Sca 2 Vitamins /suplements

[simsydney]

I am 47 with Ataxia spinocerebellar sca 2. I would like to know if there are some vitamins could help me ? Thank you

[7151]

I was told all thé vitamine Bs and oméga 3Someone mentioned V K good luck .x

[simsydney in reply to 7151]

thank you

[wobblybee]

🙂 Click on the link..and scroll down to see advice about vitamins

ataxia.org/wp-content/uploa...

[7151 in reply to wobblybee]

Hi sorry i ve clicked on link and cant find anything on vitamines in fact i dont get anything at all ! Could you write briefly what we could take ? Thankyou

[wobblybee in reply to 7151]

🙂 Click on the link..

It takes you to another page where you are asked to click on the link if you want to continue..Click on this link

You need to scroll down the link..page 3 of 4

The link is to ATAXIA DIET..but scroll down

MICRONUTRIENTS RECOMMENDED FOR ADULTS

[7151 in reply to wobblybee]

Sorry i must be daft and cant find anything

[wobblybee in reply to 7151]

🙂 I just copied this from the link..it is easier to read if you can log on yourself

NUTRIENT

DOSAGE

CONSIDERATIONS

Vitamin B-12

100-400 mcg/day

Vitamin B12 malabsorption and vitamin B12 deficiency are more common in older adults.

Vitamin C

500-1,000 mg/day

Some people find sodium ascorbate and calcium ascorbate less irritating to the gastrointestinal tract than ascorbic acid.

Vitamin D-3

2,000 IU/day (50 mcg)

Vitamin D is required for optimal calcium absorption. Obesity tends to reduce bioavailability of vitamin D. Aging also tends to reduce the capacity to synthesize vitamin D. Staying indoors or the regular use of sunscreen blocks vitamin D synthesis.

Vitamin E

200 IU/d

Total sources should not exceed 400 IU/d

Vitamin K

Women: 90mcg /day; Men: 120 mcg/day

Adequate intake (AI) of vitamin K is essential in maintaining bone health.

Calcium

1,200 mg/day

Adequate intake (AI) from all sources for both Males/Females over50.To maximize absorption,take no more than 500 mg of elemental calcium at one time. Most calcium supplements should be taken with meals, although calcium citrate and calcium citrate malate can be taken anytime. 400 IU/d of D-3 will help insure calcium absorption.

Coenzyme Q-10

100-200 mg/day

CoenzymeQ10 is fat-soluble and is bestabsorbedwith

fats in a meal. Women who are pregnant or breast feeding should not take CoQ 10.

Magnesium (Mg)

100 mg/day

The metabolism of carbohydrates and fats to produce energy in the body requires numerous magnesium dependent chemical reactions. Mg may also be helpful for muscle cramps. Mg is best absorbed in aspartate or glutamate amino acid chelated form or alternatively in glutamate or lactate salts form. Mg oxide is less well absorbed.

Omega-3,6, 9

2,000 mg/day

Omega 3 (ALA, EPA, and DHA), 6 (GLA, linoleic acid), 9 Fatty Acids. These fatty acids require adequate Vitamin E.

Glucosamine sulfate only. Not glucosamine HCl or with Chondroitin sulfate. Take only after discussing with your physician

1,500 mg/day for relief or arthritis pain only in some patients

Three months of treatment is a sufficient period for the evaluation of efficacy; if there is no clinically significant decrease in osteoarthritic pain by this time the supplements should be discontinued. There is no evidence that glucosamine sulfate prevents osteoarthritis in healthy

persons or in persons with knee pain but normal radiographs. Avoid if allergic to shellfish!

Flavonoids

Eat fresh vegetables and fruits daily

Flavonoids may provide some neuroprotective benefits by helping to reduce inflammation in the body. Resveratrol in red wine also helps with inflammation. Drinking two glasses of chocolate skim milk/day may also help according to recent research from Spain.

[7151 in reply to wobblybee]

Thankyou very much In 2019 i was having v B12 injections ans felt great but the dr stoped it

I m seeing my neurologue at thé end of feb

I will tryto copie all this info

I ve sent it to me in my e mail and hope i can share with her

[wobblybee in reply to 7151]

🤔It’s interesting that you had improvement after B12 injections

Patients who are deficient in Vitamin B12 can sometimes have similar symptoms to Freidreich’s ataxia, hence it is important to test Vitamin B12 levels. This condition can be treated with Vitamin B12 supplements152. If a patient is diagnosed with ataxia with Vitamin B12 deficiency they should be referred to a haemotologist, who will administer treatment. Depending on severity of symptoms treatment can be parenteral or oral with cyanocobalamin or hydroxocobalamin. RecommendationsGrade1.Patients diagnosed with ataxia and Vitamin B12 deficiency should be treated with Vitamin B12.GPP

Copied from

ataxia.org.uk/healthcare-pr...

[simsydney]

Thank you so much

[Brommie]

have you tried Wellwoman vitamins? I take them and my husband takes Wellman, we really like them and they are inexpensive.