Hope

[Arlo20]

Hi i hope this may give hope to someone,i have just been in uclh for 31 days,prior to admission i was falling a lot and my speech was awful they were marvelous done loads of tests they cant fix my ataxia but found my blood pulse was very low i was taken to st barts on saturday and a pacemaker fitted remarkable result speech a lot better i still walk with a stagger but dont need my rolletor indoors 1st time for 9 months, i feel a new man i had given up hope before now feel i can live with my ataxia on my own i hope this might help those suffering best regards roy

[wobblybee]

🙂 It’s good to hear someone has had an improvement. You must have had a frustrating 31 days but the outcome was worth it.

[Arlo20 in reply to wobblybee]

Yes was a good result i wish we could all get better still wobbly walking but ballance 100% better

[1940girl in reply to Arlo20]

So glad for you, lets hope the you stay this way for as long as possible, good luck with your journey

[Arlo20 in reply to 1940girl]

Thank for your kind words

[majajefferies]

So, did you have a preexisting heart condition you were not aware of?

[Arlo20 in reply to majajefferies]

Hi all my falls were backwards,i had one in october which ended being in local hospital for 8 days thèy could see i had low pulse but only gave me tablets,it was uclh that realised i needed a cardio specialist to look at it hence the pacemaker

[chelpet]

All the best. Wishing you well

[aburt449]

So pleased for u , it was worth wait 👍🏻

[BobR47]

That is amazing.

[Arlo20 in reply to BobR47]

Yes it is still can't walk perfect but i can live with that before was a nightmare

[Klutzy]

It's wonderful you have your hope back. Take care of yourself!