Deep Brain Stimulation : Has anyone with... - Ataxia UK

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Deep Brain Stimulation

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10 Replies

Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?

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10 Replies
ray-wiffen-1958 profile image
ray-wiffen-1958

yes ive had deep brain stimulation and it is great it stopped the shakeing right away

Ostap profile image
Ostap in reply toray-wiffen-1958

Thank you for the reply. Were you treated for Cerebellar Ataxia?

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply toOstap

yes i was treated for cerebellar ataxia type 2

JT0621 profile image
JT0621 in reply toray-wiffen-1958

Where abouts was your tremor?

I have a tremor in my head and my left hand. Ive been referred for Brain Stimulation. How long did it take you to recover?

ray-wiffen-1958 profile image
ray-wiffen-1958 in reply toJT0621

hi my tremor was in both hands and one leg, i was in hospital for 13 days it took about 2 weeks to be back to normel i was awake for the operation i didnt feel anything at all,

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JT0621 in reply toray-wiffen-1958

That sounds incredibke. Im so glad it worked for you. Im hoping mine will too.

nigelrheath profile image
nigelrheath

this is interesting. What does deep brain stimulation involve?

Nigel

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Ostap in reply tonigelrheath

Look it up on the internet. Essentially it’s electrodes inserted into the brain through which an electric currrent is passed..

Driven1 profile image
Driven1

Better read about the adverse affects of Deep Brain Simulation creating worse symptoms.

pubmed.ncbi.nlm.nih.gov/276...

Ostap profile image
Ostap

These look to be only possible side effects. They may ameliorated with fine tuning. If I trusted my Neurologist I would rely on their advice. Thank you for the reply.

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