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All posts for December 2022

Zanabrutinib

Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay...

Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and t...

MovingForward4423

•2 years ago

23 Replies

Happy New Year

The boarding of flight 2023 has been announced ....Your luggage should only contain three best souvenirs from 2022 .... The bad and sad moments should be left...

The boarding of flight 2023 has been announced ....Your luggage should only cont...

kitchengardener2

•2 years ago

23 Replies

genetic test results

Hello CLL fellows and Specialists, Hematologists I want to share my experience here. We have been fortunate to meet Dr. Christen Chen at the Princes...

Hello CLL fellows and Specialists, Hematologists I want to share my experienc...

Sagarcanada

•2 years ago

5 Replies

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VnO treatment and bathroom issues

I am presently finishing up cycle 8 of my treatments and all is great except my bathroom issues. There are days when I go 15 times to the bathroom in 1 day....

I am presently finishing up cycle 8 of my treatments and all is great except my ...

BigHT

•2 years ago

31 Replies

low granulocytes

Happy New Year to all! A question for those experts, whose knowledge I greatly appreciate. I had my three month blood work during watch and wait today. All...

Happy New Year to all! A question for those experts, whose knowledge I greatly ...

Adante

•2 years ago

9 Replies

Shapper

very fortunate that it was totally covered

Beezerdmd

•2 years ago

7 Replies

Calaquence reduced dosage

I anyone on a reduced dosage of calaquence less than 100ml a day?

gymbunny1

•2 years ago

1 Reply

Persistent pancytopenia/ "LGL"????

Hey I haven't been on in a long time. We've been pretty fortunate on the CLL front (knock wood). My husband is coming up on nine years since enduring six...

Hey I haven't been on in a long time. We've been pretty fortunate on the CLL fr...

dwolden

•2 years ago

5 Replies

Body rash

For the last 5 weeks I have been under the weather started with a itchy rash then full on flu like symptoms,saw a doctor who said dermatitis and gave me...

For the last 5 weeks I have been under the weather started with a itchy rash the...

cartwheels

•2 years ago

55 Replies

CUVITRU SubQ injection side effects?

If you are on CUVITRU SubQ injection, I appreciate it if you share any side effects involved. I'm looking for real-life side effects and not the list from the...

If you are on CUVITRU SubQ injection, I appreciate it if you share any side effe...

sunsetssr

•2 years ago

11 Replies

2022 ASH Conference Report: Should MPN Patients Follow the Mediterranean Diet?

I am glad to see some work presented on the topic of diet at 2022 ASH… I personally embarked on this road 18 years ago when I was diagnosed with CLL, but there...

I am glad to see some work presented on the topic of diet at 2022 ASH… I persona...

Edalv

•2 years ago

16 Replies

Little nervous

Hi, my 6 years on the flair trial will be up in the next few months, I have been really lucky I have had no issues taking ibrutinib over the 6 years and I...

Hi, my 6 years on the flair trial will be up in the next few months, I have b...

stewie

•2 years ago

7 Replies

Zanubrutinib vs. Ibrutinib Patient Power Video by Dr. Jennifer Brown MD PHD

In this Patient Power video - Dr. Brown is very clear about the advantages of Zanubrutinib over Ibrutinib - especially for 17p and patients with heart risks....

In this Patient Power video - Dr. Brown is very clear about the advantages of Za...

lankisterguy

Volunteer•2 years ago

13 Replies

Can we get free COVID-19 rapid lateral flow tests from the NHS?

I asked my consultant, and he didn't know

zaax

•2 years ago

12 Replies

should I take Paxlovid?

After being very careful I have succumbed to COVID. My first symptoms were on Boxing Day I then took a test the following day so am 3 days in. my husband has...

After being very careful I have succumbed to COVID. My first symptoms were on B...

G-F-T

•2 years ago

60 Replies

COVID - finally caught up with me

After nearly 3 years of shielding, COVID caught up with me on boxing Day. It was a shock when the LFT draw a line almost instantaneously. I spoke to the...

After nearly 3 years of shielding, COVID caught up with me on boxing Day. It wa...

RobertCLL

•2 years ago

18 Replies

CLL and positive for Covid

Hi, I’m 62, have CLL and have been on active monitoring for 5 years. I developed cold symptoms and a cough today, and have just tested positive for Covid, for...

Hi, I’m 62, have CLL and have been on active monitoring for 5 years. I developed...

Smiley60

•2 years ago

9 Replies

Pain under left ribs

Hi all,I am on W&W for 2 years now since diagnosed and have started experiencing dull pain under my left ribs. It is more or less constant and I am wondering...

