Standards of Clinical Care in Ataxia: 🙂 I just... - Ataxia UK

Ataxia UK

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Standards of Clinical Care in Ataxia

wobblybee profile image
wobblybee
•6 Replies

🙂 I just watched an interesting, easy to understand YouTube presentation on behalf of the National Ataxia Foundation.

It was given by Dr Theresa Zesiewicz.

It guides the patient through the process of examination, how diagnosis can be made, and much more..

This may be of particular interest to those people who are still waiting for their first appointment with a Neurologist.

To view..

Log onto YouTube

Search for..Standards of Clinical Care in Ataxia

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wobblybee
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6 Replies
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edfosho profile image
edfosho

Added to my 'Watch later' list, I'll check it out one evening this week. Thanks.

BlanketTime1 profile image
BlanketTime1

thanks for sharing the link!

Arlo20 profile image
Arlo20

Thanks for sharing will watch it.

Arlo20 profile image
Arlo20

Hi i watched it last night,glad to see more research is being done.I hope it helps next generation im 70 in a few weeks so a bit late for me.I've had a good life until diagnosed with cerebellum ataxia and all that goes with it 31/2years ago, professor Paula Giunti from qcuh who looks after me was one of the specialists in the credits.The only meds i get for it is gabapentin,i have low BP which causes bad balance problems lost count the amount of times I've fallen backwards i use a wheelchair far more often now.Take Care everyone.

timk profile image
timkVolunteer

Dear all,I run the Ataxia UK support group in South London. One of our members posts about a monthly talk that an ataxia-friendly doctor gives ( a different doctor each month) and it is really interesting hosted by the National Ataxia Foundation (NAF). The session is called Ask the Ataxia Expert and the link can be found on the NAF website. Here is the link for the next session in November. The link will also tell you about, and give you access to, the previous sessions: ataxia.org/asktheexpert/

Thank you. I am going to watch it now.

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