A person told me he had improvement with Nilotinib(Tasigna) ? we are going to try it !

[kj555]

Hoping for the  best.Has anyone   tried it ?

[neta]

What s it? A drug or what? And describe what he had and what it did, if you can.   Best, N

[neta in reply to neta]

Yes its a cancer drug. I googled it so now I know. I have no experience but I repeat my questions. 

[eileen200271]

Hello, yes more information, please. My husband and son both have SCA6. My son, as yet, is symptom free. It would be good to have more details. Who prescribed it? How did you come across it? Best wishes 🌼🌸🌼

[neta]

For whatever its worth, my neuro says its not appropriate for me. I asked him by email. But thanks....N