Hi all. I have family members diagnosed with SCA6 my father-in-law was diagnosed in the late 1970's and passed away in 1987 at age 68. My husband was diagnosed 4 yrs ago at age 63; speech, swallowing and balance all effected. Memory varies from day to day. Our son, aged 41 was tested and had a positive result for SCA6 also, currently with no symptoms. I have mobility difficulties after 8 hip replacements - don't ask!!!LOL. Our GP and the Neuro consultant have been really good at providing the services required, SALT, physio, walking aids, etc. I am finding it really difficult in that my son does not want his dad to know about the diagnosis but I feel I am greaving for my man and my son. I also have 2 daughters who do not want testing because they have children of their own. Thank you for reading this and I wish you all peace in your lives. God Bless. X
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