Posts - CLL Support | HealthUnlocked

Administrator•9 years ago

IF you agree Dr. Nicole Lamanna from Columbia Univ. in New York City is a CLL expert and IF you feel there could be some new perspective news from the big ASCO...

LIVE ask the expert on Video tomorrow

IF you agree Dr. Nicole Lamanna from Columbia Univ. in New York City is a CLL ex...

andrewschorr

•9 years ago

Having caught your attention, I must now 'fess up' and say that the study is about HIV, not CLL. You might wonder why a post about HIV on a CLL support site....

New study shows that starting treatment early, before immune damage occurs, brings real clinical benefits

Having caught your attention, I must now 'fess up' and say that the study is abo...

I had 4of 6 Bendamustin &Mapthera last at Feb 2014 because irregular heart beat Today enlarge lymph and night sweating the blood test are at normal except...

Administrator•9 years ago

7 Replies

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Side effects after Bendamustin & Mapthera

I had 4of 6 Bendamustin &Mapthera last at Feb 2014 because irregular heart beat ...

jacobbarnea

•9 years ago

"Those who dare to fail miserably can achieve greatly." Happy birthday, Mr. President....

Happy Birthday, JFK! 13 Of His Greatest Quotes

"Those who dare to fail miserably can achieve greatly." Happy birthday, Mr. Pre...

•9 years ago

HI all, Well W&W is finally over (that wasnt very long) I started my clinical trial of iFCR and so far so good. Not noticing and side effects of the...

HOLY WHITE COUNT!!

HI all, Well W&W is finally over (that wasnt very long) I started my clinical t...

enelson3

•9 years ago

8 Replies

BR + Idelalisib in RR. Data from ASCO and ASH 2015

http://cllsociety.org/2015/05/asco-2015-abstract-7011-long-term-follow-up-of-a-phase-ib-trial-of-idelalisib-in-combination-with-chemoimmunotherapy/ Thanks to...

http://cllsociety.org/2015/05/asco-2015-abstract-7011-long-term-follow-up-of-a-p...

Justasheet1

•9 years ago

10-minute video http://www.patientpower.info/video/dr-la-verne-abe-harris-i-live-in-the-here-and-now

Living in the here and now

10-minute video http://www.patientpower.info/video/dr-la-verne-abe-harris-i-live...

DrLV

•9 years ago

I'm into year 4 of W&W. Last year I learned that my Iron was a little low and DR. Suggested that I take Ferrous Glucinate tabs. At that Time my HGB was at...

Any experience with Feraheme infusion? results?

I'm into year 4 of W&W. Last year I learned that my Iron was a little low and DR...

Soflajoe

•9 years ago

There can be complications of enlarged spleens, that we don’t always think of… Last week I went down with a nasty tummy bug… Usual symptoms - stomach...

Enlarged spleens and dehydration – A Cautionary Tale

There can be complications of enlarged spleens, that we don’t always think of… ...

PaulaS

Volunteer•9 years ago

13 Replies

How to Find Safer Herbal Supplements

This is a bit old but is important to read if you live in US and buy supplements. Not sure how other countries monitor and regulate their supplements....

This is a bit old but is important to read if you live in US and buy supplements...

•9 years ago

Hi everyone. My husband was due to go in for a stem cell transplant this week but it has been delayed as he wasn't well on the day. Due to a theatre being...

Going off Ibrutinib: should we be worried?

Hi everyone. My husband was due to go in for a stem cell transplant this week bu...

MJN44

•9 years ago

6 Replies

My Personal Clinical Trial News and Travails from the James at OSU and My Take on IV versus Oral Therapies.

Friends I spent 11 hours at DFW (Dallas airport) on Monday on my way to see Dr. Byrd, and I am flying back there tomorrow and they are calling for more...

