I can people with cerebellar ataxia teach themselves to walk again?

[AnneMenzies]

Hi folk, I have not written anything on here for a while, but I have two questions. The first one is, can people teach themselves to walk again to cerebellar ataxia? It started about eight years ago. I felt that I was getting worse because when I started to walk, I was falling quite a lot of the time. And I got a wheelchair for when I went out and I couldn't walk at Tall now And I have to crew everywhere I go if my husband is away out.

And the second question! Is that both of my hands fall through if they are very heavy at night and it keeps me awake. And During the day there feel like pins and needles all the time. I don't know how long I can bear it. There are times I feel like crying. 😭 And I was wondering if anyone else has problem?

Take care 🙂

[wobblybee]

🤔I I experience ‘pins and needles’..in my hands and feet…and sometimes these are also either very hot, or very cold…I suspect in my case this is linked to Neuropathy, but so far I’m not on medication.

🙂The best advice is..speak to your Neurologist for peace of mind..you need to find out the exact cause.

🤔Can people ‘teach themselves to walk again after a diagnosis of Cerebellar Ataxia’.

Walking normally again..is unlikely but..extensive physiotherapy may make a big difference to some people..it obviously depends how far symtoms have progressed.

🤔In my case..Vestibular issues really hold me back, I can still walk but..as soon as I’m on my feet I feel very disorientated and unstable. I have wondered if I’d benefit from a wheelchair.

🙂 A few weeks ago.. at a National Trust property, I was able to try out a ‘Tramper’..this is an off-road scooter. It was a wonderful experience…moving around without feeling disorientated..I generally don’t have this even with my rollator.

[Bikebug in reply to wobblybee]

I have SCA3 and have looked into best devices to assist getting around safely. I can recommend the E-Traveller Electric Rollator.

It has many uses and can be used as an electric wheelchair when it is too demanding to walk. It is available from various retailers . Can be used for control of walking speed, deal with potential slips, and can be used for controlled decents. Look up videos showing what it can do.

I think this device provides necessary functionality for supporting your independence when out and about by yourself.

[wobblybee in reply to Bikebug]

🙂 Thank you

I watched a video of the EVO…and agree it is very versatile

[mimosaholland]

yes I do, so I understand the frustration, the pain and how difficult it can be to manage. I find it has been a lonely process, just adjust to one new difficulty, and bang another day like yourself. My thoughts are with you. Take care

[PatsyIpswich]

Nothing I can add to previous responses except, I empathise too. Watching plants come to life this time of year, is very uplifting. Stay safe and don't forget to smile x

[Driven1]

Can recommend OMEO, go anywhere mobility wheelchair, 22 deg off road slopes, your able bodied walkers would find this very difficult. Beach Sand a breeze. Self loads into back of SUV with ramps that come with it. Has security measures so no one steals it. omeotechnology.com It is based on Segway technology. Can't attach movie of me after 2 minutes of instruction. All my able bodied friends want one