A person told me he had improvement with Nilotin... - Ataxia UK

Ataxia UK

4,141 members4,725 posts

A person told me he had improvement with Nilotinib(Tasigna) ? we are going to try it !

kj555 profile image
4 Replies

Hoping for the  best.Has anyone   tried it ?

Written by
kj555 profile image
kj555
To view profiles and participate in discussions please or .
4 Replies
neta profile image
neta

What s it? A drug or what? And describe what he had and what it did, if you can.   Best, N

neta profile image
neta in reply toneta

Yes its a cancer drug. I googled it so now I know. I have no experience but I repeat my questions. 

eileen200271 profile image
eileen200271

Hello, yes more information, please. My husband and son both have SCA6. My son, as yet, is symptom free. It would be good to have more details. Who prescribed it? How did you come across it? Best wishes 🌼🌸🌼

neta profile image
neta

For whatever its worth, my neuro says its not appropriate for me. I asked him by email. But thanks....N

Not what you're looking for?

You may also like...

Should I try to find specific type of my ataxia or just live with it?

I was diagnosed in Oct 2012 with idiopathic CA. at the age of 45. My neurologist does not think...
jonbon profile image

Moderation team

See all
HarryB profile image
HarryBAdministrator
VE93 profile image
VE93Administrator
WendyBom profile image
WendyBomModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.