Hoping for the best.Has anyone tried it ?
A person told me he had improvement with Nilotin... - Ataxia UK
A person told me he had improvement with Nilotinib(Tasigna) ? we are going to try it !
![kj555 profile image](https://images.hu-production.be/avatars/1602957e926db06fb5b7bf176751a340_small@2x_100x100.jpg)
Written by
![kj555 profile image](https://images.hu-production.be/avatars/1602957e926db06fb5b7bf176751a340_small@2x_100x100.jpg)
kj555
To view profiles and participate in discussions please or .
4 Replies
•
What s it? A drug or what? And describe what he had and what it did, if you can. Best, N
Hello, yes more information, please. My husband and son both have SCA6. My son, as yet, is symptom free. It would be good to have more details. Who prescribed it? How did you come across it? Best wishes 🌼🌸🌼
For whatever its worth, my neuro says its not appropriate for me. I asked him by email. But thanks....N
Not what you're looking for?
You may also like...
Should I try to find specific type of my ataxia or just live with it?
I was diagnosed in Oct 2012 with idiopathic CA. at the age of 45. My neurologist does not think...
As a person living with ataxia, what three improvements to your care would make a positive difference to your quality of life?
Ataxia UK is a member of an organisation called National Voices, a national coalition of health and...
in 2012 I had a massive bleed that caused a stroke, last year I was diagnosed with ataxia does it get better or worse,
I cannot use my left side my speech is always slurred more when I am tired I cannot write as I am...