I fell over on the birthday and gashed my head really badly.
I can’t take much more and thinking about the next 10 or 20 years fills me with dread.
What is the point
Every day is the same
Same shit different day.
Can’t walk cook work make love drive see properly dance or anything normal l can’t even walk my dog
Bev my lovely, I’m sorry to see your post, would it help any if I came over to chat, laugh(if possible)hug..... or whetever you want, I told you, I’m here if you need me!
Don. 😘❤️ Xx
Don I’m so down
I can’t live like this anymore
Answer my email 😘❤️ Xx
I really have had enough xx
Not something I can click ❤️ on Bev. Xx
Hi I’ve had ey
I have answered your email, Bev......sorry to jump the queue Heggita! ❤️
My gorgeous mum also has really down days and yet as her daughter I am there to help her feel better emotionally. This forum is sooooo supportive. I so hope and pray that you can find some respite from your dog animals are such a comfort and perhaps from some community network, Age UK in your area who could come and visit. All strong prayers for you and your family In the meantime and hope the gash on your head heals.
No problem at all🥰🙏🙏All kind words help🙏🙏
bevvick1964 and I are friends, and only live a couple of miles apart..... thank you for your kind words of support for Bev. 👏👏👏😘
I am so fed up and I’m getting worse now
Sorry Bev, but my medication is taking effect on me, I must sleep..... I’m coming over tomorrow.
Hugs ❤️ Xx
Yes please I’m falling apart
Call the Samaritans "Whatever you're going through, call us free any time, from any phone, on 116 123." Contact your GP. Is there a Wellbeing service locally? Your GP will tell you. Yes, we have days and nights like this.
I’m going to see Bev this morning pinjem 😀
I hear ya! You’re really not alone in how you’re feeling & depression with any chronic illness often go hand in hand.
I’ve suffered with depression since I was 13-I’m now 50 in a couple of weeks time. I’ve not worked for the past 10 years & can honestly say Hand on heart, that I’ve never been as depressed in my whole life as I have been/still am. I’m exactly like you describe & only go out when someone’s With me-which isn’t often! I think about suicide often & tbh I think the only reason I haven’t is because I haven’t got the guts. I try to take one day at a time, some days are better than others filled with lots of fun & laughter. Hopefully you manage/managed to get a good sleep & feel a bit more lifted that you did when you wrote this. I find lack of sleep always makes me & my depression a lot worse! Maybe a trip to the Drs for a chat might help? Wishing you well, Sending you lots of love.
Hi there. Your story resonates with me. I have been on heavy medication for depression for nearly ten years now.
Minimal support from the NHS actually worsened the depression.
All I can suggest is what I do to survive, and that is to focus on living day by day.
Best wishes
I’m sorry to see your post Bev. Sending you a virtual hug! It’s very frustrating.... I know you would be missed.... xx
How sad. Don’t get too down, bevvick, please. If you saw real pain, that is heartbreaking - my grandson has leukaemia and he’s only 12. He has been through a lot. At least we have no pain. Try to keep your chin up and not let Ataxia win. 🤗
Morning Bev! How are you feeling this morning? You've been on my mind. Lots of hugs x
Hello Bev, thinking about you and the frustration of this Ataxia. Try to find something that makes you smile, which I know is not easy. I find Audio books are my saviour, something to think about and take your mind off things that are troubling you. Take care xxx.
hi Bev,
still can do it all, but NOT ON MY OWN. that's my xmas wish.
dreading my fall as confidence goes, the first..BUT REMEMBER THIS when one falls, one has to pick oneself UP, DUST DOWN, re-focus, re-start. Go and get something antidepressants or what? Life is hard and having ATAXIA HARDER. so much frustration. and I fully accepted myself how I am now.There are so many esp. now winterydays, lack of light, life, love, point, of going on BUT ON WE HAVE TO GO and hope for the best. I am youngish, lost love of my life, so I often feel like you...But CANNOT GO ON LIKE THIS, will go eventually mad. As shitty as life with ataxia is and I am not VISIBLY shaking, just at the beginning of it, cannot mope or get depressed and cause myself worsening...Younger by 12 years...still lucky to use my legs, travelling,, living, loving, BUT THE LIFE IS DIFFERENT, NOT BETTER OR WORSE, JUST DIFFERENT. We can't do anything with weather, season of the year. FOCUS ON WHAT WE CAN do...It is 90% in the head, lift your SPIRIT UP!
