Hi everyone! 😊
3.5 million in the UK are affected by a rare condition, including 10,500 people with ataxia. That's 3.5 million unique stories to tell, or 1 in every 17 people...
Many rare conditions are lifelong and complex. As a result, people affected by rare conditions often need support and expertise from a wide range of healthcare professionals such as GPs, specialist hospital consultants, specialist nurses, physiotherapists, occupational therapists, speech and language therapists, and learning disability nurses. This can mean having multiple appointments across different settings and on different dates.
Our aim is to highlight how well-coordinated care can make a real difference in people’s quality of life.
Help make a difference! You can find out more and submit your story via our website here: lnkd.in/e624KyNZ
#ataxiauk #ataxia #rdd #rarediseaseday202
Survey for Rare Disease UK-for carers and patients with rare diseases.
2020..Possible treatment for Idiopathic Cerebellar Ataxia 
family members
Ways around a handicap
