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CLL Support

23,253 members•39,949 posts

All posts for October 2021

Fitness

I've done 1 round of chemo (FCR) and have had cll for 3 years. The fatigue is one of the hardest things to deal with. After a half hour exercise, I'm...

I've done 1 round of chemo (FCR) and have had cll for 3 years. The fatigue is o...

kiwiCanuck

•3 years ago

8 Replies

An unusual, potent antibody to SARS-CoV-2 variants is isolated from a recovered patient

Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super-lineage, at least as transmissible as the Delta variant and more resistant to...

Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super...

bennevisplace

•3 years ago

10 Replies

CLL and no treatment. What to expect?

Hello everyone, my father was diagnosed with CLL 11 years ago. He decided not to have treatment and about 7 months ago he started to become extremely fatigued,...

Hello everyone, my father was diagnosed with CLL 11 years ago. He decided not to...

Oz13

•3 years ago

21 Replies

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Webinar ZOE COVID Study: Vaccines and the immunosuppressed Thursday 28th October 20213pm BST / 10am ET

Register now! Over half a million people in the UK have a compromised or suppressed immune system, and rightly want to know more about how COVID vaccines are...

zaax

•3 years ago

12 Replies

Imbruvica side effects

Does any one have trouble with cuts on thumbs and finger tips while on Imbruvica

Does any one have trouble with cuts on thumbs and finger tips while on Imbruvica...

KC10

•3 years ago

19 Replies

CLL on colonoscopy polyp biopsy

I had a colonoscopy 9/29 and the original biopsy report identified hyper plastic lymphoid follicles, but no cancer. I just received an updated report that...

I had a colonoscopy 9/29 and the original biopsy report identified hyper plastic...

peacethruthestorm

•3 years ago

15 Replies

3rd jab and anitbodies

A bit of good news. I had my 2nd jab March 31st 2021, and later on had an antibody test through my GP which returned Negative (or rather, antibody level was...

A bit of good news. I had my 2nd jab March 31st 2021, and later on had an antibo...

flyhigher

•3 years ago

6 Replies

I’m new here…

My husband (66) newly diagnosed with full blown CLL, otherwise good health. Just started on Imbruvica this week.. just trying to learn everything about the...

My husband (66) newly diagnosed with full blown CLL, otherwise good health. Just...

GrannyMyers

•3 years ago

23 Replies

Acalabrutinib and mouth sores

Hi everyone, My wife Gabriella started Acalabrutinib for CLL a couple of weeks ago and getting great results (lymph nodes in the neck area almost gone ) and...

Hi everyone, My wife Gabriella started Acalabrutinib for CLL a couple of weeks a...

Sergi

•3 years ago

12 Replies

Latest appointment with my specialist (but on the phone still)

My bloods are still OK so no treatment needed as yet. That's 11 years now on W&W. I wanted to ask a few questions about things I've read on here over the...

My bloods are still OK so no treatment needed as yet. That's 11 years now on W&W...

Harvist

•3 years ago

5 Replies

Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason.

Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patients Enrolled in Clinical Trials by Board member Bob Levis. Some CLL clinical...

Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patien...

bkoffman

CLL CURE Hero•3 years ago

10 Replies

Ronapreve - Immunocompromised patients

Am I right that Ronapreve can be administered to immunocompromised patients, covid negative, who have not mounted an antibody response (non hospitalised...

Am I right that Ronapreve can be administered to immunocompromised patients, cov...

RobertCLL

•3 years ago

32 Replies

CLL Society Webinar The Right Tests at the Right Time for CLL. Tests to guide treatment in all phases of CLL have never been better!

Coming this Friday October 15th: The Right Tests at the Right Time! Testing to guide treatment in all phases of CLL has never been better! Hear the stunning...

Coming this Friday October 15th: The Right Tests at the Right Time! Testing to g...

bkoffman

CLL CURE Hero•3 years ago

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Septic arthritis in hip

Had a achy hip on Friday and by Saturday morning I was in agony could hardly move eventually called 111 who sent me to a walk in center where they then sent me...

Had a achy hip on Friday and by Saturday morning I was in agony could hardly mov...

cartwheels

•3 years ago

3 Replies

Neutropenia with venetoclax. Give me information.

I am taking venetoclax, and after inoculating up to 400 mg, I reduced the dose of venetoclax to 200 mg due to neutropenia. Even so, neutropenia did not...

I am taking venetoclax, and after inoculating up to 400 mg, I reduced the dose o...

mogemoge

•3 years ago

19 Replies

How long does it take to recover from Calquence

I have been off Calquence for a month but still can’t get over weakness, fatigue or in general feel like doing anything. I have been checked out by cardiology...

I have been off Calquence for a month but still can’t get over weakness, fatigue...

Mackiec1108

•3 years ago

14 Replies

3rd jab anyone.

Big write up in today’s mail on Sunday, explains in detail for anyone still waiting for 3rd jab. Dave

Big write up in today’s mail on Sunday, explains in detail for anyone still wait...

Mtk1

•3 years ago

81 Replies

Low hemoglobin

Hi! I'm new on here, Louise. I have been diagnosed as CLL in August 2021. I have low hemoglobin any suggestions for bring ing it up would be appreciated.