Friends I spent 11 hours at DFW (Dallas airport) on Monday on my way to see Dr....

bkoffman

CLL CURE Hero•9 years ago

Be interesting to see what becomes of this... "The Faculty of Medicine at the University of Sydney has just announced A$1.3 of funding from Blackmores, the...

University of Sydney Faculty of Medicine establishes Chair in Integrative Medicine

Be interesting to see what becomes of this... "The Faculty of Medicine at the Un...

Administrator•9 years ago

My favorite: “Our own worst enemy cannot harm us as much as our unwise thoughts. No one can help us as much as our own compassionate thoughts.” ~Buddha Go...

20 Mindful Quotes

My favorite: “Our own worst enemy cannot harm us as much as our unwise thoughts....

Hi everyone Is IVIG useful when you are bone marrow suppression by FCR treatment or progression of CLL? Do anyone have such experience? Miee

•9 years ago

13 Replies

IVIG for bone marrow suppression?

Hi everyone Is IVIG useful when you are bone marrow suppression by FCR treatmen...

Miee

•9 years ago

Australia's ABC Current Affairs program 'Four Corners', this week did an expose on bullying among surgeons and the devastating consequences this entrenched...

Let’s stop the bullying of trainee doctors – for patients' sake

Australia's ABC Current Affairs program 'Four Corners', this week did an expose ...

Administrator•9 years ago

Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of Ibrutinib on PBS. The survey was asking about...

participate in online study cll Aus

Hi everyone, I'm in Sydney, Australia and recently completed an anonymous pho...

Chrisfer

•10 years ago

12 Replies

Neupogen the first drug to gain FDA approval to treat radiation sickness

Those of us that have had severe neutropenia, either as a result of their CLL or from treatment for CLL and have been prescribed Neupogen to boost their...

Those of us that have had severe neutropenia, either as a result of their CLL or...

Friends Our very thin CLL Society team (me, my wife, and a wonderful part time RN) is busy preparing for the ASCO (American Society of Clinical Oncology) 2015...

Administrator•10 years ago

6 Replies

Dr. Wiestner on novel therapies and me on my lingering cold

Friends Our very thin CLL Society team (me, my wife, and a wonderful part time R...

bkoffman

CLL CURE Hero•10 years ago

I am a 54 female w & w, diagnosed 1 1/2 years ago. I was recently DX with breast cancer, infitrating ductal carcinoma. Thankfully at an early stage but a...

CLL and breast cancer

I am a 54 female w & w, diagnosed 1 1/2 years ago. I was recently DX with brea...

zusanli

•10 years ago

13 Replies

It's all connected - Gut, Inflammation, the Immune System, and the Stress Response

"Human beings have a “symbiotic relationship” with gut microbiota. We provide them with a habitat and nutrition, while they confer beneficial effects on a...

"Human beings have a “symbiotic relationship” with gut microbiota. We provide th...

Administrator•10 years ago

I recall from about five years ago that there was some promising developments from research in Ireland regarding a drug they named Pbox-15. As nothing has...

Pbox-15

I recall from about five years ago that there was some promising developments fr...

Sharastani

•10 years ago

Turning the current 'Do not Resuscitate' process in hospitals upside down by using a Universal Form of Treatment Options (UTFO), enables hospital staff to...

DNR, DNAR, DNACPR, NFR. Confused what these acronyms mean? So are hospital staff. UK end of life directives are unethical says physician.

Turning the current 'Do not Resuscitate' process in hospitals upside down by usi...

Administrator•10 years ago

I don't think I am a happy person. As the matter of fact, I believe I am a pessimist and I question everything. In my last visit with my hematologist after a...

Happiness Is Good for Your Health

I don't think I am a happy person. As the matter of fact, I believe I am a pessi...

•10 years ago

Dear CLL friends: While the big convention where blood cancers are discussed is the ASH (American Society of Hematology) meeting in early December, some...

Ask your questions of a CLL expert LIVE from ASCO

Dear CLL friends: While the big convention where blood cancers are discussed is ...

andrewschorr

•10 years ago