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CLL Support

22,532 members • 38,709 posts

All posts for March 2021

Pfizer Vaccine and Blood Cancer

Hi I'm in the UK and on the FLAIR trial for CLL. Kings College London recently reported that the Pfizer Covid vaccine is not very effective if a second shot is...

Hi I'm in the UK and on the FLAIR trial for CLL. Kings College London recently r...

Naboo

•3 years ago

13 Replies

Muscle loss

My dad has just recently been diagnosed with CLL. Over the past few months he has been losing a lot of muscle mass especially round his arms. Does anyone have...

My dad has just recently been diagnosed with CLL. Over the past few months he ha...

Tomaitch21

•3 years ago

7 Replies

B and R Treatment

Anyone in the community experiencing a tickling cough as a result of taking Bentamustine and Rituxin. I just started this protocol and would appreciate any...

Anyone in the community experiencing a tickling cough as a result of taking Bent...

Whalexx

•3 years ago

16 Replies

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Atrial fibrilation

After 2 years on imbrutanib have developed a fib. any one else have it and how was it treated?

After 2 years on imbrutanib have developed a fib. any one else have it and how w...

aberk

•3 years ago

8 Replies

Kidney stone

I’m on w&w for 12 years and am due to have lithotripsy to treat a kidney stone in my right kidney in 2 weeks. Has anyone else had this treatment

I’m on w&w for 12 years and am due to have lithotripsy to treat a kidney stone i...

Notmuchenergy

•3 years ago

4 Replies

Negative IgG antibodies from 1st shot of Pfizer’s Covid Vaccine

My twin sister has CLL and we finally got the results today from Boston Heart Lab’s semi quantitative IgG assay against the spike protein (code 648) and sadly...

My twin sister has CLL and we finally got the results today from Boston Heart La...

Twin21

•3 years ago

15 Replies

have any of you been vaccinated with astrazeneca?

Hi I got a proposal to vaccinate astrazeneca today. Only astrazeneca is available in my country. have any of you been vaccinated with astrazeneca. My doctor...

Hi I got a proposal to vaccinate astrazeneca today. Only astrazeneca is availabl...

BART4

•3 years ago

36 Replies

CLLAN/ALAN´s joint webinar on COVID-19 vaccination and immune challenges for leukemia - 11 Feb 2021

For those of you that are interested in the immune response in CLL. This is a joint webinar held on 11/2/2021 by CLL Advocates Network and the Acute Leukaemia...

For those of you that are interested in the immune response in CLL. This is a j...

Jm954

Administrator•3 years ago

1 Reply

Ibrutinib & Thyroid

Any other CLL peers on Ibrutinib who’ve had their thyroid removed feel as though you’re experiencing (moreso) extreme fatigue, lack of stamina, dizziness,...

Any other CLL peers on Ibrutinib who’ve had their thyroid removed feel as thoug...

Hidden

•3 years ago

2 Replies

Fatigue

I have been in remission from CLL for over a year now, but one symptom that has never changed in fact it’s getting worse is fatigue, I sleep well but most days...

I have been in remission from CLL for over a year now, but one symptom that has ...

dandelup

•3 years ago

13 Replies

Update re cataract surgery

Hi everyone, I hope this post finds you all safe and well. Thanks to you all who responded to my post re my upcoming eye surgery. I feel so much more confident...

Hi everyone, I hope this post finds you all safe and well. Thanks to you all who...

josephinef

•3 years ago

17 Replies

B12 Shot and CLL? Probiotics?

Forgive me if this has been asked previously, I did not see a way to search topics in this specific CLL group. Does anyone get B12 injections? It is my...

Forgive me if this has been asked previously, I did not see a way to search topi...

Tracibfine

•3 years ago

13 Replies

CLL and Covid vaccine

I’m wondering how many of you who have CLL have had anti-body tests after having Covid and what the results have been. I have major allergic reactions to many...

I’m wondering how many of you who have CLL have had anti-body tests after having...

Rivergoddess

•3 years ago

3 Replies

Watch and wait benefit?

My dad has just been diagnosed with CLL, he is 51 years old and relatively healthy, his health/fitness has deteriorated over the past 12 months to where he is...

My dad has just been diagnosed with CLL, he is 51 years old and relatively healt...

Tomaitch21

•3 years ago

5 Replies

Joint Pain with Acalabrutinib?

I am experiencing a great deal of pain in both wrists and have been on Acalabrutinib for five months, has anyone else experienced joint pain with this...

I am experiencing a great deal of pain in both wrists and have been on Acalabrut...

BallyB

•3 years ago

9 Replies

Telephone consultation

Dr Munro has just rung. White cells up a bit to 195 but not doubling in less than six months so not enough to cause concern. Anemia the same as last time. She...

Dr Munro has just rung. White cells up a bit to 195 but not doubling in less tha...

kitchengardener2

•3 years ago

3 Replies

Consultant telephone appointment this lunchtime.

So the day comes round again. I have a telephone consultation booked with my heamatologist at lunch time today. Tried hard not to worry but I am anxious as...

