I believe I have gluten-sensitivity ataxia, but none of my three doctors (naturopath, general practitioner, kidney specialist) have heard of it, so am continuing a gluten-free diet. I had a test for gluten sensitivity a few years ago, which was negative; my naturopath told me the test showed I didn't have much in the way of other sensitivities either, and that the ones I obviously have are digestion-related. I think because I'd already been pretty much GF prior to the blood test, it was probably a false negative.
So for the last few years I've gone in and out of following a GF diet, sometimes eating lots of it. I've gotten sicker, and for the past couple of years have had episodes in some evenings, always awhile after eating dinner, of slurred speech and loss of balance. They last only about a half-hour to an hour, and are always followed by being "knocked out" (have to go to bed) for another hour. The episodes make my head feel very heavy, as if I can barely lift it. I haven't read anywhere of GF ataxia happening only after a late meal. Has this happened to anyone else on this forum?
Recently I found an article listing many more foods than the obvious ones as possible irritants, saying that some people's bodies identify them as having the same proteins as gluten. To me, that would explain why my diet has had to be so ridiculously restricted - I have digestive reactions to almost everything. I can safely eat only meat (no fish, nuts, beans, legumes or other proteins), and most, but not all, vegetables (no starchy ones, no fruit). Needles to say, I'm underweight, but have been skinny all my life, so that's okay. I feel way better on a GF diet, but it's tricky when I seem to react to practically all foods.
Anyway, mainly I just want to know if these symptoms are the same as anyone else's here? If they didn't always come on after eating, I'd get tested for some other type of ataxia, but there's no doubt in my mind that it is gluten ataxia. Also, while I was eating gluten off and on, the episodes were gradually getting worse.
Thank you, anyone, for comments!