Hi! I'm new on here, Louise. I have been diagnosed as CLL in August 2021. I have...

9896150629

•3 years ago

10 Replies

mRNA vaccine publications go back to at least 2012. First human testing was 2017. This technology did not "magically appear" since 2019.

I thought it would be interesting to look at the history of mRNA vaccine technology. The earliest publication of mRNA vaccine potential I could find was...

I thought it would be interesting to look at the history of mRNA vaccine technol...

SofiaDeo

•3 years ago

9 Replies

Brukinsa for CLL

Anyone have experience with taking Brukinsa for Cll. I had and a fib reaction to imbruvica. My doctor got an off label exception for brukinsa. It has the...

Anyone have experience with taking Brukinsa for Cll. I had and a fib reaction t...

Gretsch6120

•3 years ago

13 Replies

Richter transformation of CLL: a British Society for Haematology Good Practice Paper

This best practice paper, written by some of the best and most respected CLL experts in the UK and published on 4th October 2021 following a review of all the...

This best practice paper, written by some of the best and most respected CLL exp...

Jm954

Administrator•3 years ago

1 Reply

Antibodies

I have had the booster and have still been acting as if I haven’t. I had an antibodies test because I had to do other tests for my doctor. The results came...

I have had the booster and have still been acting as if I haven’t. I had an ant...

ksteinberglewis

•3 years ago

9 Replies

What's Next

After just two weeks on calquence my Dr. is stopping the calquence and putting me on imbruvica due to the fatigue.( unable to work) I was already having...

After just two weeks on calquence my Dr. is stopping the calquence and putting m...

Tgw61

•3 years ago

2 Replies

Risk of covid-19 related death and hospital admission after covid-19 vaccination

An enormous prospective cohort study in vaccinated UK adults, producing hazard ratios for many different population groups. Blood cancer patients do...

An enormous prospective cohort study in vaccinated UK adults, producing hazard r...

bennevisplace

•3 years ago

11 Replies

Shingles after the Pfizer vaccine?

Has anyone developed shingles after getting the Covid 19 vaccine? I had the Pfizer shot in March and I came down with shingles in September. I started...

Has anyone developed shingles after getting the Covid 19 vaccine? I had the Pfi...

jewels6075

•3 years ago

21 Replies

Bendamustine & Rituxan Remission?

How long did Bendamustine & Rituxan keep you in remission?

LlHoot

•3 years ago

12 Replies

Final Third Pfizer Results

Well, decided to try one more time. Total of four spike antibody test, with the last being yesterday, five weeks after third Pfizer. Sill no antibodies, guess...

Well, decided to try one more time. Total of four spike antibody test, with the ...

Davidcara

•3 years ago

1 Reply

AstraZeneca asks FDA to authorize Covid antibody treatment -it would be the first long-acting drug for people with compromised immune....

AstraZeneca, the drugmaker that developed one of the first Covid-19 vaccines, has asked the Food and Drug Administration to authorize the emergency use of a...

AstraZeneca, the drugmaker that developed one of the first Covid-19 vaccines, ha...

DanBro1

•3 years ago

7 Replies

Ibrutinib - Septrin

Had a face to face with my haematologist today, first time in 2 years. One point of conversation was that patients on Ibrutinib are now recommended to a...

Had a face to face with my haematologist today, first time in 2 years. One poin...

RobertCLL

•3 years ago

20 Replies

Venetoclax Side Effects

Greetings to All. I've been on Venetoclax monotherapy for 15 months now and bloods are good. But I have developed a tremor and have what I would call "brain...

Greetings to All. I've been on Venetoclax monotherapy for 15 months now and bl...

jaypax

•3 years ago

14 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2021

Fitness

An unusual, potent antibody to SARS-CoV-2 variants is isolated from a recovered patient

CLL and no treatment. What to expect?

Webinar ZOE COVID Study: Vaccines and the immunosuppressed Thursday 28th October 20213pm BST / 10am ET

Imbruvica side effects

CLL on colonoscopy polyp biopsy

3rd jab and anitbodies

I’m new here…

Acalabrutinib and mouth sores

Latest appointment with my specialist (but on the phone still)

Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason.

Ronapreve - Immunocompromised patients

CLL Society Webinar The Right Tests at the Right Time for CLL. Tests to guide treatment in all phases of CLL have never been better!

Septic arthritis in hip

Neutropenia with venetoclax. Give me information.

How long does it take to recover from Calquence

3rd jab anyone.

Low hemoglobin

mRNA vaccine publications go back to at least 2012. First human testing was 2017. This technology did not "magically appear" since 2019.

Brukinsa for CLL

Richter transformation of CLL: a British Society for Haematology Good Practice Paper

Antibodies

What's Next

Risk of covid-19 related death and hospital admission after covid-19 vaccination

Shingles after the Pfizer vaccine?

Bendamustine & Rituxan Remission?

Final Third Pfizer Results

AstraZeneca asks FDA to authorize Covid antibody treatment -it would be the first long-acting drug for people with compromised immune....

Ibrutinib - Septrin

Venetoclax Side Effects

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