New way to walk: I can't remember if I've already... - Ataxia UK

Ataxia UK

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New way to walk

ww-wibblywobbly profile image
20 Replies

I can't remember if I've already posted this information or not!!! Hahaha memory is definitely not what it used to be.

Anyway some time ago I posted about using two sticks to walk with.

But a few months ago a replacement physiotherapist gave me some excellent help. Firstly let me explain what was happening when I was walking. I had virtually no control over my legs and they would jerk around as I walked. My hips, knees and ankles would often give way, causing me to fall if I wasn't hanging onto something.

Anyway this replacement physiotherapist, gave me some excellent advice and help. The first exercise was to walk around like an ape. Knees bent, arms hanging down (but using my stick still).

Then next using the walking machine and with the physiotherapist helping me I had to learn to not straighten completely my knees when walking. Before I was over extending them when I walked. So slowly on the walking machine I had to learn to move the other leg forward before the other one had a chance to straighten. Just as new movements are, it was very difficult at first and it took time and effort. The physiotherapist would actually move my knee at the right moment at first to help me on the machine. After a while I could do it myself.

Now over the months I walk in this new way. It is much better, although I'm even slower!! LOL. I have less frequency of my knees, hips and ankles giving way and more control. How I walked before I caused my hips to kind of pin out, and that was giving me back problems too.

I now am back to using one cane most of the time, though as my balance has got so much worse I'm never without it now. On bad days I will use two or if I need to walk what would be a distance for me I use two. A distance for me is about 50 metres!!

Anyway if this information helps anyone then I'm very happy for you.

Keep going folks and keep plastifing our brains. I think it's the only way

Love Alison xx

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ww-wibblywobbly
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20 Replies
wobblybee profile image
wobblybee

🙂 Good advice and perseverance can go a long way to getting a positive result 👍

Voice1 profile image
Voice1

Thank you for sharing xx

Athywhite profile image
Athywhite

Hopefully that will help me, I'm the same with hips, knees and ankles giving way, so frustrating, I will give this a go. Thank you

ww-wibblywobbly profile image
ww-wibblywobbly in reply to Athywhite

You may need someone to help you, if not a physiotherapist then maybe someone else. Good luck 🤞. Let us know how you get on and if you have any questions

Xx

Sphinx21 profile image
Sphinx21

This helps me very much Thankyou so much for the advice I’m sure it will help many xx

Sailor_Girl profile image
Sailor_Girl

I remember your first post Alison so thanks for the update. Did you also post a link to a report about a woman with no balance from birth who learnt to walk unaided albeit with an ataxic gait? That was very thought provoking.

Gina x

ww-wibblywobbly profile image
ww-wibblywobbly in reply to Sailor_Girl

No that wasn't me. I don't remember reading it either!!! But I may have read it 🤔.

As I said my memory is failing me as us

ww-wibblywobbly profile image
ww-wibblywobbly in reply to ww-wibblywobbly

As usual!!! LOL

Whoops, I pressed the wrong key 🤭

Sailor_Girl profile image
Sailor_Girl in reply to ww-wibblywobbly

might have been wobblybee who sent the link, I'll look it out, it's an interesting story

I'm wondering if i might be able to play table tennis seated on a swivel chair, I think the hand eye coordination would need practice

have you tried fist bumping someone? I did for the first time today and of course I missed

ninotchka profile image
ninotchka

Hi ww -- Better than using 2 canes is using trekking poles. Plus it makes you look so much sportier!😎

ww-wibblywobbly profile image
ww-wibblywobbly in reply to ninotchka

Hi, I did try that as my husband has some, but my balance is far too compromised now. His poles have the upright handles and I definitely need the curved over ones.

I don't think anyone would fall for me being sporty anymore 😂🤣

SCA3gettingup profile image
SCA3gettingup in reply to ww-wibblywobbly

Hi, I used to walk with my nordic poles four years ago. Once, a girl who tried to get a signature for an Ong, ask me: doing sport?I answer no, it"s ataxia matter

😜

Greetings from Barcelona,

Raquel

Sailor_Girl profile image
Sailor_Girl

might have been wobblybee who sent the link, I'll look it out, it's an interesting story

wobblybee profile image
wobblybee in reply to Sailor_Girl

🤔 Could it have been this..

DON’T mind the gap. A woman has reached the age of 24 without anyone realising she was missing a large part of her brain. The case highlights just how adaptable the organ is.

The discovery was made when the woman was admitted to the Chinese PLA General Hospital of Jinan Military Area Command in Shandong Province complaining of dizziness and nausea. She told doctors she’d had problems walking steadily for most of her life, and her mother reported that she hadn’t walked until she was 7 and that her speech only became intelligible at the age of 6.

Advertisement

Doctors did a CAT scan and immediately identified the source of the problem – her entire cerebellum was missing (see scan, above). The space where it should be was empty of tissue. Instead it was filled with cerebrospinal fluid, which cushions the brain and provides defence against disease.

The cerebellum – sometimes known as the “little brain” – is located underneath the two hemispheres. It looks different from the rest of the brain because it consists of much smaller and more compact folds of tissue. It represents about 10 per cent of the brain’s total volume but contains 50 per cent of its neurons.

Although it is not unheard of to have part of your brain missing, either congenitally or from surgery, the woman joins an elite club of just nine people who are known to have lived without their entire cerebellum. A detailed description of how the disorder affects a living adult is almost non-existent, say doctors from the Chinese hospital, because most people with the condition die at a young age and the problem is only discovered on autopsy (Brain, doi.org/vh7).

Read more: newscientist.com/article/mg...

Sailor_Girl profile image
Sailor_Girl in reply to wobblybee

that's the one

paddym67 profile image
paddym67

Well done KBO

ww-wibblywobbly profile image
ww-wibblywobbly

Oh wow that's amazing wobbly bee! And she still managed to do things with her cerebellum missing 😱.

There's definitely hope for us all, keep going folks, don't give up. Make those new pathways in the brain 👍👍❤️

foffee11 profile image
foffee11

Thanks

SCA3gettingup profile image
SCA3gettingup

Thank you very much for sharing. Yes, our knees are the problem. We should walk bending them a bit more. It's no easy but we have to visualize it before each step.

ww-wibblywobbly profile image
ww-wibblywobbly in reply to SCA3gettingup

Exactly. Hyperextension knees are so NOT good

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