100,000 GENOME PROJECT

[wobblybee]

🙂 Some of us took part in this project and wonder why we haven’t received any results..There can be a number of reasons and this link explains ..

genomicsengland.co.uk/initi...

[Tallguy101]

Hi, I also took part in this and also didn't hear anything. But when I last saw my neurologist, she saw on her computer that I had taken part and all of the tests so far had come back negative. In fact she said that 50% of Ataxia patients are undiagnosed. Maybe that's why you haven't heard anything?

[suzie44na]

thanks, I did get my results back, after two years wait.

[Hidden]

I have not heard anything but my follow up appointment isn’t until December 2022. So perhaps I might find out something then.