Posts - CLL Support | HealthUnlocked

CLL Support

22,453 members • 38,591 posts

All posts for May 2015

Will your pharmacist soon be offering you maple syrup with your antibiotics?

This brief article from Canada's McGill University, describing how ordinary maple syrup bought from local Montreal markets has been found to synergistically...

This brief article from Canada's McGill University, describing how ordinary mapl...

AussieNeil

Administrator•9 years ago

2 Replies

LIVE ask the expert on Video tomorrow

IF you agree Dr. Nicole Lamanna from Columbia Univ. in New York City is a CLL expert and IF you feel there could be some new perspective news from the big ASCO...

IF you agree Dr. Nicole Lamanna from Columbia Univ. in New York City is a CLL ex...

andrewschorr

•9 years ago

Be the first to reply

New study shows that starting treatment early, before immune damage occurs, brings real clinical benefits

Having caught your attention, I must now 'fess up' and say that the study is about HIV, not CLL. You might wonder why a post about HIV on a CLL support site....

Having caught your attention, I must now 'fess up' and say that the study is abo...

AussieNeil

Administrator•9 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Side effects after Bendamustin & Mapthera

I had 4of 6 Bendamustin &Mapthera last at Feb 2014 because irregular heart beat Today enlarge lymph and night sweating the blood test are at normal except...

I had 4of 6 Bendamustin &Mapthera last at Feb 2014 because irregular heart beat ...

jacobbarnea

•9 years ago

5 Replies

Happy Birthday, JFK! 13 Of His Greatest Quotes

"Those who dare to fail miserably can achieve greatly." Happy birthday, Mr. President....

"Those who dare to fail miserably can achieve greatly." Happy birthday, Mr. Pre...

shazie

•9 years ago

Be the first to reply

HOLY WHITE COUNT!!

HI all, Well W&W is finally over (that wasnt very long) I started my clinical trial of iFCR and so far so good. Not noticing and side effects of the...

HI all, Well W&W is finally over (that wasnt very long) I started my clinical t...

enelson3

•9 years ago

8 Replies

BR + Idelalisib in RR. Data from ASCO and ASH 2015

http://cllsociety.org/2015/05/asco-2015-abstract-7011-long-term-follow-up-of-a-phase-ib-trial-of-idelalisib-in-combination-with-chemoimmunotherapy/ Thanks to...

http://cllsociety.org/2015/05/asco-2015-abstract-7011-long-term-follow-up-of-a-p...

Justasheet1

•9 years ago

1 Reply

Living in the here and now

10-minute video http://www.patientpower.info/video/dr-la-verne-abe-harris-i-live-in-the-here-and-now

10-minute video http://www.patientpower.info/video/dr-la-verne-abe-harris-i-live...

DrLV

•9 years ago

Be the first to reply

Any experience with Feraheme infusion? results?

I'm into year 4 of W&W. Last year I learned that my Iron was a little low and DR. Suggested that I take Ferrous Glucinate tabs. At that Time my HGB was at...

I'm into year 4 of W&W. Last year I learned that my Iron was a little low and DR...

Soflajoe

•9 years ago

5 Replies

Enlarged spleens and dehydration – A Cautionary Tale

There can be complications of enlarged spleens, that we don’t always think of… Last week I went down with a nasty tummy bug… Usual symptoms - stomach...

There can be complications of enlarged spleens, that we don’t always think of… ...

PaulaS

Volunteer•9 years ago

13 Replies

How to Find Safer Herbal Supplements

This is a bit old but is important to read if you live in US and buy supplements. Not sure how other countries monitor and regulate their supplements....

This is a bit old but is important to read if you live in US and buy supplements...

shazie

•9 years ago

2 Replies

Going off Ibrutinib: should we be worried?

Hi everyone. My husband was due to go in for a stem cell transplant this week but it has been delayed as he wasn't well on the day. Due to a theatre being...

Hi everyone. My husband was due to go in for a stem cell transplant this week bu...

MJN44

•9 years ago

6 Replies

My Personal Clinical Trial News and Travails from the James at OSU and My Take on IV versus Oral Therapies.

Friends I spent 11 hours at DFW (Dallas airport) on Monday on my way to see Dr. Byrd, and I am flying back there tomorrow and they are calling for more...

Friends I spent 11 hours at DFW (Dallas airport) on Monday on my way to see Dr....

bkoffman

CLL CURE Hero•9 years ago

2 Replies

University of Sydney Faculty of Medicine establishes Chair in Integrative Medicine

Be interesting to see what becomes of this... "The Faculty of Medicine at the University of Sydney has just announced A$1.3 of funding from Blackmores, the...

Be interesting to see what becomes of this... "The Faculty of Medicine at the Un...

AussieNeil

Administrator•9 years ago

Be the first to reply

20 Mindful Quotes

My favorite: “Our own worst enemy cannot harm us as much as our unwise thoughts. No one can help us as much as our own compassionate thoughts.” ~Buddha Go...

My favorite: “Our own worst enemy cannot harm us as much as our unwise thoughts....

shazie

•9 years ago

13 Replies

IVIG for bone marrow suppression?

Hi everyone Is IVIG useful when you are bone marrow suppression by FCR treatment or progression of CLL? Do anyone have such experience? Miee

Hi everyone Is IVIG useful when you are bone marrow suppression by FCR treatmen...

Miee

•9 years ago

2 Replies

Let’s stop the bullying of trainee doctors – for patients' sake

Australia's ABC Current Affairs program 'Four Corners', this week did an expose on bullying among surgeons and the devastating consequences this entrenched...

Australia's ABC Current Affairs program 'Four Corners', this week did an expose ...

