A person told me he had improvement with Nilotin... - Ataxia UK

Ataxia UK

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A person told me he had improvement with Nilotinib(Tasigna) ? we are going to try it !

kj555 profile image
4 Replies

Hoping for the  best.Has anyone   tried it ?

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kj555
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neta profile image
neta

What s it? A drug or what? And describe what he had and what it did, if you can.   Best, N

neta profile image
neta in reply to neta

Yes its a cancer drug. I googled it so now I know. I have no experience but I repeat my questions. 

eileen200271 profile image
eileen200271

Hello, yes more information, please. My husband and son both have SCA6. My son, as yet, is symptom free. It would be good to have more details. Who prescribed it? How did you come across it? Best wishes 🌼🌸🌼

neta profile image
neta

For whatever its worth, my neuro says its not appropriate for me. I asked him by email. But thanks....N

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