Ataxia UK
2,640 members2,446 posts

Can you fix the holes in your roof!

Can you fix the holes in your roof!

This is an excellent video, and I urge folks to watch it especially the second half. This is the drum that I am beating until my fingers are raw. Treatment for complex diseases like ataxia are very likely available to many people, but it requires attacking the disease on multiple fronts. Tragically medicine today is focused on "fixing one hole" and not repairing all the holes. I believe beyond a shadow of a doubt that my regimen is fixing most of the holes in my roof and some of you CAN do the same!!

And here is a list of the interventions used in these patients:

ncbi.nlm.nih.gov/pmc/articl...

10 Replies
oldestnewest

What video?How is the list applicable? xx N

Reply

Hi Neta - Does the second picture with a link to a video not appear for you?

The list is relevant because the fundamental cellular issues that cause Alzheimer's Disease are similar to the cellular issues that cause most ataxias. As I said before some tragic types of ataxia are so severe that this type of intervention is not likely to be of much help, but for people with late onset and slow progression the theory presented in the video is most definitely applicable as are many of the interventions such as vitamin D, CoQ10, coconut oil, exercise, and diet. Those are all relevant to people with ataxia.

Reply

yes now I see the arrow on the second item. What are "tragic" types of ataxia?? Thanx 4 all your hard work N

Reply

Well I would say the junvenile onset of Friedreich's ataxia is truly devastating and tragic, but then any disease is "tragic" if it hits you personally. I just mean there are some neurological disorders that are more amenable to self-"treatment" than others based on the underlying condition. Sometimes there aren't just "holes in the roof" but rather the entire roof is missing.

Reply

Thanx again4 your response, N

Reply

Thank you for posting. As Hippocrates advocated - Let food be thy medicine and medicine be thy food :-)

The website for the Institute of Functional Medicine has a list of Practitioners - mostly in the States but some in the UK where there is the opportunity for the whole body to be considered.

ifm.org/find-a-practitioner/

Dr Datis Kharrazian covers things well in his book - Why Isn't My Brain Working ? He also has a website with Newsletters.

Scandalous that the B12 testing on the NHS does not include Homocysteine and MMA on a regular basis. If they are high in range it can indicate Low B12 at a cellular level. The regular B12 test comprises both bound and unbound B12 and only around 20% of the B12 in the blood is able to reach the cells where it is needed. The Active B12 Test is available privately at/through St Thomas's Hospital.

The brain has more receptors for T3 - the ACTIVE thyroid hormone - than any other part of the body - and yet very rarely tested on the NHS. Both thorough B12 testing and full Thyroid testing were mentioned in the presentation. Maybe these items stood out for me as I suffer with both issues :-)

naturalhealthworldwide.com/...

The above link takes you to the website created by Dr Sarah Myhill - where you can access Practitioners globally - still very new but something that will no doubt grow :-) Experienced patients also available.

1 like
Reply

Hi Marz - Thank you for the kind words! I will say that if you are interested in vitamin B12, I would encourage you to seek out the many links I have posted previously. I have extensively written and linked to research on vitamin B. I agree wholeheartedly that it is an exciting area that continues to evolve, and one that holds great promise, but also one fraught with dangers from self diagnosis and overdosing.

Here is a study that found a link for B6 to protective benefits in humans with PD but no link for B12:

ncbi.nlm.nih.gov/pubmed/263...

I realize PD is not ataxia, but very often the underlying cellular issues are similar.

1 like
Reply

Thank you for the link above :-)

Reply

Hi sunvox really helpful

Reply

I attended a couple of Prof. Dale Bredesen events 2-3 yrs ago. His book was published in 2016. He was also one of many interviewees in the 8 part Broken Brain series which was screened again online, free of charge, last week. Thiamine, particularly Benfothiamine, 600mg, was mentioned by Dr Isabella Wendtz.

brokenbrain.com

guidetoorganics.com.au/free...

healthtalksonline.com/event...

🖖🏻

1 like
Reply

You may also like...