Awaiting diagnosis of ataxia for dad who is 74.

[joolst72]

Just looking for information about ataxia as we awaiting diagnosis.

[neta]

There is a lot around. I think Ataxia.UK has stuff. Also check out the Americans... Good luck. N

[tedjohnson]

Hi. Look up. Ataxia u k and they wilL be able to send you all the information and also they have a good helpline.   As it is a charity there is no charge but obviously they welcome any financial contributions to cover postage etc

Good luck.  Ted

[wobblybee]

Hi😊

As has been said, ataxia.org.uk is an invaluable starting point🙂  Plus, once the diagnosis is confirmed as Cerebellar ataxia, if you contact them you'll be sent an information pack, including a separate information booklet for your GP.  Generally speaking GPs have little to no knowledge about Cerebellar ataxia, so this would be especially useful.

Another site for information about types and symptoms etc. is  ataxia.org

You will find information on some sites is easier to understand for the lay person, it's just a case of browsing the sites.  But, until you know exactly what you're dealing with it can be confusing.😊xB

[february]

Dear Joolt72, Neta mentioned the "American" site to check out for information. I live in the US in the State of Michigan and there's the National Ataxia Foundation (NAF) which has a lot of good information, as well as Living With Ataxia, a site similar to this Health Unlocked site. My best to you and your dad...,;o)