Please read my profile first. At my last semi-annual VA- ENT visit As I normally do, the Dr. cleaned the wax out of my ears using a vacuum device, this time the noise in my left ear was very loud and painful the vibrating was sever and this was the left ear that always was tender to touch but never painful to sound, it was always less in my hearing ability. anyway I told her it heart and was too loud and she continues and said this will only just take a little wile, the pain was becoming unbearable & I told her this but she continued say almost done, like it was no problem. when she was done she did the right ear with the same result but about 50% less painful. I told her this was not normal and went out side to the receptionist for my next appoint and I could not understand a word she was saying and I told her this and told her to send it to me.
This inability to understand continued for some time before I went in to a walk in clinic and seen an audiologist/GP dr. she tested me and referred me to the VA ENT and VA Audiologist . I refused to see the same ENT but went directly to the Audiology clinic when I could get their next opening a long wait, and meanwhile I was not able to understand the spoken word especially anything electronic, I had to put captions on the TV and the state provided me with a captioned phone that was just confusing as the delay and computer interpretations were mostly garbled and I just unplugged it and use the phone by holding it at varying angles & distances from my ear. That is how it remains today. the audiologist said she never heard about a problem like this in her 16 trs as an audiologist but her tests show I have a normal hearing loss AS WELL AS a problem with different frequencies that drop off the chart, so I am unable to hear certain sounds.
TWO DAYS ago I underwent an MRI of my head ( without contrast) and Ataxia, Atrophy and Aphasia came up, with many causes, but none directly related to Tinnitus ,So i went looking on the computer today and a study by Dr, such & such, was mention on your site I would like to know if anyone has any more information linking tinnitus to the MRI Ataxia etc. Thanks guys. USA2
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usa2
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Hi, I too have tinnitus and reduced hearing in one ear and cerebellar ataxia caused by gluten.
Both of these conditions came on about the same time about 10 years ago. In fact I was sent to the ENT department at local hospital before seeing a neurologist.
I have always had ear wax problems that was always removed by the water flushing system but was told never to have that again and ask for the suction method instead
Last time I too found this very loud and uncomfortable in good ear only but thankfully this seems to have passed.
For me where does the tinnitus against the cerebellum atrophy compare in effect of the balance and coordination?
No one is able to answer my questions. MRIs fail to show anything and I am waiting to have the gluten ataxia confirmed. But I know and nothing would persuade me to start eating gluten again.
Do you know what caused your tinnitus? I was told probably a virus! And what is Aphasia?
Am looking into a hearing aid to seeing if this would help with balance probs.
You are not alone in this, searching for answers, getting to the right professionals that have the answers, and all this with high anxiety, worry, frustration and all the time having this degeneration and progressing of symptoms.
Here in the UK the NHS is free but wheels turn so slowly and have resorted to paying privately many times out of desperation.
Good luck with your fight, hope you get answers soon.
I was given an NHS hearing aid a few years ago, both ears, as I had some higher frequency loss, in fact I'd always had it, just didn't realise. My point is, I found hearing better helped 'place' me in my surroundings. Knowing my feet had 'landed' also helped remove one worry. These hearing aids had a seashore sound that I could switch on, I followed instructions and my brain pretty much cancelled out the tinnitus after a while. Perhaps I was lucky. I have noticed tinnitus becomes loud and noticeable when under duress- slightly unwell etc. I have cerebellar ataxia. Sorry to hear your problems, usa2, best wishes with improving them. I recommend hearing aids if you think you might need them.
Yes, I'm finding they seem to be working mostly. but I keep forgetting to get them in every morning. Trying to do better as I want to change the way my brain responds. Let everybody know in a few mo's.. Thanks
You will need to google it. I tried 3 times to copy & paste but, FAILED. Youe asked how I got Tinitius, if you read my bio you will have a better idea. I will say we are both in the same boat but so far i'm handaling it. As to sleeping, no problem, I just have Alexia play the rosery every night and I always fall asleep at some ppoint, I never have any trouble sleeping since I started saying it. Good luck.
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