Posts - CLL Support | HealthUnlocked

CLL Support

23,138 members • 39,744 posts

All posts for October 2021

NHS national COVID Cancer Antibody Survey

I took the opportunity to partake. I received the test kit yesterday and will do the test today. So far, so good. But when applying you have to say how many...

I took the opportunity to partake. I received the test kit yesterday and will do...

flyhigher

•3 years ago

5 Replies

Venetoclax and Stelara

Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime?...

Hello everyone, hope all is well? Just putting it out there if anyone has been o...

Driverps1

•3 years ago

3 Replies

Lymph node biopsy results

Hello everyone, just a quick update- my husband finally went for results of lymph node biopsy and thank goodness no mutations. We’re now trying to decide...

Hello everyone, just a quick update- my husband finally went for results of lymp...

Lesley3

•3 years ago

5 Replies

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CLL patient

Diognosed with CLL in 2015. In 2021 I started taking Inbruvica.

ConnieCrabb

•3 years ago

2 Replies

WHITE Cell ?

A question to all my fellow CLL'rs: I have MS and CLL... I'm lucky! My white cell count doubled in 4.5 months. My Red cell count remained the same. A week...

A question to all my fellow CLL'rs: I have MS and CLL... I'm lucky! My white c...

MSGMP

•3 years ago

1 Reply

Severe itching and scratching all over the body except face and head.

For almost 1 1/2 months now I have passed sleepless day and night because of absolutely severe itching and scratching. I visited one private doctor, one...

For almost 1 1/2 months now I have passed sleepless day and night because of abs...

amaagabg2020

•3 years ago

28 Replies

Confused

Dear All, I have heard that people with CLL should have another third dose of the vaccine, which must be the same type as the first ones we had. It now seems...

Dear All, I have heard that people with CLL should have another third dose of th...

Vindicatrix

•3 years ago

3 Replies

Astrazenecas new antibody drug for immune compromised people

https://www.msn.com/en-us/health/medical/astrazeneca-submits-preventive-covid-19-treatment-to-fda/ar-AAP9AFO?li=BBnb7Kz

https://www.msn.com/en-us/health/medical/astrazeneca-submits-preventive-covid-19...

craterlake

•3 years ago

6 Replies

Crazy Poison Ivy rash

I've searched our site and don't seem to find any posts about a topic that has quickly become of interest to me - reaction to poison ivy. Does CLL make it...

I've searched our site and don't seem to find any posts about a topic that has q...

lynnsb6754

•3 years ago

19 Replies

COVID vaccine and chemo

Does anyone have any experience with B cell targeting chemotherapy and COVID 19 vaccine? As far as I understand it, the chemo wipes out your vaccine based...

Does anyone have any experience with B cell targeting chemotherapy and COVID 19 ...

kiwiCanuck

•3 years ago

4 Replies

Confused or what

The third jab is all very complicated and confusing. I had a text letter from my GP to ring and book a booster. I rang 119 and they tell me that I am not yet...

The third jab is all very complicated and confusing. I had a text letter from my...

kitchengardener2

•3 years ago

10 Replies

Question about Venclexta

Hello, my Mum is starting tomorrow isA venclexta and wanted to ask did anyone take it home ? Or it’s necessary to be hospitalized? And is everyone getting bad...

Hello, my Mum is starting tomorrow isA venclexta and wanted to ask did anyone ta...

Ndsa

•3 years ago

18 Replies

Possibility and benefits of creating this forum's statistical databank?

There is a steady stream of sharing all sorts of valuable info in this forum. Many thanks to our contributors from whom I continue to learn a lot. Am...

There is a steady stream of sharing all sorts of valuable info in this forum. Ma...

Monetfan2017

•3 years ago

2 Replies

CLL? Have a 3rd primary dose at least 8 wks after your 2nd jab

Booster or third dose, please read. Just to clarify:- you should have the third primary dose if you have CLL at any stage. The third primary dose should be at...

Booster or third dose, please read. Just to clarify:- you should have the third ...

Mijoed

•3 years ago

10 Replies

Bispecific Antibodies and CLL

Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succinct piece Bispecific Antibodies: what are they and are they the future of...

Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succ...

bennevisplace

•3 years ago

2 Replies

Expert Perspective on Key Trial Updates in Treatment of CLL: What You Need to Know From ASCO/EHA/ICML 2021

17th Sept 21 "George Follows, a UK CLL expert, provides his thoughts on updated data from key studies in chronic lymphocytic leukemia (CLL) that were...

17th Sept 21 "George Follows, a UK CLL expert, provides his thoughts on updated...

Jm954

Administrator•3 years ago

11 Replies

Re reactions to Covid booster for CLL sufferers

I’m in remission from CLL, had my booster jab for Covid 2 days ago. Had the second of two jabs just over 6 months ago. Pretty rough for those 2 days. Aching...

I’m in remission from CLL, had my booster jab for Covid 2 days ago. Had the sec...

bendintheroad1

•3 years ago

16 Replies

Starting treatment with calquence what can you eat

Start infusions next week will taking calquence when I start I was ld I wold have to go a Brat diet bananas apple sauce rice and toast trying to find out how...

