Lions Mane: I have SCA7/r43 and been testing Lions... - Ataxia UK

Ataxia UK

4,060 members4,619 posts

Lions Mane

Tommi_ profile image
4 Replies

I have SCA7/r43 and been testing Lions Mane about a decade now.'

For me it affects like this: after 3-4 days after the dose the balance gets very significally better, but unfortunately only for 2 days. I have been avoiding the constant usage. (scared about the increasing tolerance) Last years I take a capsule per week.

I have bought a couple of times a similar product in Mexico. It works even better, but last year I couldn't make my visit. Hopefully next year. Happened 2014 in Sonora Market in Mexico City that I managed to buy a bag of natural fungus like mushroom (very suspicious looking) which worked very well. Unfortunately I never found it again.

If anyone have any experiences about growing tolerance issue, please advice.

Also CBD for SCA7 would be very interesting. So far I had almost 0 benefit from CBD oil or other extracts.

Written by
Tommi_ profile image
Tommi_
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Arlo20 profile image
Arlo20

Hi Tommi can i ask where you can buy lions mane thanks

downsey100 profile image
downsey100

I ve tried lions mane in capsule form, it seemed not to help at all but i think that might change if i was able to buy a more natural source. The other thing is my ataxia is still undiagnosed. I tried cbd aswell,the strong 60% stuff, the results were diappointing. I think my body rejects most things artificial so i will try to find if i can get lionsmane in its grown state.

Piero profile image
Piero in reply to downsey100

I wonder if you could tell me where I could obtain 'Lions Mane' in capsule form or otherwise. Thanks . Piero

mpagganwala profile image
mpagganwala

I been using it for few months and it stopped working a month ago and I doubled it and no benefits. I think I’m going to give your steps a chance. Hopefully it will start working again

Not what you're looking for?

You may also like...

Host Defense, Lion's Mane Capsules

There is discussion going on about Lions Mane supplements in other groups (Facebook: NAF) where...

Stem Cell Therapy - Any Advice Appreciated

all the symptoms of Ataxia for the last 5 years. We have worked with a private and now NHS...

My first year with SCA7: Pilates, CBD oil and reading

to get better at everything. I now go 4 times a week and I feel better and stronger than I have in...

Another study supporting Niagen for Ataxia.

story short the study is saying what I have been saying for years. The fact that NIAGEN boosts...

How does your Ataxia symptoms vary

bound watching tv for about month before my Ataxia started to ease up. I was very tied and...