old lady first diagnosed at 60 years old in 2004 with CLL and ITP. I was on watch and wait until 2009. I started on chemo and had only one...

I am a 72 year-old lady first diagnosed at 60 years old in 2004 with CLL and ITP...

chihuahua36

•8 years ago

13 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2016

Disappointing day...

How to prevent chest infections?

Iss this time to start treatment???

‘It’s your fault you got cancer’: the blame game that doesn’t help anyone

CT scan or not

Looking for Far Flung CLL Patients to Tell Their Story

Ibrutinib

PAN Foundation has Reopened its CLL (chronic lymphocytic leukemia) Financial Assistance Fund

Dr George Follows and your CLL questions

fatigue and leg pain

How a mosquito bite led to paralysis — and turned this teacher's life upside down

One year from diagnosis/surgery/BR chemo start

CLLSA Newsletter Winter 2016

Smart balaclava that would help athletes avoid chest infections in the depths of winter makes mask wearing look good!

Bendamustine and Rituximab

Sudden onset of weakness or speech disturbance? Seek urgent medical attention even if symptoms improve quickly. Stroke awareness.

Venetoclax

Ann

Cll lymphocyte count.

Amazing fighter.

How to Fight CLL

The Truth About Cancer encore

No Evidence of Aloe Vera Found in the Aloe Vera at Wal-Mart, CVS

Sad

Targeted therapy drugs could radically increase the costs of treatment

Microenvironment in CLL

HI.

How many here have Gilbert's Syndrome?

Our last line of defense against antibiotic-resistant bacteria is beginning to fail, says ECDC

CLL person - 1st post

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