Wanting Advice on how to explain CA with mild atrophy at a pre-op assessment.

[Legs-alive]

First of all I’d like to say a HUGE thank you to Ataxia Uk & all involved on receiving both my husband & my own photo ID cards, they have really boosted my confidence as to now being able to wear them & PROVE I have a REAL illness when going out, so thank you so very much.

2ndly I’m after a bit of advice, I’m going to have my pre-op assessment on Monday & am unsure how to explain my CA with mild atrophy without scaring them off from operating-I’ve actually waited just short of 9 years to be seen by a specialist & have this op-(orthopaedic on my shoulder) so it’s a really important date & desperately needed & longed for operation.

Could anyone give me any advice on how to explain it to them & that due to it I sometimes have full body tremors? Any advice would be very greatfully accepted,

Many thanks in advance.

Tracy😊

[wobblybee]

🙂 I had to see an Oncologist, he understood about ataxia, but so far through treatment decided to remove a component from the therapy because it was known to potentially cause Neurological effects.

I still had to make staff aware of ataxia at each stage of my treatment. No-one made any comment.

At the end of therapy my Oncologist arranged for an MRI with contrast to confirm treatment hadn’t caused any changes.