Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for December 2024

Brukinsa and Ciprofloxacin

I'm currently taking Brukinsa and was just prescribed Ciprofloxacin antibiotic for a UTI. Does anyone know if it's ok to take the Cipro while also taking the...

I'm currently taking Brukinsa and was just prescribed Ciprofloxacin antibiotic f...

MyCLLJourney

•18 days ago

3 Replies

Ivig Infusions

I have been receiving infusions of IVIG (immunoglobulin) on a monthly basis for many years for a immune deficiency disorder. I have noticed hair growth around...

I have been receiving infusions of IVIG (immunoglobulin) on a monthly basis for...

lizfuccillo

•18 days ago

1 Reply

Cordyceps Update

Well, I got my bloodwork done yesterday and my ALC continues to go down. It has dropped from 43.2 to 25.4 since starting using the Cordyceps in tea, and 9...

Well, I got my bloodwork done yesterday and my ALC continues to go down. It has ...

Stanandvan

•18 days ago

18 Replies

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Looking for CLL specialist

I was just diagnosed with Stage 0 CLL. I'm in the "Watch & Worry" stage - my dad died of complications from CLL in 1999; if I didnt know what he went through,...

I was just diagnosed with Stage 0 CLL. I'm in the "Watch & Worry" stage - my dad...

VanGoghLvr0401

•18 days ago

36 Replies

Starting 2025 with a mix of feelings.

It’s another year of “wait and watch,” but next year I’ll likely begin some kind of treatment, possibly in February. Despite my white blood cell count hitting...

It’s another year of “wait and watch,” but next year I’ll likely begin some kind...

holeinthespeaker

•18 days ago

14 Replies

Hello ,

I was preparing for the CarT study to be continued. I had my apheresis a few days ago, but I just learned by phone from the lead doctor that they are canceling...

I was preparing for the CarT study to be continued. I had my apheresis a few day...

Doremefasol

•18 days ago

7 Replies

Excessive weight gain after treatment?

I finished my two years of treatment with Rituxan and Venetoclax. After six months of being off the treatments, I have had a weight gain of 10 pounds. Eating...

I finished my two years of treatment with Rituxan and Venetoclax. After six mont...

Tangolover

•20 days ago

16 Replies

I'm tired

I want to keep going. My children at home are 13 and 14. My adult kids are 20 & 22. My wife has no empathy. I never mention my CLL because of this. I am...

I want to keep going. My children at home are 13 and 14. My adult kids are 20 ...

latebraker

•20 days ago

25 Replies

Underrepresentation of Small Lymphocytic Lymphoma in Clinical Trials for Chronic Lymphocytic Leukemia

A recent article. 27 Dec 2024 Somewhat surprising findings, but the trend in SLL inclusion in CLL clinical trials is improving. I suspect some of this is...

A recent article. 27 Dec 2024 Somewhat surprising findings, but the trend in SL...

BigfootT

•20 days ago

7 Replies

Blood test results

Hi all my results wbc 127.8 lymphocyte 122.4 platelets up from 102 to 132 and a enlarged spleen, doctor wants to talk to me next week, wondering if this means...

Hi all my results wbc 127.8 lymphocyte 122.4 platelets up from 102 to 132 and a ...

Feavers

•21 days ago

6 Replies

new here trying to work out why I feel so awful

doctors no idea what’s going on no energy constantly getting sick one sickness after another feeling very uncomfortable in my belly bloated extreme bck ache...

doctors no idea what’s going on no energy constantly getting sick one sickness a...

Loulabell1980

•22 days ago

8 Replies

Late Holiday Greeting

I'm a little late but want wish everyone a Merry Christmas and happy, healthy new year. I spent Christmas with my family The four grandkids give me more...

I'm a little late but want wish everyone a Merry Christmas and happy, healthy ne...

Gradyboy

•22 days ago

3 Replies

happy Christmas

I rarely post now due to having a stroke but wanted to come and say happy Xmas to all on this wonderful supportive forum xx have a wonderful day xx

I rarely post now due to having a stroke but wanted to come and say happy Xmas ...

9876

•24 days ago

18 Replies

Happy Christmas.

Wishing one and all a merry christmas and a happy, healthy new year.

Jacksc06

•24 days ago

13 Replies

CHICKENPOX

Being a CLL patient and on Acalabrutinib is it best to stay away from people who are in contact with chickenpox?? My neighbour's grandchild who is 2 has it and...

Being a CLL patient and on Acalabrutinib is it best to stay away from people who...

Westie11-

•25 days ago

13 Replies

How did it happen?

This is a bit of an investigative piece on how did I get CLL. I’m sure many of us have tried to pinpoint how we got CLL and really none of my doctors have...

