Possibility and benefits of creating this foru... - CLL Support

CLL Support

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Possibility and benefits of creating this forum's statistical databank?

Monetfan2017 profile image
2 Replies

There is a steady stream of sharing all sorts of valuable info in this forum. Many thanks to our contributors from whom I continue to learn a lot.

Am wondering whether it's possible to statistically analyze some selective info to get a better overview of members experiences with regards to key topics. It could provide more insight into how many members have dealt with Covid exposure and their outcomes, vaccines/boosters effectiveness, as well as other key metrics, such as the meds taken, related side effects, etc.

Of course it would take a qualified statistician and some expenses, but wouldn't the better understanding gained into the statistical patterns (rather than anecdotal evidence) be well worth it?

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Monetfan2017 profile image
Monetfan2017
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2 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi Monetfan2017,

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You may want to read these articles about the HealthUnlocked organization, and then contact them with your idea / proposal

en.wikipedia.org/wiki/Healt...

hitconsultant.net/2020/10/1...

prnewswire.com/news-release...

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"By combining with HealthUnlocked, we are expanding our broad set of capabilities–ranging from highly granular and longitudinal structured data across our eight registries, to broader patient insights from HealthUnlocked,” said Abbe Steel, Chief Patient Officer of Corrona. She continued, “The HealthUnlocked communities provide access to engaged patients across the globe, allowing us to better understand the patient experience and what matters most to patients. Our organization is positioned to expand its expertise in gathering, analyzing, and applying deep patient insights to optimize the patient journey and bring significant value to our clients.”

Corrona, LLC

Erem Latif

+1-571-334-6010

elatif@corrona.org

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Len

whmk profile image
whmk

I would vote for that. I had actually tried on an informal basis but it would be much easier if the website provided more tools.

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