Hi, Sorry you are feeling so low and I do understand what you mean. I think every day is the same at times and illness can get you down at times. I have felt like that a lot in the past. If I feel down now I try to do my hobbies that I enjoy. I like art, jigsaws, my computer and I have just got a scrapbook to do, I like making things. I also love my cat, I recused her from the cat rescue when her owner died. She is very gentle and loving, I always say we rescued each other. When you are feeling down try to take your mind off the bad things and do something that you enjoy, this is what I have done and it has helped me a lot. Wishing you well,
Suzie
KNOW HOW YOU FEEL. PLS DON'T GIVE UP. I AM CONSTANTLY LOOKING FOR A WAY TO HEAL THIS INSIDIOUS DIS. ORDER. JUST FOUND AN INSPIRING BOOK, MIND TO MATTER, THE ASTONISHING WAY YOUR BRAIN CREATES MATERIAL REALITY, BY ACCLAIMED RESEARCHER DAWSON CHURCH. MANY DOCUMENTED EXAMPLES OF PEOPLE CURING INCURABLE DISEASES. THE MESSAGE IS, CHANGE YOUR MIND WCH CHANGES YOUR ENERGY FIELD, WCH CHANGES YOUR BODY. AT LEAST IT PROVIDES SOME HOPE. TRY TO STAY POSITIVE. MIND IS EVERYTHING.
My heart goes out to you, but I have hope for you. Please email me directly at carolina_917@hotmail.com.
I had a shitty day today too. Try to find something to latch on to, for me it’s watching TV box sets. Watching Absentia on Prime right now.
Dear Bevvick1964, So sorry you're feeling so down! I've had ataxia 20+ years and several years ago I saw a professional to help me deal better! You may want to think about doing that! I've also been on an anti-depressant (originally started due to having cardiac surgery to repair a heart arrhythmia)-looong story which I won't bore you with! It's not a 'happy pill', as I still have down times! Just helps me handle this ataxia better! I'll give you a mantra that I quietly repeat to myself at times: A woman (or man) is like a tea-bag, as she (or he) never knows how strong she (or he) can be until she (or he) gets into hot water! Hope your head is feeling better! I can relate to that, as I fell backwards a few years ago, splitting open the back of my head requiring nine staples to close the wound...,no fun, that's for sure! Feel better! My best to you..., ;o)
Yes it is shit, but it would be even shittier for your family if you werent here. Do yourself a favour, instead of thinking about the things you cant do, try things you can, even singing along to the radio! Doesnt matter if you cant sing, train your dog to do something, have a coffee morning at your house with your friends, let them make the cofee and have a good ol moan, talk about how you feel, let it out.
x
Sorry to hear you are struggling. It's okay to feel bad sometimes about how life is turning out so different to what you expect. Just remember, just because you have a disability doesn't mean you can't have a wonderful and fulfilling life albeit a bit different from the norm. So often when we hear about disabled people it is all woe and 'oh my, I could never live like that poor you' or even worse the minimising 'well, someone else has 'it' worse'. There is no 'it' and we disableds are all in it together! We are all just the way we were supposed to be 🥰
I don't know how keen on the different media platforms you are but, getting involved in the wider disabled community on youtube, Twitter, and Instagram has been so good for me realising that we can be sad about disability because of the internalised ableism rife in society. We are just as valuable as everyone else.
Much love,
Emma.
Has anyone experienced a sharp ache like pain from their shoulder that stetches right down their arm?
New and Very uncertain
Late on set Cerabeller Ataxia.
Feeling very tired and disorientated
So I'm symptom free . . . Are you not curious?