Hi all,I am on W&W for 2 years now since diagnosed and have started experiencing...

Titian72

•2 years ago

29 Replies

New MD Anderson Doctor...Dr. Jo Ishizawa

I have been going to MD Anderson since 1997, and my most recent doctor has been Dr. Philip Thompson. He is returning to Australia after the first of the year,...

I have been going to MD Anderson since 1997, and my most recent doctor has been ...

Lisa-1959

•2 years ago

13 Replies

Christmas wishes

I would just like to wish all a merry Christmas with family and friends. I would like also to thank all here for the support and kind words over the past year...

I would just like to wish all a merry Christmas with family and friends. I woul...

Dragonspen

•2 years ago

15 Replies

rower49

I want to wish everyone the best Christmas they can handle. Since starting treatment 3 months ago my WBC has gone from 140 to 82 same with my lymphocyte...

I want to wish everyone the best Christmas they can handle. Since starting trea...

rower49

•2 years ago

2 Replies

The Leukemia & Lymphoma Society - - COVID Updates: Where We Are and Where We Go From Here

COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips...

COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfO...

lankisterguy

Volunteer•2 years ago

2 Replies

Patient Power 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD

ASH Conference Coverage - 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD Associate Clinical Professor of Medicine...

ASH Conference Coverage - 2022 ASH Conference Report: Deep Dive into CLL Dec 14...

lankisterguy

Volunteer•2 years ago

2 Replies

CLL relapse

Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years...

Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62)....

Taupe7

•2 years ago

4 Replies

seniors flu shot

I am on Ibrutinib . I got my annual flu shot a few weeks ago .Was that okay to do that? Does doing this affect my treatment with CLL?...

I am on Ibrutinib . I got my annual flu shot a few weeks ago .Was that okay to d...

Dyba

•2 years ago

2 Replies

Weight Gain

I’m in the UK & new to the forum, I’ve been on Calquence for 2 years now & have put 28lbs on. I know it has increased my appetite & I’m really trying to...

I’m in the UK & new to the forum, I’ve been on Calquence for 2 years now & have ...

Sunkiss

•2 years ago

10 Replies

Update and seasons greetings.

Latest blood count Haemoglobin 134, White cell count 6.7 Platelets 231. The groin abscess seems to have responded to antibiotics. It turns out that the...

Latest blood count Haemoglobin 134, White cell count 6.7 Platelets 231. The gro...

Jacksc06

•2 years ago

10 Replies

IVIG and Illness

On my latest six month visit to the hematologist on December 8, I mentioned I had been sick for three weeks at that point, and had continuing trouble despite...

On my latest six month visit to the hematologist on December 8, I mentioned I h...

wizzard166

•2 years ago

10 Replies

Travel With CLL

TRAVEL WITH CLL Travel with CLL has come up on this site. Here are some travel tips my wife & I follow. My CLL: Diagnosed April 2019 with CLL type B...

TRAVEL WITH CLL Travel with CLL has come up on this site. Here are some travel ...

CCgroup

•2 years ago

19 Replies

Zanubrutinib to be considered by UK NICE

I realise that Zanubrutinib is a newish BTKi to the market, especially in the UK but if anyone (in or outside the UK) has any experience of this drug, good or...

I realise that Zanubrutinib is a newish BTKi to the market, especially in the UK...

Jm954

Administrator•2 years ago

24 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2022

Zanabrutinib

Happy New Year

genetic test results

VnO treatment and bathroom issues

low granulocytes

Shapper

Calaquence reduced dosage

Persistent pancytopenia/ "LGL"????

Body rash

CUVITRU SubQ injection side effects?

2022 ASH Conference Report: Should MPN Patients Follow the Mediterranean Diet?

Little nervous

Zanubrutinib vs. Ibrutinib Patient Power Video by Dr. Jennifer Brown MD PHD

Can we get free COVID-19 rapid lateral flow tests from the NHS?

should I take Paxlovid?

COVID - finally caught up with me

CLL and positive for Covid

Pain under left ribs

New MD Anderson Doctor...Dr. Jo Ishizawa

Christmas wishes

rower49

The Leukemia & Lymphoma Society - - COVID Updates: Where We Are and Where We Go From Here

Patient Power 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD

CLL relapse

seniors flu shot

Weight Gain

Update and seasons greetings.

IVIG and Illness

Travel With CLL

Zanubrutinib to be considered by UK NICE

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