So the day comes round again. I have a telephone consultation booked with my hea...

kitchengardener2

•3 years ago

6 Replies

Are CLL patients are kept in priority for COVID vaccination?

My wife is living with CLL and she is 50 years old now and she is under w & w condition. We live in Ontario, Canada. She has to go to Asia in May 2021 for a...

My wife is living with CLL and she is 50 years old now and she is under w & w co...

Sagarcanada

•3 years ago

5 Replies

Littel things that improve Your quality of life

As my CLL Progresses my four trips a year to the periodontist our just keeping up and kind of losing ground In Trying various mouthwashes nothing really help...

As my CLL Progresses my four trips a year to the periodontist our just keeping u...

Tommays56

•3 years ago

4 Replies

No Antibodies after Vaccine

I had my first dose of the Astra Zeneca on January 30. 6 weeks later I used Testing for All's £49 antibody test kit. The results came back negative, I have no...

I had my first dose of the Astra Zeneca on January 30. 6 weeks later I used Test...

shornoff

•3 years ago

13 Replies

Post vaccination - High pulse, fever

Hi, post vaccination with Astrazenenca, my mother had heart pulse raised from 81 (pre vaccination) to 108 in half an hour post the shot. She developed fever...

Hi, post vaccination with Astrazenenca, my mother had heart pulse raised from 81...

Vikpp

•3 years ago

6 Replies

Vitamin C

Hi all, I have just read an old post which seems to suggest that Vitamin C is particularly bad for CLL sufferers. I eat a lot of foods with Vitamin C in them,...

Hi all, I have just read an old post which seems to suggest that Vitamin C is pa...

Vindicatrix

•3 years ago

13 Replies

Natco

I contacted the Indian pharmacies and no one can confirm if natco ibrunat has been approved or has license or quality certificates, I would like to make sure...

I contacted the Indian pharmacies and no one can confirm if natco ibrunat has b...

Sabri2021

•3 years ago

29 Replies

Has anyone with CLL watch & wait had the Covid vaccine with flu like symptoms?

Has anyone with CLL, watch & wait had the Covid vaccine with flu like side effects

Has anyone with CLL, watch & wait had the Covid vaccine with flu like side effec...

MichelleM61

•3 years ago

23 Replies

First line treatment failure. Transformation.

My father has been on the combination obinutuzamb/venetoclax first line treatment for CLL with aggressive features since March 2020, and had his one year CT...

My father has been on the combination obinutuzamb/venetoclax first line treatmen...

Phs2385

•3 years ago

6 Replies

Vaccine

Did anyone notice their lymph nodes swelling more or their WBC count rise after their vaccines and if you had any blood tests after the vaccine and noticed a...

Did anyone notice their lymph nodes swelling more or their WBC count rise after ...

Curling123

•3 years ago

17 Replies

Serum alkaline phosphatase

I am looking for some incite in to the results of a recent blood test. 23/9/2020 - Serum alkaline phosphatase = 120. Ref: (30.00 - 100.00) - Hospital 21/11/20...

I am looking for some incite in to the results of a recent blood test. 23/9/2020...

RobertCLL

•3 years ago

4 Replies

Nausea with FCR

Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible...

Hi all was just looking for some advice. I have just finished day 5 of my first ...

Daisy1993

•3 years ago

28 Replies

Nausea with venetoclax

I am doing V+O. Just started the venetoclax ramp up. I am taking the venetoclax at night with food but experiencing at lot of nausea with the venetoclax. Has...

I am doing V+O. Just started the venetoclax ramp up. I am taking the venetoclax...

jjaarons

•3 years ago

6 Replies

CLL&

Good morning 🤗 I just wondered if any one is under Luton and Dunstable hospital for CLL and what specialist under ? . 🤗

Good morning 🤗 I just wondered if any one is under Luton and Dunstable hospita...

Stavrou1

•3 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2021

Pfizer Vaccine and Blood Cancer

Muscle loss

B and R Treatment

Atrial fibrilation

Kidney stone

Negative IgG antibodies from 1st shot of Pfizer’s Covid Vaccine

have any of you been vaccinated with astrazeneca?

CLLAN/ALAN´s joint webinar on COVID-19 vaccination and immune challenges for leukemia - 11 Feb 2021

Ibrutinib & Thyroid

Fatigue

Update re cataract surgery

B12 Shot and CLL? Probiotics?

CLL and Covid vaccine

Watch and wait benefit?

Joint Pain with Acalabrutinib?

Telephone consultation

Consultant telephone appointment this lunchtime.

Are CLL patients are kept in priority for COVID vaccination?

Littel things that improve Your quality of life

No Antibodies after Vaccine

Post vaccination - High pulse, fever

Vitamin C

Natco

Has anyone with CLL watch & wait had the Covid vaccine with flu like symptoms?

First line treatment failure. Transformation.

Vaccine

Serum alkaline phosphatase

Nausea with FCR

Nausea with venetoclax

CLL&

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