Start infusions next week will taking calquence when I start I was ld I wold ha...

William1955

•3 years ago

5 Replies

Does anyone with CLL is taking SUPPLEMENTS like ZINC?

Hello, I've heard that ZINC could be helpful - but my oncologist doesn't know about supplements, bless his heart, he know a lot about conventional medicine! If...

Hello, I've heard that ZINC could be helpful - but my oncologist doesn't know ab...

unairdefamille

•3 years ago

32 Replies

Coughing a lot a lot of mucus.

Hi I’m really suffering on the acalabrutinib my bloods are getting better great but every morning I have a really bad chest coughing loads loads of horrible...

Hi I’m really suffering on the acalabrutinib my bloods are getting better great ...

scottfree

•3 years ago

9 Replies

The Role of Novel Agents in Treating CLL-Associated Autoimmune Hemolytic Anemia (AIHA)

J. Clin. Med. 2021, 10, 2064 There have apparently never been any prospective clinical trials conducted in the setting of CLL-associated AIHA, as patients with...

J. Clin. Med. 2021, 10, 2064 There have apparently never been any prospective cl...

Jm954

Administrator•3 years ago

2 Replies

Antibody Testing After Getting the COVID-19 Vaccine: What to Know If You’re Immunocompromised

I know we've discussed this endlessly but I thought this article was quite good. As it says, "there are risks in trying to interpret these antibody tests...

I know we've discussed this endlessly but I thought this article was quite good....

Jm954

Administrator•3 years ago

30 Replies

Charlatan Doctors

With all the false information on the internet regarding vaccines, mask wearing, miracle cures with herbs and other 'natural' cures this is a good reminder.

With all the false information on the internet regarding vaccines, mask wearing,...

Kwenda

•3 years ago

5 Replies

Recording of Third Primary Covid Vaccine Dose

UK issue: My GP can only record my latest Covid vaccine as a "booster dose" rather than as a "Third Primary Dose" (IT system limitation). This means that I...

UK issue: My GP can only record my latest Covid vaccine as a "booster dose" rath...

g684

•3 years ago

7 Replies

Information on chronic lymphocytic leukemia

Starting treatment next week with a infusion of obinutuzumab for 4 hours twice a week then off 28 days will do 6 cycles and start taking acalabrutinib twice a...

Starting treatment next week with a infusion of obinutuzumab for 4 hours twice a...

William1955

•3 years ago

10 Replies

Taking a break from treatment?

Our last specialist called CLL treatment a game of Whackamole. Treatment needed at times and at other times could go without until the next round of symptoms...

Our last specialist called CLL treatment a game of Whackamole. Treatment needed ...

Palmetto

•3 years ago

11 Replies

painful underarm glands

painful underarm glands after vaccine. is this serious?

FranceMary

•3 years ago

12 Replies

How are you feeling?

I am asked quite often on how I am feeling. My answer ' don't really know'. So used to the unexplained now. Waiting to have more minor skin cancer surgery...

I am asked quite often on how I am feeling. My answer ' don't really know'. So...

lsutigers2018

•3 years ago

5 Replies

Molnupiravir: A Pill for COVID Could Be Here Soon

From The People's Pharmacy 1st Oct 2021 and good news for immunocompromised patients like us. " Today, the Merck company, together with Ridgeback...

From The People's Pharmacy 1st Oct 2021 and good news for immunocompromised pati...

Jm954

Administrator•3 years ago

22 Replies

Sarcoidosis anyone?

Has anyone been diagnosed with this? Ive had a bad swollen lymph node in my neck, itchy lesions all over my body and dry eyes and my doctor thinks sarcoidosis...

Has anyone been diagnosed with this? Ive had a bad swollen lymph node in my neck...

Cfarrar

•3 years ago

35 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2021

NHS national COVID Cancer Antibody Survey

Venetoclax and Stelara

Lymph node biopsy results

CLL patient

WHITE Cell ?

Severe itching and scratching all over the body except face and head.

Confused

Astrazenecas new antibody drug for immune compromised people

Crazy Poison Ivy rash

COVID vaccine and chemo

Confused or what

Question about Venclexta

Possibility and benefits of creating this forum's statistical databank?

CLL? Have a 3rd primary dose at least 8 wks after your 2nd jab

Bispecific Antibodies and CLL

Expert Perspective on Key Trial Updates in Treatment of CLL: What You Need to Know From ASCO/EHA/ICML 2021

Re reactions to Covid booster for CLL sufferers

Starting treatment with calquence what can you eat

Does anyone with CLL is taking SUPPLEMENTS like ZINC?

Coughing a lot a lot of mucus.

The Role of Novel Agents in Treating CLL-Associated Autoimmune Hemolytic Anemia (AIHA)

Antibody Testing After Getting the COVID-19 Vaccine: What to Know If You’re Immunocompromised

Charlatan Doctors

Recording of Third Primary Covid Vaccine Dose

Information on chronic lymphocytic leukemia

Taking a break from treatment?

painful underarm glands

How are you feeling?

Molnupiravir: A Pill for COVID Could Be Here Soon

Sarcoidosis anyone?

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