Wheel Chair

[KiwiBob]

I had to contact Sheffield Ataxia Centre as my condition rapidly deteriorated.

They told me to start using my wheel chair at work.

The drug I was on is no longer working. The dosage of the drug has been increased to see if it will reduce my symptoms .

My work have been very good. They have been putting everything is place to help me and keep me self.

If the drug does not reduce my symptoms, I will be looking at working part time next year.

[pinjem]

Long may you continue! I believe there are still (and I expect you know) there are grants to enable you to continue working? Have you accessed them?

[KiwiBob in reply to pinjem]

Not yet Just seeing where things are taking me fore now.

[bradbird]

Hi kiwi Bob sorry to hear about the drug you are using is less effective Was it to help with falling? As my wife has been prescribed a drug diaminpyridine to help her Unfortunately she hasn't been able to get hold of it due to a national shortage but it would be reassuring to hear if it works .Unfortunately I don't know what ataxia she has yet so it's debatable whether it will work

[wobblybee in reply to bradbird]

I asked my Neurologist about 4-AP (Ampyra) which is similar...this is prescribed for MS, but rarely for ataxia..I would have considered trying it..

[KiwiBob in reply to wobblybee]

I will ask about this drug when I am down at Sheffield Ataxia Centre in next year. Thanks

[KiwiBob in reply to bradbird]

The drug is Flunarizin. I made my life a lot easyer. I could do more before Ataxia kick in.

[wobblybee]

🙂 It’s good to know you have good support in your job...

[BlanketTime1]

sorry to hear that. i hope the new dosage helps.🤗

[Driven1]

Go and see another doctor for opinions on medication. Never accept one answer/solution.There may be other drugs you can try. Better than a wheelchair.

They are just fobbing you off with a quick response