Hi everyone.
I have SCA3 and recently started experiencing neck spasms. They happen out of the blue and often after I have turned my head left or right. Is this cervical dystonia and is there anything I can do to prevent it? Also, is this a symptom of SCA3?
a lady in our support group had this and it was relieved with botox injections.
Thank you Patsy!
Hi, I have dystonia and had Botox injections for this in my neck, it does help for up to three months. It does sound like dystonia and it can be secondary, mine is. Ask your neurologist if you have one. All the best,
Suzie
I used to get them multiple times a day but once I started taking magnesium bisglycinate and now I get them maybe once a week.
Can I get magnesium bisglycinate from the chemist? or will I need a prescription? Do you have any other muscle cramps?
It’s sold with the supplements. Magnesium Citrate absorbs at the same rate so that’s an option too. Citrate also soften stools so pick which one suits your needs in that regard.
Magnesium glycinate is preferred by doctors over other forms of magnesium, such as citrate or maleate. It doesn't soften your stool as much either. Believe me, you do NOT want to ingest too much magnesium! I did and it was not a pretty picture.
Omg, I experience this too. I have ataxic celebral palsy but I thought my horrendous neck spasms were down to me having fibromyalgia
Hi Alison.
I get quite a fright when it happens as it catches me out the blue. Do yours happen the same way? It almost feels like the muscles are twisting over.
Magnesium glycinate is preferred by doctors over other forms of magnesium, such as citrate or maleate. It doesn't soften your stool as much either. Believe me, you do NOT want to ingest too much magnesium! I did and it was not a pretty picture.
When on earth will traluzole be available
What is it like to have SCA3?
So I'm symptom free . . . Are you not curious?
I am going for the result genetic test tmr
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