Shit

[bevvick1964]

Hi

I’m sorry but I’m not really happy and I am struggling with this

[PatsyIpswich]

bum

[chelpet]

Yes, it can be very tough. Sometimes I just have to 'hang on in there'. Peter

[Bearbonny in reply to chelpet]

Hi everyone yes it is so hard at times my son struggles ever day it’s hard to watch as a parent some days are better . Keep going everyone

[chelpet in reply to Bearbonny]

Is it worth joining a local support group.

[wobblybee]

((hugs)) 😘

[nigelrheath]

Some days are definitely worse others, but all contain some shit. xx

[Veteran250]

Emailed you Bev!

😀🌹

[february]

Ataxia is really difficult and hard to explain to someone that doesn't deal with it, no matter what kind you have! Remember you are not alone in your journey, many people who are dealing with it understand the daily challenges! Ataxia affects so much physically, as well as psychologically and is a constant challenge. I repeat my favorite mantra (quietly...,ha!) to myself almost everyday. It was written by Elenor Roosevelt. and goes: a woman is like a tea bag, as she never knows how strong she can be until she gets into hot water! Hope this helps a bit!!! Virtual hugs to you..., ;o)

[Jacqui-A]

Hi Bev, I know exactly how you feel, I’m in tears most days. I look out the window and see things that need doing knowing I can’t do them. I live on my own. If you ever want to chat, feel free, we may be able to help one another. Take care, Jacqui

[Athywhite]

Same as Bev, I can barely walk nowadays, probably 20 yards with a stick then my legs give up and my balance totally disappears. I keep thinking to myself why and how have I got this, I was an athlete back in the day running marathons for fun and playing football all weekend. The worrying thing for me is that I am currently in chemotherapy for cancer (5 sessions down and 5 to go) and I am not bothered about it because it is curable, there's nothing for Ataxia, the neurologist I am under said I have Sensory Ataxia? has he made that one up because I cannot find a reference for it anywhere, I was supposed to see him on y last 2 visits for chemo but he wasn't in, today was the latest. In all honesty folks does/can it get any better?

[penelope2 in reply to Athywhite]

Hi Athywhite. Sending you lots of good vibes. Be kind to yourself.

[Amy120165]

Stiffness