Hello all, I've been w&w for 6 years and now have several bothersome nodes, severe fatigue and labs are indicating CLL progression. Due to my non-mutated status the doctors at MDA gave me the choice of ibrutinib, or a trial of ibrutinib w/ venetoclax. I opted for the ibrutinib alone and will start next week. As a preventative measure I started acyclovir and allopurinol this week to help avoid shingles and rising uric acid levels. I was just wondering if anyone could share their experience of the first few months on ibrutinib? Other than the fatigue I have been able to do most of the things I love to do and I'm wondering if there's a good chance that will continue during my first few months. The doctors said I may feel worse before I feel better and there is always a concern for tumorlysis. Would anyone be willing to share their experience?
Thanks in advance!