Ibrutinib back ache

[cartwheels]

I have bet ibrutinib four years with great success and still doing well but in all that time I have suffered Lower back ache have controlled it with CBD oil and back stretching etc it's not as though it stops me but it's nearly always present have others had similar or is it just me

[Hidden]

Hi cartwheels Yes sacral area back ache is one issue along with rash, diarrhea, seborreic dermatitis, neuropathy and muscle soreness. The good news is like you I have found ways to cope. I also take Tylenol 1 hour before bed. Helps me get a good sleep. I read a per reviewed article on Tylenol and liver function. It states that the liver uses different metabolic pathways based on circadian rhythm. It found that the night cycle used a pathway that did not produce the enzyme responsible for liver damage. I use T/Gel by Neutrogena for seborreic dermatitis. It contains 1% coal tar as the active ingredient. Yuck but I use it 3x a week and bonus no skin rash. I haven’t used my prescription for rash since getting my scalp issues under control.

[morepork]

Yes my lumbar backache seems to be enhanced since Ibrutinib use but was present pre- medication as I have an L4-5 lumbar stenosis. Worse when lying so worst on waking.I blame it on heavy lifting during nursing days.Paracetamol (Tylenol) is also my go-to since we are not supposed to use Ibuprofen while on Ibrutinib.

[Mprm]

Since I started Ibrutinib a little over a year ago I have experienced exactly what you describe. In the morning I feel the ache and stiffness the most and do exercises which help, but I’m never without at least a hint of the pain and any kind of physical activity makes it worse. I walk several miles a day and do strenuous yard work in spite of the discomfort—feel every muscle at night.

I’m interested in whether you think the cbd oil helps and if you have found a particular brand you find effective.

[cartwheels]

Yes CBD definitely helped I use 10% CBD from access around £28 a bottle once a day spray under the tounge all are good as long as you get full spectrum