AussieNeil

Administrator•9 years ago

1 Reply

participate in online study cll Aus

Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of Ibrutinib on PBS. The survey was asking about...

Hi everyone, I'm in Sydney, Australia and recently completed an anonymous pho...

Chrisfer

•9 years ago

12 Replies

Neupogen the first drug to gain FDA approval to treat radiation sickness

Those of us that have had severe neutropenia, either as a result of their CLL or from treatment for CLL and have been prescribed Neupogen to boost their...

Those of us that have had severe neutropenia, either as a result of their CLL or...

AussieNeil

Administrator•9 years ago

6 Replies

Dr. Wiestner on novel therapies and me on my lingering cold

Friends Our very thin CLL Society team (me, my wife, and a wonderful part time RN) is busy preparing for the ASCO (American Society of Clinical Oncology) 2015...

Friends Our very thin CLL Society team (me, my wife, and a wonderful part time R...

bkoffman

CLL CURE Hero•9 years ago

2 Replies

CLL and breast cancer

I am a 54 female w & w, diagnosed 1 1/2 years ago. I was recently DX with breast cancer, infitrating ductal carcinoma. Thankfully at an early stage but a...

I am a 54 female w & w, diagnosed 1 1/2 years ago. I was recently DX with brea...

zusanli

•9 years ago

13 Replies

It's all connected - Gut, Inflammation, the Immune System, and the Stress Response

"Human beings have a “symbiotic relationship” with gut microbiota. We provide them with a habitat and nutrition, while they confer beneficial effects on a...

"Human beings have a “symbiotic relationship” with gut microbiota. We provide th...

AussieNeil

Administrator•9 years ago

5 Replies

Pbox-15

I recall from about five years ago that there was some promising developments from research in Ireland regarding a drug they named Pbox-15. As nothing has...

I recall from about five years ago that there was some promising developments fr...

Sharastani

•9 years ago

1 Reply

DNR, DNAR, DNACPR, NFR. Confused what these acronyms mean? So are hospital staff. UK end of life directives are unethical says physician.

Turning the current 'Do not Resuscitate' process in hospitals upside down by using a Universal Form of Treatment Options (UTFO), enables hospital staff to...

Turning the current 'Do not Resuscitate' process in hospitals upside down by usi...

AussieNeil

Administrator•9 years ago

1 Reply

Happiness Is Good for Your Health

I don't think I am a happy person. As the matter of fact, I believe I am a pessimist and I question everything. In my last visit with my hematologist after a...

I don't think I am a happy person. As the matter of fact, I believe I am a pessi...

shazie

•9 years ago

5 Replies

Ask your questions of a CLL expert LIVE from ASCO

Dear CLL friends: While the big convention where blood cancers are discussed is the ASH (American Society of Hematology) meeting in early December, some...

Dear CLL friends: While the big convention where blood cancers are discussed is ...

andrewschorr

•9 years ago

1 Reply

early stage pains

I was told I had early stage cll about 6 months ago after gallbladder surgery. My wbc was high after surgery and they kept me in the hospital an extra 4 days...

I was told I had early stage cll about 6 months ago after gallbladder surgery. M...

Jess81

•9 years ago

9 Replies

CLL/Richter's "Game Show" Video

See one woman's story of disbelieving a CLL diagnosis and then having another shoe drop, Richter's transformation. It's quite a journey. One can laugh now, as...

See one woman's story of disbelieving a CLL diagnosis and then having another sh...

andrewschorr

•9 years ago

3 Replies

Beta 2 Microimmunoglobulin / sTK /IgVh /Cytogentics

Hi Seniors, None of my doctors advised mentioned tests to me. While on internet I study that these are very important to determine prognosis. Should I do on my...

Hi Seniors, None of my doctors advised mentioned tests to me. While on internet ...

AAli

•9 years ago

14 Replies

Genomic Medicine funding, Victoria Australia

Anyone have any idea what this means for CLLers?...

DebinOzinLondon

•9 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2015

Will your pharmacist soon be offering you maple syrup with your antibiotics?

LIVE ask the expert on Video tomorrow

New study shows that starting treatment early, before immune damage occurs, brings real clinical benefits

Side effects after Bendamustin & Mapthera

Happy Birthday, JFK! 13 Of His Greatest Quotes

HOLY WHITE COUNT!!

BR + Idelalisib in RR. Data from ASCO and ASH 2015

Living in the here and now

Any experience with Feraheme infusion? results?

Enlarged spleens and dehydration – A Cautionary Tale

How to Find Safer Herbal Supplements

Going off Ibrutinib: should we be worried?

My Personal Clinical Trial News and Travails from the James at OSU and My Take on IV versus Oral Therapies.

University of Sydney Faculty of Medicine establishes Chair in Integrative Medicine

20 Mindful Quotes

IVIG for bone marrow suppression?

Let’s stop the bullying of trainee doctors – for patients' sake

participate in online study cll Aus

Neupogen the first drug to gain FDA approval to treat radiation sickness

Dr. Wiestner on novel therapies and me on my lingering cold

CLL and breast cancer

It's all connected - Gut, Inflammation, the Immune System, and the Stress Response

Pbox-15

DNR, DNAR, DNACPR, NFR. Confused what these acronyms mean? So are hospital staff. UK end of life directives are unethical says physician.

Happiness Is Good for Your Health

Ask your questions of a CLL expert LIVE from ASCO

early stage pains

CLL/Richter's "Game Show" Video

Beta 2 Microimmunoglobulin / sTK /IgVh /Cytogentics

Genomic Medicine funding, Victoria Australia

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive