Report from the USA: Last month I went solo from... - Ataxia UK

Ataxia UK

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Report from the USA

neta profile image
neta
8 Replies

Last month I went solo from Tel Aviv to Heathrow to Oxford. In Oxford, I did all sorts of things like ride the bus, clambor up 3 flights to my husdand's apt. But I found the cobble stone streets not very conducive to me. From Heathrow I flew to JFK. Once in NYC, I met with an American P/T who I see from time to time. He told me that the "vest" we have all discussed is coming out in a new version, lighter and white. He says I need heavier weights. My understanding is that this also available in Denmark.

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neta profile image
neta
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february profile image
february

Thanks for the info., Neta! I have the original black one and would like something lighter weight (and white) especially for the Summer months. I live in the US, in the state of Michigan and Summers can be beastly hot and humid here...,;o)

neta profile image
neta in reply tofebruary

right.. then I am happy 4 u. Separate subject: What happened to LWA? Why r they broke? Why don they get Federal funds? What's the deal w them??

murcia profile image
murcia

What are these vests & what do they do &

neta profile image
neta in reply tomurcia

See:

New Treatment Options for MS, Parkinsons, Ataxia Balance ...

motiontherapeutics.com/

PS I do not have one but am thinking about it

klazien profile image
klazien

Isn’t the purpose of these special vests to provide weight and help balance with that?

If that is the case, what is the good of a lighter vest?

neta profile image
neta in reply toklazien

Not sure as I dont have one. But I did try on a black on. I think the weights are supposed to be heavy not necessarily the vests themselves.

february profile image
february

Right, Neta! The weights attach to velcro inside the vest! Also, in terms of LWA, I'm not sure what's happened. I just Google the site and go from there occasionally...,;o)

neta profile image
neta

I just commented and it vanished! So here goes again. I don't know why LWA is trying (hoping) to raise money from us. I would give them but don't they need millions? Arent their board of directors all Silicon Valley hi-tech types? Don't they get funds from NAF? Regarding the vest, does it work? (I think I have asked this before,)

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