Swallowing

[Tazwaz]

Doea it feel like something stuck in your throat all the time

[Arlo20]

I am finding it harder to swallow lately and food being stuck in my throat,i had a ŕeady mèal last week it was to hot but stuck in my throat as i couldn't swallow it sore burnt throat for a few days .

[Tazwaz in reply to Arlo20]

I dont have any problems with food its throat feeling dry and the feeling something stuck

[rideabike in reply to Tazwaz]

Yes that is exactly the feeling I've had for over 4 years. Some foods make it worse like dense or hard types of foods. Chewy steak, dense cookies.... can affect my throat muscles for days afterwards so softer foods work better.

[Tazwaz in reply to rideabike]

Thankyou my throat feels like all the time it feels like a lump but when I take fluids it gets better for a while does it anything to do with throat being dry

[rideabike in reply to Tazwaz]

I don't think a dry throat is the problem but a muscle problem. A swallowing assessment showed it was decreased tongue based movement. I know it's more muscles than just the tongue because it feels like it. As Turner said a drink of water can really hurt sometimes with me too. If I have good cry it can cause pain there too. I dont know the cause but it must be connected to ataxia.

[turner47]

Some of my food such as bread,chips etc stick in my gullet and if i have a drink to try and move it it really hurts as it gies down x

[Tazwaz in reply to turner47]

Some that happens to me I seem to be suffering after meals with alot of burping I have not been to bad with my symptoms this far but I think things are changing

[turner47 in reply to Tazwaz]

Yes its not good. X

[suzie44na in reply to turner47]

Yes that is exactly what I have, it is awful and does hurt.

[phyllis2009]

My neck and sort of inside my neck/throat is really uncomfortable most of the time. That was the first real symptom I had. Sometimes it’s difficult to swallow but not too bad. I had a fluoroscopy which shows my swallowing reflex is sometimes out of sync. I was diagnosed with ataxia 11 years ago

[suzie44na]

Food sticks in my throat as it is going down, it’s painful too. Bread does, I think it is because it swells, my doctor said it is a muscle problem. I also find that if I eat banana on its own it makes me cough especially on a morning, not sure why.

[turner47]

Sometimes Tazwaz. If I overeat its awful and it effects my breathing as well as feeling stuck. Its weird. X

[tonk68]

I've bought a device called Qioro it's expensive for what it is but the results are amazing, with speech and swallowing etc., finally something to train the muscles we need

[Tazwaz in reply to tonk68]

That's good what is it and what does it do

[tonk68 in reply to Tazwaz]

Apologies it's called Iqoro

iqoro.com/natural-treatment...

[tonk68 in reply to Tazwaz]

iqoro.com/area/problems/?ca...

Really hope it helps people

[Tazwaz in reply to tonk68]

Does it work

[tonk68 in reply to Tazwaz]

It really does my speech has improved later in the day when muscles were getting fatigued. Swallowing has improved.

And to be honest it's minimal work 3 sets of 10 seconds , 3 times a day

[Tazwaz in reply to tonk68]

I mite get 1 how do you use it it suppose to help with reflux aswell

[tonk68 in reply to Tazwaz]

Yes I do, that's how I came across it but it helps with so much more, patience and consistency is the key as with everything, but stick at it and it will help.

Let me know how you get on please

[Tazwaz in reply to tonk68]

How do yo use it please

[Lili986 in reply to tonk68]

I don't think this £145 product has any evidence it works.

[tonk68 in reply to Lili986]

I read up on this extensively before I purchased, understand it's costly but when you take into account the work they've done in developing this for the limited numbers they will sell then to me it's understandable.

It is expensive for what it is but I looked at it from the viewpoint that I would pay £150 and in all honesty considerably more for the possibility of improving my speech which it's doing slightly so far and no more coughing after I drink with the feeling of it "going down the wrong hole" this has all but stopped.

All this after 5 weeks of use, excited to see what benefits I get after prolonged use.

But as with everything, each to their own, it was posted because it may help a similar open minded person.

[tonk68]

The piece you put in your mouth is like a gumshield if that makes sense it fits in front of your teeth and behind your lips if that makes sense.

I find it woks best if you keep your chain at 90 degrees to your neck and your tongue to the bottom of your mouth .

Found a video for you hope this helps explain better

youtube.com/watch?v=CRcgGep...(Not working as expected?)

[Tazwaz in reply to tonk68]

Howdoes that help your throat and speech

[tonk68 in reply to Tazwaz]

By strengthening the throat muscles and as strange as it sounds your lips as well

[Tazwaz in reply to tonk68]

Ok thankyou

[tonk68]

Apologise please, I suffer from Fiedrichs Ataxia both myself and my Brother were diagnosed early 2004, I have always fought against it and tried lots and lots of different things, early 2010 the training I was doing was reversing some symptoms and I tried in vain for 18 months to try clinical trial but to no avail.My Brother did very little to fight this and is in a wheelchair.

I saw the post re Swallowing and thought I could pass on something that has helped my swallowing and speech too.

I very very rarely take part or post anything on forums primarily because of the pettiness and small mindedness your displaying.

If it's not for you brilliant I hope and pray that you find something that does but please don't cast incorrect aspersions at people that are taking the time to help