Firstly, would just like to say thanks to everyone on here for the helpful and sometimes silent support you have given me over the last year. Which has been terrible, frankly.
I have secondary progressive MS, but after a few bad falls earlier this year, was told I also had cerebellum ataxia. The neurologists advice was to carry on what I was doing and to steer clear of the ‘dirty drugs’.
But the reason I went to see her was because I couldn’t carry on with ‘what I was doing’ I couldn’t really do much and when I did do anything, I fell or exhausted myself.
My quality of life this year has been 0.
I am only 43, with two children - who have had to spend a lot more time with their father and his new gym bunny wife. (Obviously, I was traded in when my MS got worse- but that’s another story - u certainly find out who your true ‘friends’ are)
So I have struggled on, feeling like death tbh - even a tough ole scouse bird can’t thrive in the circumstance I found myself in. Up until a few weeks ago, I was housebound, (adult social care round here is non existent- they don’t want and don’t have the funds or morality in my experience) felt sick all the time, couldn’t walk one step unaided and was in immense pain Daily. As well as bladder issues, breathing issues, eye issues, regular choking and speech changes...and seizures that would knock me off my feet with uncontrollable shaking etc...I was ready to throw in the towel - because nothing I did made it any better and the daily grind of existing really had worn me out.
I happened upon some information about fibromyalgia and it sounded as horrific as the things I was experiencing. I watched a programme about motor neurone - she wasn’t in as bad a state as me... so in desperation I decided to try LDN.
I’m 4 days into taking it. I have walked upright for the first time this year. I have got my appetite back, my speech has improved, my cognitive function has all but returned, my son commented ‘I think that medicine is working y’know- you havnt shouted at the telly all week..’ out of the mouths of babes...
I’m not as mortally depressed, I have actually experienced sublime joy at being able to get the wheelie bins out!
The changes so far are small, but significant so far.
LDN is not toxic because only a tiny dose is needed-and the mechanism of how it works seems to me to be both logical and obvious, now I have researched it. It is also cheap, so medical advocates have no financial gain. Which is refreshing.
I would advocate that anyone struggling should investigate it further. It has been the knot in my rope and after 4 days, i am compelled to share to all of you wonderful brave people - who have been such a support to me .
Watch the whole of this if you are interested in finding out more
The LDN Story (A documentary about low dose naltrexone) - YouTube
Love n light to all x