Niagen and or Trehalose Mannitol experiences? Pl... - Ataxia UK

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Niagen and or Trehalose Mannitol experiences? Please share

hope778
hope778

Does Anyone has experience with Niagen and or Trehalose/Mannitol for SCA or Huntington?

What was your experience?

Anyone took Trehalose as a nose spray or eyedrops? Did you ever try NAD+ transdermal patches?

I appreciate all feedback.

Thanks in advance.

14 Replies
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I have taken Niagen (3 pills a day) trehalose and mannitole (one spoon of each per day) for some time.

hope778
hope778 in reply to Collinhucn

Thank you for replying.

Did you noticed any improvement since you started to take it? About how long are you taking the trehalose?

Did your balance improved?

Could you notice certain effects of the Niagen and certain effects of the Mannitol Trehalose?

Any side effects of Mannitol or trehalose?

Did you ever quit the trehalose and could feel that in certain things?

Thanks for sharing your experience

Collinhucn
Collinhucn in reply to hope778

You are welcome. Sorry for replying late, I am out of intenet recently. Here are my answers:

Did you noticed any improvement since you started to take it? About how long are you taking the trehalose?

I haven't noticed any improvement yet, the general health conditions (including the walking balance ) are deteriorating. But I guess the rate of deteriorating is not as fast,so I still stick to it. Until now,I have taken trehalose continually for almost 8 month.

Could you notice certain effects of the Niagen and certain effects of the Mannitol Trehalose?

I guess I go to toilet less at night since I take Niagen (following a good sugesstion in HealthUnlocked).

Any side effects of Mannitol or trehalose?

The only side effect of trehalose is that you may get a little diarrhea when you have too much in one serving (for me, it is 2 spoons, but I guess it's different for another person).

No but will be interested to read responses, best wishes

hope778
hope778 in reply to PatsyIpswich

Thank you, best wishes to all of you

I take Niagen (2/3 per day). I feel like they work but it s hard to know. I have Trehalose but I've gotten out of the habit of taking it. I'll start again. Have you read Sunvox's post? healthunlocked.com/ataxia-u...

hope778
hope778 in reply to C2a2o2

Thank you for your reply and the link. I will keep an eye on any updates.

Did you experience any side effects of trehalose that made you stop for a while?

Did you notice any difference while on trehalose compared to being off of it?

Thanks for sharing your experience

I take Niagen (2) and trehahose, periodically. I also exercise and yoga almost daily. I have noticed an increase in energy and my balance seems better. I also take b1 and ubiquinol.

hope778
hope778 in reply to Rhiny99

Thank you for sharing. How much trehalose do you take?

Did you notice any side effects?

Keep up the good work of exercising and stretching. It's so important.

Take care

Rhiny99
Rhiny99 in reply to hope778

I don’t take it daily....usually a tablespoon every other day. I usually take it in my coffee with breakfast and noticed no side effects. Exercise I believe is extremely important. 😊

hope778
hope778 in reply to Rhiny99

Ok thank you..yes it sure is

Everyone is very different. I have tried all but unfortunately you do not know if they help?? Trehalose definitely upset me so now I take Mannittol. Niagen is expensive and it does not help me (I do not think). Some swear by it though x

Thanks Litty, Do you notice any difference between taking Mannitol and not taking it?

No but very much interested to have feedback from forum as soon gona start trehalose in my regimen.

Further as far reading comments from other post for trehalose, it is only effecting delaying the symptoms nothing else! and as for side effects normally people reported the stomach disturbed.

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