This is a bit of an investigative piece on how did I get CLL. I’m sure many of ...

steve_canada

•26 days ago

59 Replies

PET Results

Waldenstroms in 2012. CLL in 2023. Not sure what all this means. Symmetric activity present in the region of the right arytenoid muscle. Activity noted in...

Waldenstroms in 2012. CLL in 2023. Not sure what all this means. Symmetric ac...

loveRicky

•26 days ago

2 Replies

Holidays

Just want to take minute and wish everyone, Merry Christmas and Happy Healthy New Year! God bless us all.

Just want to take minute and wish everyone, Merry Christmas and Happy Healthy Ne...

Cindi73

•26 days ago

12 Replies

Flu at Christmas

Well the dreaded flu has got me !!! Im currently on w&w any tips about recovery?

Well the dreaded flu has got me !!! Im currently on w&w any tips about recove...

CLLpa

•26 days ago

7 Replies

Tinnitus

Anyone else have terrible loud tinnitus? Thanks

dhamra

•26 days ago

20 Replies

Did I have CLL for years before diagnosis?

I am wondering if I had CLL for years before getting the diagnosis. I had nightly sweats, anxiety, dread and feeling sort of "poisoned" upon waking for many...

I am wondering if I had CLL for years before getting the diagnosis. I had nightl...

dhamra

•26 days ago

22 Replies

Season's wishes from CLL Support

As 2024 draws to a close, we would like to send a massive heartfelt “thank you” to you, our members, for loyally supporting this forum over the year. We extend...

As 2024 draws to a close, we would like to send a massive heartfelt “thank you” ...

pkguk2

Partner•27 days ago

12 Replies

finally

after 12 years on w&w I am about to begin a course of Rituxamab. I would appreciate any advice etc from othe members of our community who have experienced the...

after 12 years on w&w I am about to begin a course of Rituxamab. I would apprec...

skytortoise

•27 days ago

28 Replies

Another question for advice please.

As my latest blood tests are possibly showing a deterioration in health (I've been looking things up) and I'm to see GP tomorrow ,I'm wondering if it will be...

As my latest blood tests are possibly showing a deterioration in health (I've be...

pet-lamb

•27 days ago

16 Replies

Start treatment just based on fatigue?

I have SLL version, Mutated, Trisomy12 & 13Q and a couple other less well researched markers. Enlarged (1cm+) nodes all over, the ones I can feel wax and wane...

I have SLL version, Mutated, Trisomy12 & 13Q and a couple other less well resear...

TLSAtlanta

•28 days ago

33 Replies

coming to end of V+O treatment

I’m in Ontario Canada and I’ll be starting cycle 12 of V in February. Wondering what I should expect in the way of tests, measures etc. Bloodwork has been in...

I’m in Ontario Canada and I’ll be starting cycle 12 of V in February. Wondering ...

Swanseacity

•29 days ago

25 Replies

chemo update

Seasons greetings to all, back to the consultant today to hear what treatment programme will be put on, kind of hoping for Brukinsa but need to take away...

Seasons greetings to all, back to the consultant today to hear what treatment ...

Jim-Boy

•29 days ago

19 Replies

HOLIDAY SEASON

I would like to wish Everyone a Very Merry Christmas 🎅 🎄 😊. Hope you're all doing well . From my Home to yours, Wishing you the Merriest of...

I would like to wish Everyone a Very Merry Christmas 🎅 🎄 😊. Hope you're all...

Butterchick

•29 days ago

13 Replies

Rituximab subcutaneosly 1x in week

Dear friends, I have a question for some of you who are primalib R sc? I received the first R on December 17 iv and on December 25 I should receive the...

Dear friends, I have a question for some of you who are primalib R sc? I rec...

Name-1

•30 days ago

7 Replies

High Neutrophils & Low Neutrophils: What Do They Mean?

Patient Power has an excellent article on Neutrophils, HU won't let me past the entire text here so please go to...

Patient Power has an excellent article on Neutrophils, HU won't let me past the ...

lankisterguy

Volunteer•30 days ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2024

Brukinsa and Ciprofloxacin

Ivig Infusions

Cordyceps Update

Looking for CLL specialist

Starting 2025 with a mix of feelings.

Hello ,

Excessive weight gain after treatment?

I'm tired

Underrepresentation of Small Lymphocytic Lymphoma in Clinical Trials for Chronic Lymphocytic Leukemia

Blood test results

new here trying to work out why I feel so awful

Late Holiday Greeting

happy Christmas

Happy Christmas.

CHICKENPOX

How did it happen?

PET Results

Holidays

Flu at Christmas

Tinnitus

Did I have CLL for years before diagnosis?

Season's wishes from CLL Support

finally

Another question for advice please.

Start treatment just based on fatigue?

coming to end of V+O treatment

chemo update

HOLIDAY SEASON

Rituximab subcutaneosly 1x in week

High Neutrophils & Low Neutrophils: What Do They Mean?

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