Lions Mane: I have SCA7/r43 and been testing Lions... - Ataxia UK

Ataxia UK

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Lions Mane

Tommi_ profile image
4 Replies

I have SCA7/r43 and been testing Lions Mane about a decade now.'

For me it affects like this: after 3-4 days after the dose the balance gets very significally better, but unfortunately only for 2 days. I have been avoiding the constant usage. (scared about the increasing tolerance) Last years I take a capsule per week.

I have bought a couple of times a similar product in Mexico. It works even better, but last year I couldn't make my visit. Hopefully next year. Happened 2014 in Sonora Market in Mexico City that I managed to buy a bag of natural fungus like mushroom (very suspicious looking) which worked very well. Unfortunately I never found it again.

If anyone have any experiences about growing tolerance issue, please advice.

Also CBD for SCA7 would be very interesting. So far I had almost 0 benefit from CBD oil or other extracts.

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4 Replies
Arlo20 profile image
Arlo20

Hi Tommi can i ask where you can buy lions mane thanks

downsey100 profile image
downsey100

I ve tried lions mane in capsule form, it seemed not to help at all but i think that might change if i was able to buy a more natural source. The other thing is my ataxia is still undiagnosed. I tried cbd aswell,the strong 60% stuff, the results were diappointing. I think my body rejects most things artificial so i will try to find if i can get lionsmane in its grown state.

Piero profile image
Piero in reply todownsey100

I wonder if you could tell me where I could obtain 'Lions Mane' in capsule form or otherwise. Thanks . Piero

mpagganwala profile image
mpagganwala

I been using it for few months and it stopped working a month ago and I doubled it and no benefits. I think I’m going to give your steps a chance. Hopefully it will start working again

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