Friedrichs Ataxia

[simon111]

Hi everyone

My 16 year old son has friedrichs ataxia...are anyone of you taking supplement s etc that you feel are helping. He is detiorating quite a lot and I feel so helpless watching him

I have him on COQ10 ,Pharmaceutical strength Thiamine,Vitamin E and Vitamin D

Thank you in advance

[Litty]

Any child poorly is awful. I have SCA1 so do not know that much about Friedreichs. I take a lot of supplements, but realistically I do not think they help - but you do not know how bad you would be!

Talk to his GP and try to get him on this?

healthunlocked.com/ataxia-u...

Good luck x

[simon111 in reply to Litty]

Thank you Litty

I actually posted that ...not available yet

[february]

Dear Simon111, I'm so sorry your son has Friedrichs ataxia! I don't have any suggestions for you, unfortunately! I have ataxia due to Niemann Pick C disease and already take CoQ10, as well a Vitamin D-3. Been taking them for years and not sure if they do anything for me. Maybe the site that Litty sent you will be a great help! My best to you...,;o)